Casey + Cassandra are a pair of best friends with the same rare disease. Their goal is simple: sharing their lives to showcase the beauty and normalcy in disability, while having fun together. They’ll also touch on accessibility, friendships, style, and everything in between as they live their best, rare, lives! For show notes, go to rarewithflair.com
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hi hello hey, let’s go to the doctor! It’s been a hot minute since we did an episode on chronic health, but we’re BACK and ready for action! On this episode, we’re diving into what it really means to be your own advocate in the healthcare system, especially when you have a rare disease and a vision impairment. From the constant parade of specialist…
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117. few but many: HPS conference 2025
1:23:45
1:23:45
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1:23:45hi, hello, hey—grab your popcorn, because it’s conference time! As many of you know, we’re two best friends with the same rare disease, living our best lives. We truly wouldn’t be friends without Hermansky-Pudlak Syndrome—or without this incredible conference. It’s where our friendship began, and where we reconnect with our amazing community year a…
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116. rare but radiant: our new and improved skincare routines
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49:59
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49:59hi hello hey, let’s talk about skincare today! Skincare has gotten really trendy online thanks to creators on TikTok and Instagram telling your which creams to use to make you look younger. While we’ve talked about makeup and sunscreen some time back, we haven’t done a full skincare routine episode. Even if you’re not a chronically online girlie, c…
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115. internet fan meetups, unicorn snot, & trying to see the jumbotron
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1:03:42
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1:03:42hi hello hey, ready to rock out at a concert? It’s no secret that we love music, especially seeing the artists we love live. This week, we answer a listener question from Delaney, a loyal fan of Jesse McCartney, about shows we’ve seen, artists we’ve met, and accommodations we’ve either requested or made ourselves to make the most of our show experi…
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hi hello hey, sometimes we can’t see things… and maybe that’s okay? Like most of our episodes, this topic was inspired by something in our real lives – in this case, a fantastic interview with Camryn Yule (YouTube), a person with albinism who was in Wicked! No spoilers, but Camryn talks about the need to “read the room” and be discerning about when…
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113. an instagram reel revealed who we really are
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48:43hi hello hey, the internet has revealed who we truly are with iron-clad proof. If you’ve followed us even for a little bit, you’ll know that we love a personality test. We’ve talked a lot about personality over the years, from deep dives into established frameworks to fun, creative takes on what makes us us. This time, we’re delving into the world …
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112. a grocery delivery shopper yelled at cass??
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56:02Case + Cass at Chelsea Market in NYC, 2024By Casey Greer and Cassandra Mendez
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Case + Cass at tea, 2024By Casey Greer and Cassandra Mendez
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Cass + Case on the dance floor at the HPS conference, 2024By Casey Greer and Cassandra Mendez
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109. our wildest vision board dreams came true!
1:11:57
1:11:57
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1:11:57Case + Cass review their vision boards for 2024 to see how their years measured up. They also give highlights of their year in seasons.By Casey Greer and Cassandra Mendez
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Case & Cass share frustrating discrimination experiences—rideshare denials, job stories, and some shocking, never-told moments.By Casey Greer and Cassandra Mendez
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Case + Cass chat about childhood video games, what they play now, and their tips for making gaming more accessible with low vision.By Casey Greer and Cassandra Mendez
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106. we’re delulu about what we look like in public
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55:10Case + Cass talk about how, despite their best efforts, they always look a little odd in public when trying to look "normal."By Casey Greer and Cassandra Mendez
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105. case & cass’ carTWOon adventures
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1:11:28Case + Cass talk about four more cartoons they've watched together in the last year and a half and plug other cartoons they've seen lately.By Casey Greer and Cassandra Mendez
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104. did they really just say that?!
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1:21:55
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1:21:55Case + Cass share the uncomfortable, rude, silly, and ableist things people have said to them in public about their vision.By Casey Greer and Cassandra Mendez
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103. live from columbus: recapping our amazing weekend
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49:54
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49:54Case visits Cass in Columbus! The two recap their jam packed weekend of candles, bookstores, bakeries, and the renaissance fair.By Casey Greer and Cassandra Mendez
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Case + Cass bought new canes and give their reviews. They also share hot takes on different cane styles and explain the benefits of cane use.By Casey Greer and Cassandra Mendez
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101. cass has curly hair & case is running?!
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59:19
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59:19Case + Cass talk about what they've been into lately, including self-care, hobbies, side hustles, and media they've enjoyed.By Casey Greer and Cassandra Mendez
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100. over one hundred hours of us yapping!!!
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1:14:45Case + Cass celebrate releasing over 100 episodes and list their all-time favorites along with other episodes they’re proud of.By Casey Greer and Cassandra Mendez
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99. the unhappiest place on earth: discrimination at disneyland
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1:01:02Case + Cass share their humiliating experience trying to get the DAS pass accommodation on their recent trip to Disneyland.By Casey Greer and Cassandra Mendez
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98. rolling out the red carpet for the albinism conference
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1:24:58Case + Cass recap their time at the albinism conference in California. They talk about sessions they led and spending time with friends.By Casey Greer and Cassandra Mendez
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97. how we stopped word-vomiting all our struggles
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1:11:59
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1:11:59Case + Cass touch on what oversharing looks like and how they used to give too much information about their health and life.By Casey Greer and Cassandra Mendez
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Case + Cass talk about their bleeding disorder, how it affects them, and how they manage it. They also share some not-too-gory stories.By Casey Greer and Cassandra Mendez
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Case + Cass run through the things they’ve changed in their condos since early 2022 and how their homes have evolved to be more “them.”By Casey Greer and Cassandra Mendez
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94. fear of photos or light sensitivity: the photophobia episode
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58:23
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58:23Case + Cass talk all about their light sensitivity, and how it affects them outdoors and indoors, including their favorite sunglasses.By Casey Greer and Cassandra Mendez
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93. the great cardigan debate: our style roots
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1:04:41Case + Cass talk about the 8 style roots and which 3 describe their personal styles. They also list pieces that push their style boundaries.By Casey Greer and Cassandra Mendez
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Cass breaks the news that her guide dog, Romana, is retiring. She and Case explain the process, share memories, and even give a Rupert update!By Casey Greer and Cassandra Mendez
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91. doctors at a bar, cute lab mice, & dancing dinosaurs: HPS conference recap
1:20:44
1:20:44
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1:20:44Case + Cass recap the 2024 HPS Conference. They discuss key moments, funny interactions, and overall feelings about this special event.By Casey Greer and Cassandra Mendez
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90. too sick to be healthy, too healthy to be sick
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1:07:58
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1:07:58Case + Cass talk candidly about living with chronic illness. They touch on what it's like be both sick and healthy and celebrate small wins.By Casey Greer and Cassandra Mendez
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89. the moments that defined our ten-year friendship
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1:05:31Case + Cass celebrate ten years of friendship, looking back on how their relationship has grown and what makes their relationship unique.By Casey Greer and Cassandra Mendez
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88. side hustles, plant murder, & melting away the stress
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1:04:49Case + Cass give updates on their booming side hustles, becoming gym bros, plant mom life, and their other current hobbies.By Casey Greer and Cassandra Mendez
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87. the definitive ranking of all assistive technology
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1:22:31
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1:22:31Cass + Case subjectively rank over 20 blind and low vision assistive technologies in a tier list, highlighting their favorite tools.By Casey Greer and Cassandra Mendez
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86. just a couple decisive, self-aware, water signs: revisiting personality types
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53:04Case + Cass revisit their star signs, enneagrams, and Myers-Briggs personalities and talk about what has changed and what they have in commonBy Casey Greer and Cassandra Mendez
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Case + Cass lovingly poke fun at tone-deaf comments they hear from sighted people and how they feel about themBy Casey Greer and Cassandra Mendez
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84. 2024 vision boards: moving forward with courage
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1:10:13
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1:10:13Cass + Case share what they put on their vision boards for 2024 along with their hopes, dreams, and dispositions for the new yearBy Casey Greer and Cassandra Mendez
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83. getting personal: recapping 2023
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1:18:51
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1:18:51Cass + Case give a year in review of 2023, walking through each season and sharing the highlights. They also share their hopes for 2024By Casey Greer and Cassandra Mendez
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Case + Cass give gift suggestions for the blind, low vision, chronically ill, or any person in your life in time for the holiday seasonBy Casey Greer and Cassandra Mendez
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81. we answer your burning questions in our first Q&A
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59:32Cass + Case answer some listener questions in their very first Q & A on a variety of topics from fictional destinations to when to disclose or mask disabilityBy Casey Greer and Cassandra Mendez
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80. concerts we’ve cried at, guilty pleasure albums, and our teenage music tastes
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1:10:30Case + Cass list their top artists and compare to their 2020 episode. They also talk about music they loved as teens and still love todayBy Casey Greer and Cassandra Mendez
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Cass and Case process how they think others perceive them, how they perceive themselves, and how they perceive others with their disabilitiesBy Casey Greer and Cassandra Mendez
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78. stitches in Disney, kids in Vegas, ghosts in NOLA: our wild travel memories
1:06:09
1:06:09
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1:06:09Cass + Case talk about trips they've taken from childhood through adulthood and recount some memorable, hilarious travel memoriesBy Casey Greer and Cassandra Mendez
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77. only disabled friends talk about this
46:49
46:49
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46:49Case + Cass talk about the very specific, disability-related topics they chat about frequently that other people may not understand.By Casey Greer and Cassandra Mendez
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76. will we complete our fall bucket list?
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53:06Cass + Case create their fall bucket lists, complete with things they want to bake, watch, wear, and smell this seasonBy Casey Greer and Cassandra Mendez
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75. giving parenting advice without being parents
1:07:13
1:07:13
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1:07:13Cass + Case give a letter to parents of kids with disabilities by sharing their experiences and stories growing up.By Casey Greer and Cassandra Mendez
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Case + Cass give an update on how their personal style has evolved over the past three years and some new pieces they loveBy Casey Greer and Cassandra Mendez
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73. the alternate life where we wouldn’t be friends
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40:26
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40:26Case + Cass talk through what their lives would be like if they didn't have Hermansky-Pudlak Syndrome, for better and for worse.By Casey Greer and Cassandra Mendez
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Case + Cass celebrate their third year doing the podcast by live listening to and commenting on their very first episode.By Casey Greer and Cassandra Mendez
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71. oversharing on facebook: our online advocacy experience
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58:19
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58:19Cass + Case talk about their online advocacy journeys and how their approaches and feelings have changed over timeBy Casey Greer and Cassandra Mendez
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Cass + Case walk through a "day in the life" and share their daily routines from morning to night along with weekly and monthly activities.By Casey Greer and Cassandra Mendez
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Case + Cass talk about their love of cartoons by reminiscing on shows they watched as kids and shows they've watched together as adultsBy Casey Greer and Cassandra Mendez
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