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Join us as we explore stories of Australians impacted by childhood-onset heart disease (CoHD) - including congenital heart disease. We'll tackle the big issues - what it's like receiving a new diagnosis, preparing for open-heart surgery, looking after your mental health, and much more. The show features cardiologists and experts sharing their knowledge about the topics you want to know more about. This show is for anyone impacted by CoHD - parents, carers, family members, friends, and those ...
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Revitalize your spirit and connect with the vibrant congenital heart defect (CHD) community through 'Heart to Heart with Anna,' the pioneering podcast that has been inspiring and informing listeners since 11-12-13. Join us as we dive deep into the personal journeys, triumphs, and challenges of Survivors, their loved ones, esteemed medical professionals, and other remarkable individuals within the CHD community. With unwavering dedication, our heartfelt conversations bring to light the storie ...
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This podcast is about Congenital Heart Disease (CHD), complex medical journeys, parenting through uncertainty and the deep resilience of walking through big life changes. Hosted by Katelyn McMahan, a mom to three girls whose life was changed in an instant when she found out her youngest daughter had complex cardiac abnormalities. She went searching to hear about kids with a similar diagnosis and wanted to see the life they were living. She didn’t want the curated, polished stories so she cou ...
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A podcast for people who have been impacted by the diagnosis of Trisomy 13 or Trisomy 18. Educational, informational and personal experiences with these diagnoses to provide comfort, community and empowerment to those that listen. Visit extratolove.org to learn more about our non-profit organization.
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Knowledgeable Provider

Jody Marks, MSN, AGACNP-BC, FNP-BC

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This is a podcast about medicine. We discuss all aspects of medicine from the strictly professional clinical stuff to the behind-the-scenes break room talk and everything in between. Whether you are a medical professional, a student, a patient, or just someone with a passing interest in the medical field you are bound to hear something you like!
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Unscripted with Alex

Alexandra Shepherd

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Host Alex Shepherd chats with guests about health related topics to help empower young families in making choices that are best for them and their children. Hosted on Acast. See acast.com/privacy for more information.
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Welcome to This is Real Life with Jenn Blossom where we talk all things that make us most uncomfortable. From abuse to addiction and trauma to recovery, nothing is off limits. My guests and I will expose the parts of ourselves that hold the most pain and share the freedom that is possible.
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Welcome to 'My rare disease' podcast. This is a platform where I raise awareness of something that affects 1 in 15 people, rare disease. By chatting to patients, health professionals and advocates, we talk about all aspects of rare disease including relationships, mental health and much more. I cannot wait for you to hear some truly inspiring stories from some absolutely amazing people. From being diagnosed with a rare disease myself at 10 weeks old, it has given me the motivation to give ot ...
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KU DE TA

KU DE TA

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Hosted by musical director BTK, with regular world-renowned DJ-producer guests, the weekly KU DE TA Bali radio show is a lovingly crafted aural representation of the elegant, exotic musical bohemia experienced during any typical long and winding day at the venue. The sundrenched sounds are timeless, yet contemporary; forward-thinking, yet reverential, encompassing everything from chic Asiatic chill to Balearic nu-disco. Experience the rhythmic heart and soul of KU DE TA either live online, a ...
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Because We Are Strong

Kristine Hoestermann

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Welcome to the because we are a strong podcast. A podcast inspired by stories of struggle and strength. A place where you can feel safe enough to share every part of your rare story. The good, the bad, the happy, and anything in between. Many times those in the rare disease community feel isolated from the rest of the world. Rare disease comes with its own set of unique challenges, ones that are hard for the outside world to understand. Through our stories, we can bridge the gap between a la ...
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Dear Friends And Family

Dear Friends And Family

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Dear Friends & Family is a show about living a full life with chronic illness with your hosts Patty & Lex. Patty lives with Fibromyalgia & Lex lives with Small Fiber Neuropathy. Together they explore the topics of life, love, and happiness with other people living a life involving illness. This show is to remind anyone dealing with illness in their day to day lives, whether they are the caretaker or the person with illness, that they are not alone. It's a serious topic with an upbeat feel. P ...
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This is the Real Birth Podcast: a safe, welcoming platform to share birth stories. I'm Lucy Hill, a doula, mother, wife and total birth nerd living in Frome, Somerset in the UK. When I was pregnant, one of my favourite things to do was to listen to birth stories. During this time I read and listened to literally hundreds and hundreds of birth experiences shared by all kinds of parents, having all kinds of births. I quickly became obsessed with the narrative of birth and the power of storytel ...
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Ready for the ultimate software conversation? At Planet Odoo, we’re passionate about the powerful role a software plays driving business scaling and economic growth. From emerging technologies to leadership, industries, marketing, and finance, we cover it all, tying it back to the real-world outcomes on businesses like yours. Don’t just understand software, understand how it impacts the world.
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show series
 
Hemorrhagic Stroke and Congenital Heart Defects: What You Need to Know When most people think of stroke, they picture an older adult, high blood pressure, or poor lifestyle choices. But for some stroke survivors, none of those apply. Instead, their stroke is the result of something hidden, something they were born with. That’s the case when a conge…
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What You Really Need to Know About AFOs After Stroke: Insights from Dr. Jennifaye V. Brown An AFO can be a game-changer in stroke recovery or a major obstacle. In this powerful interview, Dr. Jennifaye V. Brown, a physical therapist, researcher, and author of Brace Yourself, breaks down everything stroke survivors and caregivers need to know about …
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In this episode, Katelyn McMahan and her husband recount their transformative journey to Boston Children's Hospital for a life-saving in utero procedure for their daughter Goldie, who was diagnosed with congenital heart defects. They share the emotional rollercoaster of preparing for the procedure, the chaos of travel logistics, and the overwhelmin…
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In this episode of 'From The Heart', our host Rachael chats to Annabel Turner - a young heart adult who has tricuspid artresia. Listen as Rachael and Annabel chat about having a heart condition has not stopped Annabel from living a full, rich and exciting life. HEARTKIDS From The Heart is brought to you by HeartKids, the only national not-for-profi…
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Locked-in Syndrome and Recovery: Reclaiming Voice, Identity, and Life After Stroke What happens when your mind is fully awake, but your body no longer responds? For stroke survivors living with or recovering from locked-in syndrome, that question is not hypothetical. It’s their daily reality, one that challenges not just the body, but the spirit. B…
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Jody reviews pathophysiology, assessment, and treatment of erectile dysfunction. References: 1) Raymond, R.C., & Khera, M. Epidemiology and etiologies of male sexual dysfunction. UpToDate. https://www.uptodate.com/contents/epidemiology-and-etiologies-of-male-sexual-dysfunction 2) Khera, M. Evaluation of male sexual dysfunction. UpToDate. https://ww…
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Send us a text Monique Kemp's world turned upside down when her unborn son was diagnosed with an interrupted aortic arch at seven months of pregnancy. What followed was a harrowing journey through six open-heart surgeries, months of hospitalization, and the birth of something unexpected – a powerful vision for supporting other families facing simil…
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In this conversation, Katelyn McMahan sits down with Mary Jenner, a former pediatric oncology nurse and the owner of The Butterfly Pig, a company dedicated to creating medical toys that make healthcare more child-friendly. They discuss the importance of play in pediatric healthcare, the journey that led Mary to starting this business, and the vario…
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In this episode of 'From The Heart', our host Rachael chats to Stacey Micallef - a sexologist and relationship & trauma counsellor based in Geelong, Victoria. Listen as Rachael and Stacey chat about how CoHD can impact sexual health and relationships, and the strategies you can employ to build healthy, fulfilling sexual relationships. HEARTKIDS Fro…
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Overcoming Vertebral Artery Occlusion: Joel’s Story of Strength and Recovery When Joel Case suffered a vertebral artery occlusion, everything changed in an instant. A man who once skied marathons and ran daily suddenly found himself unable to walk, his balance gone, and his life turned upside down. What followed was a journey marked by resilience, …
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Send us a text From a family vacation that turned tragic to the creation of Pakistan's first specialized children's heart hospital, Ana Tanveer Abdullah's journey illustrates how profound loss can spark transformative change. When Ana's athletic, academically gifted brother Daniel collapsed unexpectedly at age 15, no one suspected a heart condition…
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Recovery from Locked-In Syndrome: Dylan’s Journey of Strength and Hope Introduction When we hear about stroke recovery, we often imagine slow progress, physical therapy, and determination. But for some survivors, the road begins at an even more unimaginable place: locked-in syndrome. Dylan Alford’s story shines a light on the reality of recovery fr…
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In this episode, host Katelyn McMahan interviews her father, Steve, about his experiences growing up with congenital heart defects (CHD). They discuss the medical challenges he faced, the advancements in cardiac care over the years, and the emotional impact of living with a chronic condition. The conversation also touches on the generational aspect…
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Recovery of Brain Hemorrhage: What You Need to Know About Healing, Hope, and Possibility The recovery of brain hemorrhage is one of the most misunderstood and under-supported journeys in stroke care. For many survivors, the moment of hemorrhage comes without warning; one minute, life is normal, and the next, everything has changed. What follows can…
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In this episode of 'From The Heart', our host Rachael chats to clinical psychologist Carlye Crank about mental health, medical trauma and the unique ways in which physical health can impact your mental health. HEARTKIDS From The Heart is brought to you by HeartKids, the only national not-for-profit solely focused on supporting and advocating for pe…
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Fibromuscular Dysplasia (FMD) and Stroke: What You Need to Know Fibromuscular dysplasia (FMD) is a rare condition that can silently impact arteries and, in some cases, lead to life-changing events like stroke. While not commonly discussed in stroke recovery circles, it’s a diagnosis that stroke survivors and their caregivers should be aware of, esp…
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What Does Stroke Recovery Really Feel Like? Recovery after stroke isn’t a straight line, it’s a winding, unpredictable journey that challenges not only the body but the mind and emotions. It’s easy to think recovery ends when rehab does. But for most survivors, that’s just the beginning. There’s the grief of lost abilities. The confusion of waking …
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In this conversation, Katelyn sits down with Sarah Michelle Boes, who shares her journey as a mother of a child with congenital heart defects. Sarah discusses the unexpected diagnosis of her daughter, the emotional and psychological challenges she faced, including grief and guilt, and the complexities of navigating the healthcare system as both a p…
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In this conversation, Lauren Celeskey Bednarz shares her journey living with a congenital heart defect, specifically a single ventricle condition. She discusses her early diagnosis, the challenges of growing up with a heart condition, the dynamics with her siblings, and the importance of mental health advocacy. Lauren emphasizes the need for suppor…
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In this episode, host Katelyn McMahan shares her personal journey as a mother to Goldie, who was diagnosed with congenital heart defects during pregnancy. She discusses the emotional impact of the diagnosis, the medical complexities involved, and the various surgical pathways available. Katelyn emphasizes the importance of community support and the…
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Jody responds to the American College of Physicians' Annals On Call Podcast episode released on May 19th, 2025. Links: Advanced Practice Clinicians Cannot Replace Primary Care Physicians. Annals On Call Podcast, 5-29-25 Physician Assistant and Former PA-Turned-Physician Discuss the State of the Profession. Patients At Risk Podcast, 7-25-21 (Spotify…
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Brain Bleed Stroke Recovery: What Survivors Can Teach Us About Healing and Presence Introduction A brain bleed stroke — also called a hemorrhagic stroke — can change your life in an instant. One moment you’re functioning normally, the next you’re fighting to stay alive. But while the physical trauma is visible, the emotional and psychological impac…
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Send us a text What happens when you've spent your whole life thinking your heart condition was "fixed," only to discover it's actually a lifelong journey? Elle Pendrick shares this profound revelation that came after her fourth open-heart surgery, forever changing how she understood her congenital heart disease. Born in 1983 with complex CHD in ru…
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In this special episode for Reconciliation Week, Angela Webb, HeartKids’ Aboriginal and Torres Strait Islander Community Engagement Manager, has a yarn with Tanika Parker, RHD Nurse Navigator, and Genavie Tabuai, Health Worker Coordinator for Maternal, Child and Family Health Programs, both from Torres and Cape Hospital and Health Service. Tanika a…
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Heart meds are everywhere—so what else can we do to help manage blood pressure and cholesterol after 50? In this episode, naturopath Tracee Blythe joins Alex to unpack resistant hypertension, the rise of statins, and why so many over-50s end up on multiple medications. They explore: How aged garlic stacks up against statins The role of magnesium, f…
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Stroke Fatigue Recovery: Why You’re Not Lazy, You’re Healing Some mornings you wake up and think, Today will be different. Today I’ll catch up. But by lunchtime, you’ve folded a towel, answered one message, and the fatigue hits hard. And the guilt follows right behind it. Sound familiar? If so, this post is for you. Because stroke fatigue recovery …
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In this episode, pharmacist Alex Shepherd chats with naturopath Tracey Gartner about the often-overlooked role of protein in menopause, and why it’s essential for muscle strength, bone health, energy, and healthy ageing. They explore holistic strategies to support women through perimenopause and menopause — from plant-based protein and gut health t…
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Dr. Lisa Murphy, CEO of the Stroke Foundation, discusses stroke recovery, advocacy, and the support services stroke survivors need now more than ever. The post Dr. Lisa Murphy on Stroke Recovery, Advocacy, and a New Vision for Survivors appeared first on Recovery After Stroke.By Recovery After Stroke
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Send us a text A broken wrist serves as an unexpected metaphor for the heart warrior's journey in this illuminating conversation with fundraiser and podcaster Amy Earhart. When Anna's recent accident left her with a titanium plate and a new perspective on recovery, it highlighted the resilience that characterizes the CHD community—adapting when our…
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This podcast is about Congenital Heart Disease (CHD), complex medical journeys, parenting through uncertainty and the deep resilience of walking through big life changes. Hosted by Katelyn McMahan, a mom to three girls whose life was changed in an instant when she found out her youngest daughter had complex cardiac abnormalities. She went searching…
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From musician to stroke survivor, Lorenzo Price shares his powerful AVM of the brain recovery story and how he rebuilt life after loss. The post A Tattoo Artist’s Life Turned Upside Down by AVM – Lorenzo’s Stroke Survival Story appeared first on Recovery After Stroke.By Recovery After Stroke
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C is for constipation! Jody discuss pathogenesis, diagnosis, and treatment of this surprisingly common problem. References: American College of Gastroenterology Guidelines Rome Foundation Chronic Constipation in Adults: Management (UpToDate) NIDDK on Constipation Mayo Clinic Constipation Article Merck Manual Constipation Article Diagnosis & Managem…
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