Join us for an engaging, informative, and supportive journey as we explore the realities, breakthroughs, and triumphs of living with sickle cell disease. Our podcast is dedicated to creating an awareness about this condition while also advocating for patients' rights and seeking solutions to improve their quality of life. Subscribe now to stay informed!
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Imagine a place where kids facing unique health challenges can just be kids. A place filled with laughter, friendship, and adventure, where medical needs for children with sickle cell disease are understood and met with expertise and compassion. That's exactly what Super Campers Always provides. Camp dates for 2025 are July 6-11. We'll be talking w…
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Blood, Sweat, Cells: The Power of Peer Support
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8:00
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8:00Blood, Sweat, and Cells: Real Talk about SCD is a podcast that provides in-depth, educational information about sickle cell disease (SCD). Each episode features interviews with patients or family members, doctors, and researchers who share their insights and experiences living with and treating this chronic condition. Our primary aim is to educate …
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Hope and Healing: Conquering Sickle Cell with BMT
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28:41Discover the incredible story of a young man and his bone marrow transplant experience. In this episode, we hear from a courageous young man and his supportive father as they recount their transformative journey through a bone marrow transplant that cured his sickle cell disease. Despite facing numerous obstacles and enduring many hardships, their …
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On this edition of Blood, Sweat and Cells: Real Talk About Sickle Cell Disease, We delve into the unique challenges women face when managing sickle cell disease, from menstrual issues to fertility concerns. Join us as we have a candid conversation with Dr. Sheinei Alan, an expert in sickle cell disease and its impact on women's health. Discover wha…
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Blood, Sweat and Cells: Understanding The Sickle Cell Trait
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12:22This sickle cell awareness month, the Heart of Gold Sickle Cell Foundation of Northern Virginia invites you to discover the significance of knowing your sickle cell status. Our guest, Dr. Sheinei Alan, sheds a light on understanding the distinction between sickle cell disease and the sickle cell trait. We'll explore family planning for couples who …
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Strength and Resiliency: Parenting A Child with Sickle Cell Disease
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16:48
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16:48In this heartfelt episode, join host Valerie Bey and her guest Dr. Clarence Pearson as they dive into a deeply moving conversation with a courageous father who opens up about his journey of raising a daughter with sickle cell disease. Through his candid storytelling, listeners gain valuable insights into the profound challenges and triumphs faced b…
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In this podcast we delve into the intersections of Juneteenth and World Sickle Cell Day in highlighting health disparities and promoting equity in our community. In addition, we'll take you on a fascinating audio tour of the high-tech and innovative Adult Sickle Cell Center at Inova Hospital, providing you with an exciting glimpse into the latest a…
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