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Rare with Flair

Casey Greer and Cassandra Mendez

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Casey + Cassandra are a pair of best friends with the same rare disease. Their goal is simple: sharing their lives to showcase the beauty and normalcy in disability, while having fun together. They’ll also touch on accessibility, friendships, style, and everything in between as they live their best, rare, lives! For show notes, go to rarewithflair.com
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hi hello hey, let’s go to the doctor! It’s been a hot minute since we did an episode on chronic health, but we’re BACK and ready for action! On this episode, we’re diving into what it really means to be your own advocate in the healthcare system, especially when you have a rare disease and a vision impairment. From the constant parade of specialist…
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hi, hello, hey—grab your popcorn, because it’s conference time! As many of you know, we’re two best friends with the same rare disease, living our best lives. We truly wouldn’t be friends without Hermansky-Pudlak Syndrome—or without this incredible conference. It’s where our friendship began, and where we reconnect with our amazing community year a…
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hi hello hey, let’s talk about skincare today! Skincare has gotten really trendy online thanks to creators on TikTok and Instagram telling your which creams to use to make you look younger. While we’ve talked about makeup and sunscreen some time back, we haven’t done a full skincare routine episode. Even if you’re not a chronically online girlie, c…
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hi hello hey, ready to rock out at a concert? It’s no secret that we love music, especially seeing the artists we love live. This week, we answer a listener question from Delaney, a loyal fan of Jesse McCartney, about shows we’ve seen, artists we’ve met, and accommodations we’ve either requested or made ourselves to make the most of our show experi…
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hi hello hey, sometimes we can’t see things… and maybe that’s okay? Like most of our episodes, this topic was inspired by something in our real lives – in this case, a fantastic interview with Camryn Yule (YouTube), a person with albinism who was in Wicked! No spoilers, but Camryn talks about the need to “read the room” and be discerning about when…
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hi hello hey, the internet has revealed who we truly are with iron-clad proof. If you’ve followed us even for a little bit, you’ll know that we love a personality test. We’ve talked a lot about personality over the years, from deep dives into established frameworks to fun, creative takes on what makes us us. This time, we’re delving into the world …
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