Best RememberMePodcast Podcasts (2025)

1
Robert 49:14

1d ago49:14

49:14

Our inaugural in-law guest on the podcast, Amber, eloquently discusses her experiences as a mother, wife, and caregiver to her father-in-law, Robert. She covers a range of topics, from navigating Medicaid to ensuring Robert's safety—not only in a physical sense but also on social media. It's clear that she has truly gone above and beyond in her rol…

1
Bill 51:20

8d ago51:20

51:20

Christy found a way to navigate her father's FTD diagnosis with poise -- From fighting for a diagnosis to navigating 4 different Memory Care facilities... Christy seemed to go above and beyond to provide the best loving care for her dad. What was so apparent to us - was how naturally she adapted to his reality - always keeping his personhood at the…

1
Holly 57:59

16d ago57:59

57:59

Today's episode feels like a conversation between 3 old friends. Genessee, openly shares her unique experience with her mother's complex mental health issues and her eventual diagnosis of frontotemporal dementia (FTD). For the first time we really dive into the topic of infertility -- and what it's like to navigate a fertility journey alongside the…

1
Russ 1:05:59

23d ago1:05:59

1:05:59

Continuing on our theme of family dynamics - a long-time listener and friend of the podcast, CJ, comes forward to share her story. We talk a lot about navigating motherhood alongside her father Russ' FTD journey, with all the family dynamics and challenges that come along the way. CJ tells her story with so much love and honesty, it is sure to touc…

1
Peggy 56:42

1M ago56:42

56:42

A young son and family member from NYT Magazine's “The Vanishing Family” speaks with us on today's episode. In what may be one of our most powerful interviews, Ansel shares the origins of his mother Peggy's journey with FTD and their family's discovery of the MAPT FTD mutation through their incredible efforts to contribute to FTD research. You can …

1
Mike 52:29

1M ago52:29

52:29

A beautiful blended family-- Janet's husband Mike was diagnosed with FTD during the pandemic -- and she shares with us how she navigates the heartache and grief through the beautiful blended family her and Mike formed together. Janet thought it was important this season featured a story of how families can come together too -- and we're so glad. Th…

1
Dominic 1:12:09

2M ago1:12:09

1:12:09

We plunge head first into family dynamics with our extraordinary guest, Niki. Niki shares the story of her father, Dominic, detailing his journey with FTD - including the difficulties of balancing the reality and gravity of the diagnosis alongside the overwhelming decisions for his care. All while navigating family conflicts, and of course, the emo…

1
Family Dynamics 51:30

2M ago51:30

51:30

SEASON 10! WHAT? 10 seasons in and we're finally ready to dive into the topic of Family Dynamics. Before diving into our guests stories, our first episode has some personal updates (Rachael's puppy golden retriever BENNY!), our hopes + dreams for the new season, some hearty laughs + more. ------------------- For all things RM, join us over on ⁠⁠⁠⁠⁠…

1
BONUS | Grief & Genetic Testing with Erynn Gordon, MS, CGC, Progranulin Information Navigator 50:42

4M ago50:42

50:42

Surprise... another BONUS ep! The grief convo in Season 9, we felt, really needed to include the genetic piece of this disease, and so we are HONORED to have Erynn Gordon - a board certified genetic counselor with 20 years of clinical, research, and industry experience with us to dive into this topic. Erynn SO thoughtfully breaks down genetics and …

1
BONUS | A Conversation on Grief with the AFTD 1:09:05

4M ago1:09:05

1:09:05

Surprise! We're back with a Season 9 Bonus Episode, and if you are so inclined, you can now WATCH this episode on Youtube. We sat down with our friends Esther Kane, MSN, RN-CDP, Support & Education Director and Sarah Lopata, Support Services Manager at the Association for Frontotemporal Degeneration to discuss the unique grief experience of FTD and…

1
Craig 1:05:21

5M ago1:05:21

1:05:21

In our Season 9 finale we hear from our friend Anna, wife to the incredible, confident, loving girl-Dad, Craig. Anna's strength and her love is so inspiring, we hope it fills you with hope and comfort as you navigate the holidays. ------- An extended version of this amazing episode is available now on our Re-Members only Patreon. A special thank yo…

1
The Phenomenon of Grief with Rachael Martinez, MA, Grief Support Specialist 50:57

5M ago50:57

50:57

Anticipatory Grief, Complicated Grief, Disenfranchised Grief... we cover it all + Rachael's explanation for her fascination with grief and all things *bittersweet* We're nearing the end of season 9! Thank you for all of your support this season + beyond! Please don't forget to check out our Patreon for bonus episodes + more! And follow us on Instag…

1
Diana | Part 2 44:44

5M ago44:44

44:44

In Part 2 of this powerful story we discuss Kayla's coming back to her mom in the final year's of Diana's life. Kayla tells us all about her grief journey and her hopes for her future.Make sure you listen t o Part 1 first! Thank you Kayla for sharing your story.---*Trigger warning: This episode discusses physical and verbal abuse. Please check out …

1
Diana | Part 1 43:05

6M ago43:05

43:05

Here is part one of an episode we weren't sure what to title - and after you listen, we think you'll understand why. Kayla recounts and her 20 year experience witnessing her mom Diana's dramatic FTD journey -- starting from when she was just 8 years old. This is such an important episode and we hope it gets to the people who need to hear it. Stay t…

1
David 56:23

6M ago56:23

56:23

Today's episode is told by Liz, who was 12 years old when her father passed away from FTD-ALS. Her perspective was both fascinating and inspiring and we felt so honored to hold space for her and her dad, David. We hope this episode of love and resilience helps carry you through Thanksgiving week. Take good care. Please send this episode to someone …

1
Evan 52:09

6M ago52:09

52:09

Today's episode is the first one this season told from the spouses perspective... and Allyson is such a special spouse to her husband Evan. From misdiagnosis of adult onset ADHD to the final diagnosis of FTD was a long, long journey. But Allyson's love for Evan shines throughout. This is a very special episode that is so raw and honest about the aw…

1
Rosetta 57:01

7M ago57:01

57:01

Ready to dive into all the feels? This may be our favorite convo on grief to date. In today's episode Aisha tells us about her mother's journey with FTD - and because we know Aisha, we felt like we were able to dive deep into all the things we wish people knew about our grief journeys. Thank you Aisha for sharing your story with us! We hope this ep…

1
Eugene 1:02:47

7M ago1:02:47

1:02:47

Long-time listener and "Re-member" Liz, shares her father Eugene's journey with FTD. A year plus since his passing, Liz shares her experience with grief, how it manifests for her - and how she keeps herself tethered to the memory of who he was before FTD. We hope this episode helps you feel less alone. Spread the word + share this episode with some…

1
End of Life Myths and Mysteries with Katie Duncan, MSN, AGPCNP-BC @deathcarecoach 53:18

7M ago53:18

53:18

This week we have an amazing expert guest - Katie Duncan - a former Hospice Nurse turned End of Life Coach who answers all of our (mostly Rachael’s) burning questions about the dying process. We cover so much - from the death rattle to the death “rally” - thoughts on morphine and more. All in an effort to normalize the conversations on end of life …

1
Debbie 53:46

7M ago53:46

53:46

Today's story is about a woman who was very aware of her disease and the fact that she was changing. Told from her daughter Kyra's perspective, Debbie's episode dives into the many unique layers of grief that come with Frontotemporal Dementia. A special thank you to Kyra for so delicately expressing the end of life experience in an effort to help o…

1
Jerry 47:16

8M ago47:16

47:16

Today's story is shared with the perspective of 20 years in the rear view mirror. Cindy joins us to tell the story of her father Jerry's journey with early onset Alzheimers, which he was diagnosed with in the late 80s. With many years of reflection, Cindy shares her perspectives on her grief journey and her relationship with her sweet Dad. Cindy re…

1
Anticipatory Grief: Victoria's Story 46:06

8M ago46:06

46:06

Victoria openly shares the brutality of anticipatory grief, the unending love she has for her mama and the ways she got to know herself in the darkness. We were blown away. Please share this episode with someone you think needs to hear it. --- All things Remember Me Community + Advocacy: ⁠⁠www.remembermeftd.com⁠⁠ | ⁠⁠@remembermepodcast⁠⁠ Holding Sp…

1
Steve 48:09

8M ago48:09

48:09

Our first episode of the season belongs to our new pal Scott. Through an open letter to his grief and the most beautiful love for his Dad, Scott openly recounts the experience of his father Steve's FTD journey - and his magnificent ability to explain what grief feels like will leave you speechless. We hope that Season 9 helps you feel less alone. S…

1
Trailer | Season 9 of Remember Me 6:26

8M ago6:26

6:26

See what's in store for Remember Me Season 9... Follow us on Instagram for the latest RM news @remembermepodcast or visit us at www.remembermeftd.com ____ The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠…

1
On The Road with HFC | Reflections On The Caregiving Journey 26:33

8M ago26:33

26:33

We wrap up our special summer series with a heartfelt conversation on both our time on the road and our time as caregivers. Thank you to HFC for this special opportunity + for supporting our work at Remember Me. Navigating caregiving can be tough, but you don’t have to do it alone. Check out the HFC Caregiver Roadmap ⁠⁠⁠⁠⁠⁠here⁠⁠⁠⁠⁠⁠. And don't for…

1
On The Road with HFC | Music, Grief + Dementia with Karen Pearson at Amoeba Music 41:54

9M ago41:54

41:54

We stopped at the ICONIC Amoeba Music... and we had the most tender conversation on music and grief with Co-Owner Karen Pearson. We loved hearing about her beloved Ilene. We could have talked for hours. We hope this episode finds the people who need to hear it so please share! And don't forget to follow us ⁠⁠⁠⁠@remembermepodcast⁠⁠⁠⁠ and ⁠⁠⁠⁠@weareh…

1
On the Road with HFC | The Brain Donation Decision with Lauren Miller Rogen 32:29

9M ago32:29

32:29

A very special sit-down interview with Lauren Miller Rogen, actress, screenwriter, director AND co-founder of ⁠⁠HFC⁠⁠ alongside her husband Seth. This is a raw + honest conversation between 3 daughters of dementia about the decision to donate their parents brain's to research. We hope this episode finds the people who need to hear it so please shar…

1
On The Road with HFC | A Little Summer Adventure 47:31

9M ago47:31

47:31

Surprise! Here to share all about being on the road with ⁠HFC⁠ AKA Hilarity for Charity. Have no idea what we're talking about? Take a seat. From touching brains at UCI Mind to jamming out at Ameoba music to chatting up strangers on Hollywood Boulevard with Bruno the BRAIN PUPPET... we had ourselves an adventure. Buckle up for some fun + stay tuned…

1
BONUS: Understanding Different Aspects of FTD Research with Dr. Irwin and Dr. Massimo 35:36

11M ago35:36

35:36

Y’all thought we’d stay away this long??? We’re baaaccckkk! And this is #2 of the TWO bonus episodes we produced for Season 8! In this episode we tackle the different types of research with Dr. Irwin and Dr. Massimo, the Co-Directors of the Penn FTD Center. Some of the questions we ask: -What are the different types of research? Pharmacological vs.…

1
BONUS: Understanding Clinical Trials for FTD with Dahlia Kamel, Penn FTD Center 58:03

11M ago58:03

58:03

Y’all thought we’d stay away this long??? We’re baaaccckkk! And this is one of TWO bonus episodes we produced for Season 8! In this episode we tackle Clinical Trials with our friend Dahlia Kamel, MS - Clinical Trials Lead at the Penn FTD Center. Some of the questions we ask: -What is a clinical trial? -What do the different phases mean? -What are t…

1
Season Finale: In Conclusion...with Rachael + Maria 53:21

1y ago53:21

53:21

In conclusion...it's our season finale... and we're wrapping up this series with our own little bow. Make sure to listen til the very end. And stay in touch, follow us on IG, and keep up to date on all things RM. You never know when you may get an encore *cough* bonus *cough* episode or two... Thank you all for your support and love. Sincerely, R+M…

1
Understanding Guardianship, Power of Attorney + More with Kate Lietz, MSW, LSW 55:39

1y ago55:39

55:39

This week we talk all about Guardianship, Power of Attorney, Long Term Care... and other "scary" and confusing terms that can come up when planning care for your loved one. All with the help of Kate, a social worker at the Penn FTD Center. But before that, we dive into our friend Keri's personal experience getting Guardianship for her father, Mark.…

1
Disease Trajectory with Lauren Massimo, PhD, CRNP, Co-Director of the Penn FTD Center 37:38

1y ago37:38

37:38

Are there stages of FTD? What can you "expect"? This week we walk through disease trajectory with Dr. Lauren Massimo (also featured on Episode 2 - Understanding Apathy). Dr. Massimo breaks down what we know, and how she likes to guide families through these discussions. And this week's personal stories come from our friends Lauren and Michelle from…

1
Understanding Hyperorality and Alcohol Use with Dr. Sara Manning, Penn FTD Center 40:43

1y ago40:43

40:43

This episode revolves around the symptoms of hyperorality -- with a focus on the very common symptom of alcohol use (and abuse). Have a listen as the story meets the science with the lovely Dr. Sara Manning. We want to send big love to the entire ⁠⁠⁠⁠⁠⁠⁠⁠Penn FTD Center Team⁠⁠⁠⁠⁠⁠⁠⁠ for jumping in feet first, to our sponsors for their support and t…

1
Understanding Loss of Empathy with Dr. Emma Rhodes 44:30

1y ago44:30

44:30

This week we dive into loss of empathy with Dr. Emma Rhodes. We discuss how this behavior so often reveals itself with birth and death announcements and the episode is filled with personal stories from Rachael, Maria and their friends Lauren and Michelle from the Sister Project (Season 1 - June Pt. 1 & Pt. 2). We want to send big love to the entire…

1
Understanding FTD and ALS with Corey McMillan, Phd, Co-Director of the Penn FTD Center 37:29

1y ago37:29

37:29

WE'RE BACK! With a very important interview with the brilliant Corey McMillan, Co-Director of the Penn FTD Center. This week we tackle ALS and FTD - the science behind the connection of the diseases, and the work that is being done to understand more. We want to send big love to the entire ⁠⁠⁠⁠⁠⁠Penn FTD Center Team⁠⁠⁠⁠⁠⁠ for jumping in feet first,…

1
Disinhibition, Impulse Control & Hypersexuality with Dr. Katya Rascovsky, Penn FTD Center 45:52

1+ y ago45:52

45:52

In our last episode before our mid-season break, we talk to the incredible Dr. Katya Rascovsky about some of the most heartbreaking behaviors in FTD: disinhibition, impulse control and hypersexuality. Katya is absolutely brilliant, kind, and we learned so much from her. We'll see you back here on March 5th, when we'll start to dive into the second …

1
Understanding Primary Progressive Aphasia with Naomi Nevler, MD 49:34

1+ y ago49:34

49:34

This week we dive into more of Maria's experience with her mom as we discuss Primary Progressive Aphasia (PPA) with ⁠Naomi Nevler, MD from the Penn FTD Center. We had the chance to spend time with Naomi on our visit to Penn last fall, and her passion for science and her understanding and compassion for our community, we feel, is all felt through th…

1
Ritualistic Behaviors with Gillian Bradley MA, BSN, RN, Penn FTD Center 40:11

1+ y ago40:11

40:11

This week we tackle ritualistic behaviors with Gillian Bradley MA, BSN, RN from the Penn FTD Center. Gillian works with caregivers and families to understand ritualistic and compulsive behaviors and come up with strategies for managing them. Ritualistic behaviors can include things like constant pacing, repeating the same phrases, eating the same f…

1
Understanding Aggression and Agitation in FTD with Dr. Jeff Maneval, Neurologist at the Penn FTD Center 44:05

1+ y ago44:05

44:05

In this episode, we dive into the challenging behaviors of Agression, Agitation... and also Paranoia. Past guest and friend of the podcast, Evan, recalls his experience caring for his mother, and trying to protect her reputation with her best friend. Then we pair the science -- Dr. Jeff Maneval, Neurologist at the Penn FTD Center AND Assistant Prof…

1
Apathy with Lauren Massimo, PhD, CRNP, Co-Director of the Penn FTD Center 52:46

1+ y ago52:46

52:46

In this episode, we tackle one of the most common FTD symptoms, apathy. We do this first with Maria's Mother's best friend Melina, who shares the apathy she witnessed at the beginning of Lia's disease that left her feeling so confused. Then we pair the science -- Lauren Massimo, co-director of the Penn FTD Center, and someone who has been studying …

1
Intro to Season 8 with Dr. David Irwin, Co-Director of the Penn FTD Center 34:00

1+ y ago34:00

34:00

We are so thrilled to be back behind the mic for SEASON 8! (I know!! Crazy, right??). We launch this innovative season, where we match the stories to the science, with our new pal – Dr. David Irwin. Dr. Irwin gives us a broad overview of what FTD is and what is generally seen after a diagnosis. Dr. Irwin does a fantastic job explaining what is happ…

1
The Tale of The Tour of 3 Cities 59:19

1+ y ago59:19

59:19

The tale has finally been told. Tune in to hear all the ins and outs of Remember Me's first tour... and we hope this light bonus episode helps get you through the holiday week. Take care, friends. xx, R+M ... Special thank you to our sponsor, Make Time Wellness! Remember Me listeners get 20% off all products with promo code REMEMBER ME. Shop here: …

1
BONUS: Re-Release of Frankie 53:21

1+ y ago53:21

53:21

To honor Frank on the 3rd anniversary of his passing, we are re-releasing our very first episode... and with a little intro / checkin from your favorite duo. Stay tuned for a BRAND NEW bonus episode next week... and for all things RM, visit our website remembermeftd.com or our instagram @remembermepodcast... and if you're in need of extra podcasts,…

1
BONUS EP: Adventures, Sky Cries + BIG PLANS for World FTD Awareness Week 31:16

1+ y ago31:16

31:16

SURPRISE! We miss you all + we're here to fill you in on our upcoming adventure. We hope you enjoy this BONUS episode! LEARN MORE ABOUT THE TOUR FOR FTD WORLD AWARENESS WEEK: www.remembermeftd.com/tourof3cities Connect with us on IG: @remembermepodcast Learn more about Re-Members Only here. Sign up for our Newsletter here.____ The Remember Me Podca…

1
An Update on FTD Research with Dr. Brad Boeve 47:05

2y ago47:05

47:05

We close out season 7 with an update on FTD research from world renown neurologist Dr. Bradley Boeve. Dr. Boeve shares the importance advocacy and awareness in pushing research forward, and what he is hopeful is on the horizon for our community. If you've enjoyed this season, please connect with us on instagram @remembermepodcast, on our website. I…

1
Do I Want To Know My Status? 51:15

2y ago51:15

51:15

Rachael asks herself the question, "Do I want to know my genetic status?" Make sure you listen til the end for a very special clip... and tune in next week for our season finale with Dr. Brad Boeve. Thank you for listening! Let us know what you think of this episode by connecting with us on instagram @remembermepodcast, on our website, or by joinin…

1
The M Family 35:50

2y ago35:50

35:50

A physician shares his family's journey with FTD clinical trials. There are so many things to think about when getting involved in research and/or enrolling in a clinical trial, and this listener wanted to share his insight and learnings in case it could help other families navigate this journey. We are so thankful for his insight and his hope... a…

1
Lesley 59:13

2y ago59:13

59:13

Our friend Lauren from across the pond joins us to share her mother Lesley's journey with FTD. Lauren takes us through the search for answers as to her mother's change in behavior - and the parts of her mothers life that made it hard to decipher what the culprit was. She also dives into her journey with genetic testing and the things she thinks abo…

1
Allison, Pt. 2 45:43

2y ago45:43

45:43

Linde returns this week to dive into her journey with genetic testing following her mother Allison's passing. This may be one of the most raw conversations we've ever had on Remember Me. Thank you, Linde for being so vulnerable and honest. This episode is inspiring on so many levels -- and stay tuned for a very special letter at the end. UPDATE! Li…

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