Curious, knowledgeable wife of an Ataxian. My mission is to share reputable Ataxia information in short, simple, digestible servings. I want the world to become acquainted with Ataxia and the way it robs someone of their balance, coordination, ability to walk, talk, swallow, and see.
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We do a bit of Research into handicapped travel issues and provide some solutions. Mobility, Hearing, Sight, Mental issues included. so far our episodes have included some information on Ataxia, Cerebral Palsy, Deafness, Dancing Sickness, Gulf War Syndrome, Long Covid and Wheelchairs. We are both Disability Advocates and realize there are too many diseases and conditions to cover and try to discuss the most common problems disabled people face and spread some awareness of disabled issues non ...
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The 2DD podcast is about setting sights beyond the challenges in your life and dreaming big, making a plan, and then executing like mad. You are guaranteed an emotional rollercoaster, and practical thoughts that you can apply to your life with this podcast. Hosts Sean and Kyle are both affected by a rare disease called Friedreich’s ataxia (FA). FA affects their balance and coordination, significantly limiting their physical abilities. However both dudes have completed several long distance b ...
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Stay up to date on novel, clinically-relevant research findings in Parkinson's disease and other movement disorders. Each episode of the International Parkinson and Movement Disorder Society podcast discusses a relevant development in the field, including highlighted journal articles and interviews with the authors.
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Podcast by Neuro Podcases
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The Academy of Neurologic Physical Therapy Degenerative Disease Special Interest Group (DDSIG) is a component of the American Physical Therapy Association. The DDSIG is comprised of physical therapists, physical therapist assistants, and students in physical therapy programs that have an interest in neurodegenerative disorders including Parkinson’s disease, multiple sclerosis, amyotropic lateral sclerosis, Huntington’s disease, and others. The DDSIG provides a forum to discuss advances in pr ...
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Neuro Pathways: A Cleveland Clinic Podcast for Medical Professionals
Cleveland Clinic Neurological Institute
A Cleveland Clinic podcast for medical professionals exploring the latest research discoveries and clinical advances in the fields of neurology, neurosurgery, neurorehab and psychiatry. Learn how the landscape for treating conditions of the brain, spine and nervous system is changing from experts in Cleveland Clinic's Neurological Institute.These activities have been approved for 𝘈𝘔𝘈 𝘗𝘙𝘈 𝘊𝘢𝘵𝘦𝘨𝘰𝘳𝘺 1 𝘊𝘳𝘦𝘥𝘪𝘵𝘴™ and ANCC contact hours.
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Delve into the frontiers of cutting-edge brain science with ‘Research Renaissance’ a podcast presented by the Karen Toffler Charitable Trust. Join us on a journey of discovery with a diverse lineup of guests, including early career researchers undertaking groundbreaking studies. Hear their insights alongside voices from investment communities, policymakers, and research institutions. Collectively we explore the complexities of neurological diseases, their root causes, potential treatments, a ...
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Doing stuff Cover art photo provided by Andrew Ridley on Unsplash: https://unsplash.com/@aridley88
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A weekly spotlight on the businesses, hero's and exceptional stories from within The Corridor.
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Raising awareness of the special needs community through interviews of families about life children who have special needs.
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Everyone in the rare disease community has a story and every individual, every parent, every caregiver has a unique story to tell. Insightful Moments: My VIBE is here to tell those stories. We want to tell YOUR real-life stories and experiences from the rare disease community to inspire and remind listeners that we’re all in this together.
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Learn about Biohaven's research and clinical trials. Hear from doctors, clinicals, and patients on their experiences and why they do what they do. To learn more visit: Biohaven.com. Hosted on Acast. See acast.com/privacy for more information.
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AN APPLE A DAY is not only a podcast but also a resource and a community. It's a place to share your experiences and learn from others as we overcome barriers and learn to live a happy and healthy life with a disability.
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Welcome to A Neuro Physio Podcast. Erin and Matt chat openly with experienced people in the neuro physio world. We highlight the personal story and career pathway of our guests as they share clinical pearls applicable to modern neurological physio practice.
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Welcome to The Healthy Celiac Podcast—the go-to podcast for women with celiac disease! This podcast is designed to help you thrive beyond your diagnosis and embrace life to the fullest because you are so much more than just a woman with celiac disease. Hosted by Certified Health Coach Belinda Whelan, who specializes in follow-up care for women with celiac disease, each episode is a blend of practical advice, personal stories, and expert interviews. Belinda shares valuable insights on everyth ...
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Welcome to 'My rare disease' podcast. This is a platform where I raise awareness of something that affects 1 in 15 people, rare disease. By chatting to patients, health professionals and advocates, we talk about all aspects of rare disease including relationships, mental health and much more. I cannot wait for you to hear some truly inspiring stories from some absolutely amazing people. From being diagnosed with a rare disease myself at 10 weeks old, it has given me the motivation to give ot ...
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Ataxia, Advocacy, and Accelerating Research: Inside the National Ataxia Foundation
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51:33Welcome back to Research Renaissance, presented by the Karen Toffler Charitable Trust. In this episode, host Deborah Westphal explores the cutting edge of rare disease research with special guests Andrew Rosen, CEO of the National Ataxia Foundation (NAF), and Dr. Lauren Moore, NAF’s Chief Scientific Officer. Together, they unpack how the NAF has ev…
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In this episode, host Ken Vinacco talks with guests Andrew Rosen and Ashley Durando to discuss the National Ataxia Foundation mission and resources. The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy – www.neuroPT.org For questions about this podcast, please contact [email protected]. Guest Inf…
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Gluten Ataxia - What You Need to Know About This Neurological Condition Ep. 215
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11:01If you’ve been dealing with slurred speech, balance problems, hand tremors, or other strange neurological symptoms and have been told it’s just stress or anxiety, this episode is for you. We’re diving into gluten ataxia, a rare autoimmune condition triggered by gluten that affects the brain, not the gut. You’ll learn What gluten ataxia is and how i…
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Artificial intelligence in the diagnostic approach of chronic ataxias
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17:38Dr. Hugo Morales interviews Drs. Malco Rossi and Lucas Alessandro about their work on an AI-powered virtual assistant designed to aid in the diagnosis of chronic ataxias. They discuss how the assistant performed when put to the test, evaluating its diagnostic accuracy head-to-head against movement disorder experts. Journal CME is available until Ma…
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Dry, Brittle, or Hair Falling-Out? Celiac Disease Could Be the Reason Ep. 219
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10:21Your hair health tells a bigger story than most people know - especially when you’re living with celiac disease. In this episode, I’m breaking down what brittle, thinning, or falling-out hair might be trying to tell you about your gut health, nutrient deficiencies, stress levels, hormones, and more. If you’ve been wondering why your hair hasn’t bou…
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The longest prospective study of pallidal DBS for isolated dystonia
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34:26Dr. Mitra Afshari interviews Drs. Patricia Krause and Andrea Kühn on the results of a 10-year prospective follow-up study of a multicenter trial of GPI-DBS in isolated generalized and segmental dystonia. Together they discuss motor, non-motor, and safety outcomes, as well as the strong and stable long-term improvements in dystonia from pallidal DBS…
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Alcohol & Drug Recovery: Learnings from 40 Years of Care
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24:29David Streem, MD, reflects on four decades of addiction care at Cleveland Clinic, highlighting how integrated clinical practice, education, and research have advanced treatment for alcohol and drug use disorders.By Cleveland Clinic Neurological Institute
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Methylene Blue: Medicine's Rediscovered Wonder
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30:02Send us a text Methylene blue might be the most intriguing medical compound you've never heard of—unless you've been scrolling through TikTok lately. Kevin and Colmie dive deep into this fascinating substance that began life as a simple cloth dye in 1876 before finding its way into medicine. The contrast between scientific reality and social media …
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Celiac Disease Quiz - Discover the Support You Actually Need Right Now Ep. 218
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7:09In this short and exciting episode, I’m sharing something I’ve been working hard on behind the scenes... a brand-new quiz I created to help you figure out what kind of support your body needs right now if you're living with celiac disease. Whether you’ve just been diagnosed or have been gluten free for years and still don’t feel great, this quiz is…
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Unlocking Parkinson’s Potential: The Brain-Immune Link with Dr. Adithya Gopinath
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35:16In this groundbreaking episode of Research Renaissance, host Deborah Westphal reconnects with Dr. Adithya Gopinath, University of Florida, to explore a game-changing discovery in Parkinson’s research: a direct connection between dopamine neurons in the brain and the peripheral immune system, specifically the spleen. Dr. Gopinath shares how his lab’…
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Neurotrophic factors to restore dopaminergic terminals in Parkinson's disease: A viral vector-delivered genetic therapy
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20:14Could gene therapy with neurotrophic factors help restore dopaminergic terminals in Parkinson’s disease? Dr. Michele Matarazzo speaks with Dr. Amber Van Laar about her team’s Phase 1b trial of AAV2–GDNF gene therapy delivered directly to the putamen. They discuss the preclinical evidence for GDNF, how advanced delivery techniques and higher putamen…
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The AI Cure: How Drug Repurposing is Saving Lives
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51:03In this episode of Research Renaissance, Deborah Westphal sits down with Dr. Grant Mitchell, co-founder and CEO of Every Cure — a nonprofit revolutionizing how we treat disease using artificial intelligence and drug repurposing. You’ll hear the incredible true story behind the organization’s founding: a rare disease, a near-death diagnosis, and the…
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Celiac Disease Isn’t in Your Head - But Some of the Fear Might Be Ep. 117
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10:36Do you ever assume someone’s judging you just for asking questions about gluten free food? In today’s episode, I share a powerful psychological study that reveals just how much our thoughts can distort reality and how that applies to living with celiac disease. From restaurants to cafés, it’s easy to feel like a burden when you’re just doing your b…
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Do social workers play a role in preoperative evaluation for DBS?
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19:46Nicole Duff and Dr. Amanda Currie discuss the potential role of the social worker in deep brain stimulation (DBS) and the work of Dr. Currie’s team in creating a simple pneumonic that could be used to determine whether a social worker's involvement would be beneficial to DBS patients. They also discuss the clinical implications of this study as wel…
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Parenting on the Spectrum: A Mother's Journey
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25:34Send us a text The mystery of autism becomes deeply personal in this intimate conversation with Jessica, a mother whose journey with her autistic son ultimately inspired her own career in special education. Jessica takes us through the pivotal moment when her toddler son seemed to change overnight around his second birthday – suddenly struggling wi…
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Gait: Striding Towards Accurate Diagnosis
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30:18James Liao, MD, explores the diagnostic power of gait analysis in neurology, highlighting how advanced tools like augmented reality and wearable technology help clinicians more effectively identify and manage movement disorders.By Cleveland Clinic Neurological Institute
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Unlocking Sex-Based Differences in Alzheimer’s Risk with Dr. Rachel Buckley
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48:10In this powerful episode of Research Renaissance, host Deborah Westphal sits down with Dr. Rachel Buckley, Associate Professor of Neurology at Massachusetts General Hospital and Harvard Medical School. Together, they explore a growing body of research that challenges long-standing assumptions about sex differences in Alzheimer's disease. Dr. Buckle…
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Easy Gluten Free Travel Tips You’ll Actually Use Ep. 216
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13:14One of the most common questions I get asked is, “How do you travel safely with celiac disease?” Whether it’s a road trip, a flight, or even a cruise, traveling gluten free doesn’t have to feel overwhelming. In this episode, I’m answering your most-asked travel questions including what snacks to take, how to find safe gluten free restaurants, tips …
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Surprise neuropathological findings in LRRK2 mutation carriers
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17:54Mutations in LRRK2 are a common cause of familial and sporadic Parkinson’s. Though clinical features resemble typical PD, about half of cases lack Lewy pathology. Doctors Hiroaki Sekiya and Nanna Møller Jensen discuss their recent studies on the neuropathology of LRRK2-PD patients. They dive into their methods and how proximity ligation assays may …
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How Regenerative Biology Could Help Treat Alzheimer’s with Dr. Prabesh Bhattarai
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45:23In this episode of Research Renaissance, host Deborah Westphal sits down with Dr. Prabesh Bhattarai, Associate Research Scientist - The Taub Institute for Research on Alzheimer's Disease, the aging Brain, Columbia University Irving Medical Center and a 2024 Toffler Scholar. Dr. Bhattarai shares his groundbreaking work on regenerative biology and ho…
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Life After Diagnosis - How Celiac Disease Still Affects Your Body Ep. 214
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12:35So much of the celiac disease conversation focuses on getting diagnosed and avoiding gluten. But what about everything that comes after? In this episode, I open up about the long-term effects of celiac disease and why going gluten free isn’t always the magic fix. From food anxiety and stress, to unexpected weight changes, depression, social isolati…
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Send us a text What does it really mean to be on the autism spectrum? Beyond stereotypes and misconceptions, autism spectrum disorder (ASD) represents a fascinating variation in how human brains develop and function. We dive deep into understanding autism as a neurodevelopmental condition that affects how people interact, communicate, and experienc…
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Dr. Mark Bain and Dr. Francois Bethoux discuss the next frontier in stroke recovery, highlighting the promising role of vagus nerve stimulation in enhancing neurorehabilitation outcomes.By Cleveland Clinic Neurological Institute
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Decoding Alzheimer’s: Breakthroughs in Neural Recording using and Biostatistics & Machine Learning
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49:57In this exciting episode of Research Renaissance, host Deborah Westphal speaks with Dr. Ted Zwang, Assistant Professor of neurology at Massachusetts General Hospital and Harvard Medical School, Dr. Andrew Holbrook, Assistant Professor at UCLA and Jasen Zhang, PhD student in biostatistics in Holbrook’s lab. Together, they share how novel neural reco…
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Myoclonus Series: Prime editing - A future therapy for cortical myoclonus?
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17:42Prof. Marina de Koning-Tijssen interviews Prof. Sabine Fuchs on the potential of prime editing as a future therapy for cortical myoclonus. This exciting new development holds promise for the treatment of rare genetic disorders such as GOSR2. In the interview, Prof. Fuchs provides valuable insights into the science and potential applications of this…
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DD SIG Navigating the Path Episode 4: Huntington’s Disease Society of America
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28:34In this episode, host Ken Vinacco talks with guest Gia Mannone to discuss the resources that the Huntington’s Disease Society of America (HDSA www.hdsa.org ) offers for people with HD. Gia discusses events, ways to find specialized medical care, and education for people with HD in all stages of the disease. If you treat people with HD, you’ll likel…
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Genetic risk factors for Alzheimer's disease with Prof. Julie Williams
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37:35In this episode of our Neuroscience Research series, Filippo Dall'Armellina and Dr Michael Cearns speak with Professor Julie Williams (Cardiff University), a leading figure in the genetics of Alzheimer’s disease. Prof. Williams also co-hosts “In Two Minds” with Justine Pickering, so be sure to check it out.Research highlights:- Paper 1: Harold D et…
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DD SIG and JNPT Collaboration- Episode 56: Proprioceptive Reliance During Backward Walking in People with MS with Patrick Monaghan & Michael VanNostrand
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40:43This episode of 4D highlights results and implications from an article in the July 2025 Journal of Neurologic Physical Therapy special issue on walking in people with neurological health conditions. Host Parm Padgett interviews two authors, Michael (Mike) VanNostrand and Patrick (Paddy) Monaghan, about their recent study examining the role of propr…
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How Childhood Stress Shapes the Brain with Dr. Heather Brenhouse
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53:39In this fascinating episode of Research Renaissance, host Deborah Westphal sits down with Dr. Heather Brenhouse, professor of psychology and director of the Developmental Neuropsychobiology Lab at Northeastern University—and a 2024 Toffler Scholar. Together, they explore the deep connections between childhood adversity, brain development, and long-…
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9 Surprising Skin Issues That May Be Caused by Celiac Disease Ep. 213
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12:23Could your skin be reacting to something deeper? If you’ve been dealing with stubborn skin issues and nothing seems to work long-term, it might be time to look beyond the surface. In this episode, I’m diving into 9 skin conditions that are commonly linked to celiac disease—and how going gluten free can sometimes be the missing piece of the puzzle. …
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History of Movement Disorders: The story of MPTP and parkinsonism
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15:05In this episode, Prof. Tiago Outeiro interviews Prof. William Langston on the intriguing history of drug addicts manifesting parkinsonism in the 1980s, and how MPTP became a tool compound for modeling certain aspects of Parkinson's disease.
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Lungs Under Lock and Key: The Smoky Path to COPD
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23:45Send us a text Breathing is something most of us take for granted—until it becomes difficult. In this deep dive into Chronic Obstructive Pulmonary Disease (COPD), Kevin and Palmy explore the complex reality of living with compromised lungs. The hosts break down COPD's telltale signs: shortness of breath during physical activity, persistent coughing…
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Engineering the Brain—In the Lab and in Space
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40:56In this fascinating episode of Research Renaissance, host Deborah Westphall welcomes Dr. Alysson Muotri, a professor in the Departments of Pediatrics and Cellular & Molecular Medicine at the University of California, San Diego., for a deep dive into what makes the human brain unique—and how understanding that uniqueness might unlock new treatments …
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Breakthrough Blood Test Could Change Celiac Disease Diagnosis Forever Ep. 212
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19:17In this week’s episode of The Healthy Celiac Podcast, I’m diving into a new breakthrough coming out of Australia that could completely change the way coeliac disease is diagnosed. Imagine a future where you don’t have to eat gluten again just to get a diagnosis. That future might be closer than we think. I’m sharing all the latest on the new IL-2 b…
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Myoclonus Series: Myoclonus dystonia: Motor & non-motor symptoms and the effect of DBS
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15:31Prof. Marina de Koning-Tijssen interviews Prof. Kathryn Peall about her expertise on a topic that lies at the heart of her work: Myoclonus dystonia. We’ll hear her insights on both the motor and non-motor challenges faced by patients, and how deep brain stimulation is reshaping treatment possibilities.…
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Megan Jack, MD, PhD and Dennis Kao, MD explore the causes, diagnosis, and treatment of brachial plexus injuries, from trauma to surgical repair. This episode offers expert insight into nerve reconstruction and the latest advancements in care.By Cleveland Clinic Neurological Institute
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Microscopic Conversations: How Organelles Communicate and What It Means for Curing Neurological Disease
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45:39In this episode of Research Renaissance, host Deborah Westphal welcomes Dr. Yvette Wong, Assistant Professor of Neurology at Northwestern University and 2024 Toffler Scholar, for a deep dive into the dynamic inner world of cells—and how her lab is uncovering new clues about neurodegenerative diseases by studying the microscopic interactions between…
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Common Health Questions Women Ask Me About Celiac Disease as a Health Coach Ep. 211
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11:28If you’ve ever Googled something like “Why do I still feel sick with celiac disease?” or “Do I need to take supplements?”—this episode is for you. Today I’m answering some of the most common questions I get as a health coach working with women who have celiac disease. We’re diving into: The nutrients you might be low in (and why blood tests matter)…
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Genetic testing in deep brain stimulation for Parkinson's disease
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24:16In this episode, we explore the role of genetics and genetic testing in the decision-making and outcome of deep brain stimulation in Parkinson's disease with two experts in the field: Dr. David Arkadir and Dr. Saar Anis. This interview is also available in the text format within the MDS Scientific Issues: Read the issue…
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Beyond Diagnosis: The Evolution of Modern Cancer Care
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38:23Send us a text Cancer treatments have evolved dramatically from automatic death sentences in the 1970s to manageable conditions where patients can live for additional years or even decades with proper care. • Ruth's experience with her oncology team demonstrates the importance of having specialists who collaborate effectively with primary care phys…
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Aging with Dignity: Advancing Equity, Access, and Brain Health
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53:44In this compelling episode of Research Renaissance, host Deborah Westphal sits down with Sue Peschin, President and CEO of the Alliance for Aging Research, for a candid conversation about the intersection of science, policy, and aging. From Alzheimer’s drug coverage to the future of stem cell research, they unpack what it truly means to age with di…
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Why Your Gluten Free Diet Isn't Fixing Your Hormonal Imbalances Ep. 210
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15:34Even after going gluten free, many women with celiac disease still struggle with hormone imbalances, painful periods, PMS, thyroid issues, or fertility challenges. In this episode, I’m walking you through exactly why that happens—and what you can start doing about it. I’ll explain how celiac disease impacts your gut and how that affects your hormon…
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Myoclonus Series: Is propriospinal myoclonus a functional movement disorder?
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20:12In this episode, Prof. Marina de Koning-Tijssen interviews Prof. Mark Edwards. Together they delve into both the clinical and electrophysiological aspects of propriospinal myoclonus, and explore the distinguishing features and current treatment options for functional movement disorders.
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Alexandra Bonner, MD, discusses spinal muscular atrophy, keys for diagnosis, and considerations for treatment.By Cleveland Clinic Neurological Institute
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DDSIG: Bonus Episode- CSM 2025 Platform Award: Amplifying walking activity in Parkinson’s Disease through autonomous music-based rhythmic auditory stimulation – with Franchino Porciuncula
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37:37In this episode, host Ken Vinacco interviews Franchino Porciuncula, the winner of the DDSIG platform award at CSM 2025 in Houston, TX. They discuss his research related to utilizing closed-loop, music-based rhythmic auditory stimulation (RAS) with people with Parkinson’s Disease (PD). They review the impact on real-world walking and gait quality, a…
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