Making the most out of your optician appointments

My Macular and Me

#Fitness #Non-Profit #Business #Macular Society

26:28

Squid Game is back—and this time, the knives are out. In the thrilling Season 3 premiere, Player 456 is spiraling and a brutal round of hide-and-seek forces players to kill or be killed. Hosts Phil Yu and Kiera Please break down Gi-hun’s descent into vengeance, Guard 011’s daring betrayal of the Game, and the shocking moment players are forced to choose between murdering their friends… or dying. Then, Carlos Juico and Gavin Ruta from the Jumpers Jump podcast join us to unpack their wild theories for the season. Plus, Phil and Kiera face off in a high-stakes round of “Hot Sweet Potato.” SPOILER ALERT! Make sure you watch Squid Game Season 3 Episode 1 before listening on. Play one last time. IG - @SquidGameNetflix X (f.k.a. Twitter) - @SquidGame Check out more from Phil Yu @angryasianman , Kiera Please @kieraplease and the Jumpers Jump podcast Listen to more from Netflix Podcasts . Squid Game: The Official Podcast is produced by Netflix and The Mash-Up Americans.…

about a year ago 26:19

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In this episode of the My Macular and Me podcast, we are joined by Hannah Keegan, programmes manager at the Macular Society, and Claire Ashe, service administrator and former dispensing optician. Join us to find out how to get the most from your optician appointments, what to expect, what to bring, and how to be as prepared as possible.

For more information on eye care and eye health, please visit macularsociety.org.

The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular disease, along with their family and friends. If you or a family member need advice or support, please make sure to reach out. No one has to face macular disease alone. Please call us on 0300 3030 111.

49 episodes

My Macular and Me

Making the most out of your optician appointments

My Macular and Me

published about a year ago

MP3•Episode home

Send us your feedback

For more information on eye care and eye health, please visit macularsociety.org.

49 episodes

#Fitness #Non-Profit #Business #Macular Society

All episodes

My Macular and Me

1
Bitesize Benefits: Pension Credit 26:51

10 weeks ago26:51

26:51

Send us your feedback Living with sight loss may entitle you to extra financial support to help with day-to-day costs, but do you know what you can claim? Our mini series Bitesize Benefits will cover a range of topics related to financial and workplace support for those living with macular disease. In this episode we are joined by Dominic Milne from RNIB to discuss pensions and pension credit. This episode explores the complexities of the application and what you're entitled to. For more information on benefits available to help those living with macular disease and their families, please visit our website . The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular disease, along with their family and friends. If you or a family member need advice or support, please make sure to reach out. No one has to face macular disease alone. Please call us on 0300 3030 111 .…

My Macular and Me

1
What to expect from anti-VEGF injections 29:33

12 weeks ago29:33

29:33

Send us your feedback Eye injections can feel daunting, but they don’t have to be. In this episode of the My Macular and Me podcast, orthoptist and advanced practitioner Catherine Williamson answers common questions and clears up misconceptions to help you feel more prepared, informed and reassured about treatment. For more information on injections and other treatments, visit our website . The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular disease, along with their family and friends. If you or a family member need advice or support, please make sure to reach out. No one has to face macular disease alone. Please call us on 0300 3030 111 .…

My Macular and Me

1
What is epiretinal membrane? 19:19

14 weeks ago19:19

19:19

Send us your feedback What is epiretinal membrane? In this episode of the My Macular and Me podcast, we are joined by Dr. Teresa Sandinha, consultant ophthalmologist at the Royal Liverpool University Hospital and Geraldine Hoad, our head of research grants at the Macular Society, to explore this topic. If you've been diagnosed with an epiretinal membrane or you are curious of how it affects vision, this episode will provide clarity of what it is, why it develops, and what treatment options are available. The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular disease, along with their family and friends. If you or a family member need advice or support, please make sure to reach out. No one has to face macular disease alone. Please call us on 0300 3030 111 .…

My Macular and Me

1
Making the most out of your optician appointments 26:19

17 weeks ago26:19

26:19

Send us your feedback In this episode of the My Macular and Me podcast, we are joined by Hannah Keegan, programmes manager at the Macular Society, and Claire Ashe, service administrator and former dispensing optician. Join us to find out how to get the most from your optician appointments, what to expect, what to bring, and how to be as prepared as possible. For more information on eye care and eye health, please visit macularsociety.org . The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular disease, along with their family and friends. If you or a family member need advice or support, please make sure to reach out. No one has to face macular disease alone. Please call us on 0300 3030 111 .…

My Macular and Me

1
Celebrating women in ophthalmology 34:14

19 weeks ago34:14

34:14

Send us your feedback In this special International Women's Day episode of the My Macular and Me podcast, we are joined by consultant ophthalmologist Christiana Dinah to discuss the role of women in ophthalmology and research. We explore the challenges women face in the field, why representation matters, and how we can inspire the next generation of female leaders in eye health. The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular disease, along with their family and friends. If you or a family member need advice or support, please make sure to reach out. No one has to face macular disease alone. Please call us on 0300 3030 111 .…

My Macular and Me

1
Finding joy after diagnosis 45:34

26 weeks ago45:34

45:34

Send us your feedback In this episode of the My Macular and Me podcast, we are joined by guests Chris and Dawn who share their journey with macular disease. They talk through their diagnosis and it's impact, as well as how their hobbies have helped them to find joy, adapt, and maintain mental well-being during difficult times. Links to share: Instagram: Dawn , Chris Facebook: Dawn , Chris Pathway Yoga YouTube Channel Blind Man With a Backpack Blog The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular disease, along with their family and friends. If you or a family member need advice or support, please make sure to reach out. No one has to face macular disease alone. Please call us on 0300 3030 111 .…

My Macular and Me

1
How can gene therapy help those with Stargardt disease? 22:19

30 weeks ago22:19

22:19

Send us your feedback For this episode of the My Macular and Me podcast, we are revisiting one of talks from Dr Matteo Rizzi, research fellow at UCL Institute of Ophthalmology, as he speaks on Stargardt disease and how it affects vision, as well as the future of gene therapy. Dr Matteo Rizzi joined the My Macular and Me podcast with Dr Omar Mahroo earlier this year to discuss photopsia and photophobia in patients with Stargardt disease. If you would like to find out more on this topic, you can listen here . For more information on registration, please visit the Macular Society website . Or if you have any questions, please get in touch at help@macularsociety.org The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular disease, along with their family and friends. If you or a family member need advice or support, please make sure to reach out. No one has to face macular disease alone. Please call us on 0300 3030 111 .…

My Macular and Me

1
Can supplements slow the progression of late-stage AMD? 46:30

32 weeks ago46:30

46:30

Send us your feedback New research has found that taking a daily vitamin and mineral supplement can slow the progression of late-stage dry age-related macular degeneration (AMD), otherwise known as geographic atrophy (GA). Dr Tiarnan Keenan from the National Eye Institute joins us to discuss these new findings in more detail and answer your questions. Previously, supplements, based on the AREDS2 formula, have only been recommended for those with the earlier stages of AMD. Listen to learn how this promising discovery could help maintain vision and independence longer for those with late-stage dry AMD. The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular disease, along with their family and friends. If you or a family member need advice or support, please make sure to reach out. No one has to face macular disease alone. Please call us on 0300 3030 111 .…

My Macular and Me

1
Why register as sight impaired? 20:37

34 weeks ago20:37

20:37

Send us your feedback Being registered as sight impaired can often make it easier to get practical help and it may qualify you for certain benefits. In this episode of the My Macular and Me podcast, we are joined by ophthalmologist Christiana Dinah, and Macular Society Working Age and Young People's Manager, Colin Daniels, as they discuss the ins and outs of registering as sight impaired. For more information on registration, please visit the Macular Society website . Or if you have any questions, please get in touch at help@macularsociety.org The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular disease, along with their family and friends. If you or a family member need advice or support, please make sure to reach out. No one has to face macular disease alone. Please call us on 0300 3030 111 .…

My Macular and Me

1
Bitesize Benefits: Autumn Budget 19:04

36 weeks ago19:04

19:04

Send us your feedback Living with sight loss may entitle you to extra financial support to help with day-to-day costs, but do you know what you can claim? Our mini series Bitesize Benefits will cover a range of topics related to financial and workplace support for those living with macular disease. Join us as we look at the recent Autumn Budget announcement and explore what these updates could mean for those living with sight loss. For more information on benefits available to help those living with macular disease and their families, please visit our website . The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular disease, along with their family and friends. If you or a family member need advice or support, please make sure to reach out. No one has to face macular disease alone. Please call us on 0300 3030 111 .…

My Macular and Me

1
Latest research into Sorsby fundus dystrophy 29:51

39 weeks ago29:51

29:51

Send us your feedback For this My Macular and Me podcast we are joined by Professor Linda Troeberg from the University of East Anglia as she shares updates on her Macular Society funded research project looking at Sorsby's fundus dystrophy. The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular disease, along with their family and friends. If you or a family member need advice or support, please make sure to reach out. No one has to face macular disease alone. Please call us on 0300 3030 111.…

My Macular and Me

1
How eccentric viewing can help make best use of your remaining vision 30:19

41 weeks ago30:19

30:19

Send us your feedback In this episode of the My Macular and Me podcast, we are joined by Hannah Keegan, programmes manager at the Macular Society, and Skills for Seeing volunteer Pat McGeough. Join us to find out how eccentric viewing can help make best use of your remaining vision and to learn other useful tips and tricks to help make those everyday tasks that little bit easier when living with sight loss. The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular disease, along with their family and friends. If you or a family member need advice or support, please make sure to reach out. No one has to face macular disease alone. Please call us on 0300 3030 111 .…

My Macular and Me

1
Importance of eye health 23:30

43 weeks ago23:30

23:30

Send us your feedback Discover how to keep your eyes healthy in this episode of the My Macular and Me podcast as we are joined by Yuan Gao, an experienced optometrist from the Imperial College Healthcare Trust, and Vicky Thompson, one of our regional managers at the Macular Society. Join us as we explore what we should be doing to protect our eyesight. The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular disease, along with their family and friends. If you or a family member need advice or support, please make sure to reach out. No one has to face macular disease alone. Please call us on 0300 3030 111 .…

My Macular and Me

1
Bitesize Benefits: Working with sight loss 49:13

45 weeks ago49:13

49:13

Send us your feedback In this episode of Bitesize Benefits Emma and Colin are joined by Zsuzsi Szabo, Employment Manager at Support4Sight Essex, as they explore the world of employment for those living with sight loss. Listen as they discuss disclosing sight loss to an employer and the benefits of applying for an Access to Work grant. This is part of our Bitesize Benefits mini series where we look at a range of topics relating to financial and employment support for those living with macular disease. For more information on job hunting, employment and benefit entitlement, please visit our website. The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular disease, along with their family and friends. If you or a family member need advice or support, please make sure to reach out. No one has to face macular disease alone. Please call us on 0300 3030 111 . For more information from Support4Sight Essex, please visit their website .…

My Macular and Me

1
Bitesize Benefits: Job hunting with sight loss 42:27

48 weeks ago42:27

42:27

Send us your feedback In this episode of Bitesize Benefits Emma and Colin are joined by Zsuzsi Szabo, Employment Manager at Support4Sight Essex, as they explore the world of employment for those living with sight loss. Listen as we share our key tips job searching, volunteering, job applications and CV writing. This is part of our Bitesize Benefits mini series where we look at a range of topics relating to financial and employment support for those living with macular disease. For more information on job hunting, employment and benefit entitlement, please visit our website. The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular disease, along with their family and friends. If you or a family member need advice or support, please make sure to reach out. No one has to face macular disease alone. Please call us on 0300 3030 111 . For more information from Support4Sight Essex, please visit their website .…

My Macular and Me

1
When and why are lasers used to treat patients with retinal conditions? 47:54

2 years ago47:54

47:54

Send us your feedback Dr Liam Sullivan, consultant ophthalmologist at Cambridge University Hospital, joins My Macular and Me to discuss lasers as treatment for patients with retinal conditions, such as diabetic retinopathy and retinal vein occlusion. The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular disease, along with their family and friends. If you or a family member need advice or support, please make sure to reach out. No one has to face macular disease alone. Please call us on 0300 3030 111 .…

My Macular and Me

1
Latest advances in genomics for inherited retinal disease 42:14

2 years ago42:14

42:14

Send us your feedback Gavin Arno, senior scientist and researcher from the department of genetics at Moorfields Eye hospital joins us for this episode of the My Macular and Me podcast. Gavin joins us to discuss the latest advances in genomics for inherited retinal disease. Our understanding of genetics and how DNA works has grown considerably in the last decade. This understanding has transformed researchers’ ability to carry out genetic analysis on individuals and has aided in the detection of defects and mutations behind various dystrophies. This level of genetic analysis may help to identify risk of retinal disease in patients and their family members, as well as identifying potential treatment options. Gavin talks more about the developments in genomics and why it's so important to our understanding of inherited retinal disease. The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular disease, along with their family and friends. If you or a family member need advice or support, please make sure to reach out. No one has to face macular disease alone. Please call us on 0300 3030 111 .…

My Macular and Me

1
How can job seekers with macular disease overcome barriers to employment? 49:15

2 years ago49:15

49:15

Send us your feedback For this episode of the My Macular and Me podcast, we are joined Zsuzsi Szabo, an employment manager from Support4Sight in Essex, and Gary Hawkins from Cadent Gas, along with Lee Mercer, who is living with sight loss and is sharing his experience with employment. They discuss the barriers that employers encounter when thinking about hiring someone with sight loss, and whether these barriers are real or perceived. Listen to find out more about how partially sighted job seekers can overcome these barriers. Finding a job can be a challenge at the best of times, but it can be so much harder to find work when you have a sight condition. If you or a family member need advice or support in finding work, or for anything else, please make sure to reach out. Please call us on 0300 3030 111 or email help@macularsociety.org The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular disease, along with their family and friends.…

My Macular and Me

1
The emotional support available for those living with macular disease 45:05

2 years ago45:05

45:05

Send us your feedback Suzanne Roberts from the Macular Society Counselling service joins Colin Daniels for this episode of the My Macular and Me podcast. We are also joined by Lesley who was diagnosed with macular disease and began using our counselling service when she felt she was at her lowest. This episode looks at the emotional impact of a diagnosis of macular disease and the support that is available from the Society. A diagnosis of macular disease can be extremely upsetting. Finding out that you may lose much of your central vision, and adapting to changes in your vision, can be very difficult to comprehend. After diagnosis many people struggle to cope with their emotions and can feel shocked, afraid or isolated. It can help to speak to a professional counsellor, who is trained to listen to talk through your feelings and help you find ways of dealing with them. We have a team of dedicated counsellors who have extensive experience either personally or professionally within the field of sight loss. This is a service for anyone who has been diagnosed with macular disease. We also offer the same service to that person's family members. You can refer yourself or somebody else via our online form or you can contact us via our helpline on 0300 3030 111. The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular disease, along with their family and friends. If you or a family member need advice or support, please make sure to reach out. No one has to face macular disease alone. Please call us on 0300 3030 111 .…

My Macular and Me

1
ECLOs and registering as sight impaired 16:04

2 years ago16:04

16:04

Send us your feedback For this episode of the My Macular and Me podcast we are joined an Eye Care Liaison Officer (ECLO). and a rehabilitation officer as they discuss their roles in supporting people with sight loss. The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular disease, along with their family and friends. If you or a family member need advice or support, please make sure to reach out. No one has to face macular disease alone. Please call us on 0300 3030 111.…

My Macular and Me

1
New laser treatment for diabetic macular oedema (DMO) 45:58

2 years ago45:58

45:58

Send us your feedback For this My Macular and Me podcast we were joined by professor of ophthalmology, Noemi Lois, from Queen's University Belfast. She looks at the results of a recent trial for patients with diabetic macular oedema (DMO). The trial set out to test two types of laser for treating patients with DMO, one standard laser, which has been available for many years, and another much newer laser. It was found that the newer laser could clear up mild DMO without producing a burn on the retina, unlike the standard laser. The news of the trial is positive for those living with diabetes as it has found that this newer macular laser is a good treatment option. The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular disease, along with their family and friends. If you or a family member need advice or support, please make sure to reach out. No one has to face macular disease alone. Please call us on 0300 3030 111.…

My Macular and Me

1
What is sorsby fundus dystrophy? 36:54

2 years ago36:54

36:54

Send us your feedback Professor Andrew Lotery from the University of Southampton joins this episode of the My Macular and Me podcast to talk to us about sorsby fundus dystrophy. For further information on sorsby fundus dystrophy please visit our website: https://www.macularsociety.org/macular-disease/macular-conditions/sorsby-fundus-dystrophy/ The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular disease, along with their family and friends. If you or a family member need advice or support, please make sure to reach out. No one has to face macular disease alone. Please call us on 0300 3030 111.…

My Macular and Me

1
BrightPage: a tool to help you read with macular disease 33:03

2 years ago33:03

33:03

Send us your feedback Howard Moshtael, joins us for this episode of the My Macular and Me podcast to discuss his reading tool, BrightPage. Whilst doing his PhD at Edinburgh University, Howard learnt that reading with central vision loss is easier if you don’t have to move your eyes. His idea was to find a tool which can scroll text in a natural way for reading. This would not be as a continuous scroll, but rather one that mimics the movements that our eyes make whilst reading. This way of reading turned out to be a great success and instantly boosted reading speed in both the fully and partially sighted. To find out more about BrightPage and to try the app, visit their official website here: https://www.brightpage.tech/ The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular disease, along with their family and friends. If you or a family member need advice or support, please make sure to reach out. No one has to face macular disease alone. Please call us on 0300 3030 111.…

My Macular and Me

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An insight into the Macular Society research team 41:27

2 years ago41:27

41:27

Send us your feedback Macular Society's research manager Geraldine Hoad and research officer Sarah Clinton join us for this episode of the My Macular and Me podcast to give an overview of the team and bring an update on the latest developments in macular research. The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular disease, along with their family and friends. If you or a family member need advice or support, please make sure to reach out. No one has to face macular disease alone. Please call us on 0300 3030 111.…

My Macular and Me

1
How effective are techniques to manage visual hallucinations? 35:29

2 years ago35:29

35:29

Send us your feedback Professor Robin Walker joins us for this episode of the My Macular and Me podcast to discuss his team's study on the effectiveness of recommended techniques to manage visual hallucinations caused by sight loss. Do you suffer with visual hallucinations caused by Charles Bonnet syndrome? The Macular Society runs a CBS support group via our counselling service. This is done over the telephone and you can speak to other people experiencing CBS as well as one of our professional counsellors. If you are interested in joining, please call our Advice and Information Service on 0300 3030 111 and we can pass on further information. The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular disease, along with their family and friends. If you or a family member need advice or support, please make sure to reach out. No one has to face macular disease alone. Please call us on 0300 3030 111.…

My Macular and Me

1
Inherited macular disease - Should I know my gene? 41:14

2 years ago41:14

41:14

Send us your feedback Professor Andrew Webster and genetic counsellor Hannah Knight join us for this episode of the My Macular and Me podcast to talk about understanding a genetic diagnosis of inherited macular disease and explore the benefits of genetic testing and counselling. The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular disease, along with their family and friends. If you or a family member need advice or support, please make sure to reach out. No one has to face macular disease alone. Please call us on 0300 3030 111.…

My Macular and Me

1
Latest research into Best disease 44:06

2 years ago44:06

44:06

Send us your feedback Dr Amanda Carr, a researcher at UCL Institute of Ophthalmology, joins us for this episode of the My Macular and Me podcast. Amanda is currently working on a Macular Society funded project to switch off a faulty gene in Best disease, which causes the progression of the disease. Amanda updates on the project, which, if successful, could pave the way for gene testing to be used for Best disease and other autosomal dominant macular dystrophies, and genetic conditions in other disease areas. The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular disease, along with their family and friends. If you or a family member need advice or support, please make sure to reach out. No one has to face macular disease alone. Please call us on 0300 3030 111.…

My Macular and Me

1
What is myopic macular degeneration? 44:09

2 years ago44:09

44:09

Send us your feedback What is myopic macular degeneration? And why is the number of people living with the condition increasing? Professor Pete Coffey joins us for this episode of the My Macular and Me podcast to tell us more about the condition and how in the future, it could be more common than age-related macular degeneration (AMD). The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular disease, along with their family and friends. If you or a family member need advice or support, please make sure to reach out. No one has to face macular disease alone. Please call us on 0300 3030 111.…

My Macular and Me

1
What is Punctate Inner Choroidopathy (PIC)? 50:42

2 years ago50:42

50:42

Send us your feedback In this episode of the My Macular and Me podcast we are joined by consultant ophthalmologist Alastair Denniston, along with his colleagues, to discuss Punctate Inner Choroidopathy (PIC) in more detail and hear from a patient living with PIC. The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular disease, along with their family and friends. If you or a family member need advice or support, please make sure to reach out. No one has to face macular disease alone. Please call us on 0300 3030 111.…

My Macular and Me

1
Diabetes and your eyes 43:37

2 years ago43:37

43:37

Send us your feedback Diabetes can have a huge impact on our sight. In this episode of the My Macular and Me podcast, we are joined by consultant ophthalmologist Samantha Mann, from Guy's and St Thomas' Hospital. Samantha discusses the latest developments in treatment and research in diabetic eye disease. The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular disease, along with their family and friends. If you or a family member need advice or support, please make sure to reach out. No one has to face macular disease alone. Please call us on 0300 3030 111.…

My Macular and Me

1
Potential treatments for Doyne honeycomb retinal dystrophy 35:17

50 weeks ago35:17

35:17

Send us your feedback In this episode of the My Macular and Me podcast we are joined by Professor Jacqueline van der Spuy from the UCL Institute of Ophthalmology. She discusses the development of treatments for Doyne honeycomb retinal dystrophy, an inherited juvenile macular dystrophy affecting sight from early adulthood. The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular disease, along with their family and friends. If you or a family member need advice or support, please make sure to reach out. No one has to face macular disease alone. Please call us on 0300 3030 111 .…

My Macular and Me

1
How smart devices can help you with sight loss 31:47

1 year ago31:47

31:47

Send us your feedback In this episode of the My Macular and Me podcast, we are joined by Hannah Keegan, programmes manager at the Macular Society, and Connect by Tech volunteer Sheila Harris. Join us as we explore the world of smart devices and find out how technology can make life a little bit easier for those living with sight loss. The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular disease, along with their family and friends. If you or a family member need advice or support, please make sure to reach out. No one has to face macular disease alone. Please call us on 0300 3030 111 .…

My Macular and Me

1
The gene editing research seeking a Stargardt treatment 35:52

1 year ago35:52

35:52

Send us your feedback In this episode of the My Macular and Me podcast, Elena Piotter, a PhD student at the University of Oxford, discusses her research project into a gene editing technique called CRISPR and how it could lead to a treatment for Stargardt disease. Her research is co-funded by the Macular Society and Retina UK. The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular disease, along with their family and friends. If you or a family member need advice or support, please make sure to reach out. No one has to face macular disease alone. Please call us on 0300 3030 111 .…

My Macular and Me

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What is an ECLO and how can they support you? 39:22

1 year ago39:22

39:22

Send us your feedback For this My Macular and Me podcast we are joined by Ruth Rhydderch, an ECLO at the University Hospital of Wales. She joined us to discuss her role has an ECLO and she shares her top pieces of advice. Eye clinic liaison officers (ECLOs) offer advice on how to lessen the impact your eye condition may have on your life. The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular disease, along with their family and friends. If you or a family member need advice or support, please make sure to reach out. No one has to face macular disease alone. Please call us on 0300 3030 111 .…

My Macular and Me

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What is X linked retinoschisis? 25:22

1 year ago25:22

25:22

Send us your feedback For this My Macular and Me podcast, we welcome Professor Andrew Lotery from the University of Southampton. He explores the rare macular condition called X linked retinoschisis. The condition is one of a number of inherited retinal diseases the Southampton team is researching. Professor Lotery provides an update on research into X linked retinoschisis and what this could mean for other rare types of macular disease. The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular disease, along with their family and friends. If you or a family member need advice or support, please make sure to reach out. No one has to face macular disease alone. Please call us on 0300 3030 111 .…

My Macular and Me

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Latest updates in myopic macular degeneration 53:08

1 year ago53:08

53:08

Send us your feedback Dr Annegret Dahlmann-Noor, who is director of the children's service at Moorfields Eye Hospital, joins our My Macular and Me podcast to talk about myopic macular degeneration (MMD). As well as the condition itself, Dr Dahlmann-Noor will discuss its prevalence, as well as her latest research into the condition on how to slow myopia progression in childhood and adolescence. The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular disease, along with their family and friends. If you or a family member need advice or support, please make sure to reach out. No one has to face macular disease alone. Please call us on 0300 3030 111 .…

My Macular and Me

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Bitesize Benefits: Attendance Allowance application and decision 28:04

1 year ago28:04

28:04

Send us your feedback Living with sight loss may entitle you to extra financial support to help with day-to-day costs, but do you know what you can claim? Our mini series Bitesize Benefits will cover a range of topics related to financial and workplace support for those living with macular disease. This episode is our final episode focused on Attendance Allowance. In this episode we discuss the application itself, as well as the assessment and outcome of your application. We also discuss what Carer's Allowance is, who can apply and how. For more information on benefits available to help those living with macular disease and their families, please visit our website . The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular disease, along with their family and friends. If you or a family member need advice or support, please make sure to reach out. No one has to face macular disease alone. Please call us on 0300 3030 111 .…

My Macular and Me

1
Bitesize Benefits: What is Attendance Allowance and how do I apply? 42:54

1 year ago42:54

42:54

Send us your feedback Living with sight loss may entitle you to extra financial support to help with day-to-day costs, but do you know what you can claim? Our mini series Bitesize Benefits will cover a range of topics related to financial and workplace support for those living with macular disease. This episode is part one of two, focused on Attendance Allowance. In this episode we discuss what the benefit is and how to apply, diving into the application and how to answer the questions. For more information on benefits available to help those living with macular disease and their families, please visit our website . The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular disease, along with their family and friends. If you or a family member need advice or support, please make sure to reach out. No one has to face macular disease alone. Please call us on 0300 3030 111 .…

My Macular and Me

1
Trains, planes and automobiles 44:31

1 year ago44:31

44:31

Send us your feedback For most, taking public transport is done without much thought or stress. But, sight loss can have a huge impact on the relative ease with which most people travel. For this My Macular and Me podcast we are joined by Pete Lock, national habilitation lead at Guide Dogs, who shares his own experiences of travelling across the UK on public transport. He will also discuss tips and strategies for stress-free journeys. The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular disease, along with their family and friends. If you or a family member need advice or support, please make sure to reach out. No one has to face macular disease alone. Please call us on 0300 3030 111 .…

My Macular and Me

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Bitesize Benefits: Spring Budget 31:05

1 year ago31:05

31:05

Send us your feedback Living with sight loss may entitle you to extra financial support to help with day-to-day costs, but do you know what you can claim? Our new mini series Bitesize Benefits will cover a range of topics related to financial and workplace support for those living with macular disease. Join us as we look at the recent Spring Budget announcement and explore what these updates could mean for those living with sight loss. For more information on benefits available to help those living with macular disease and their families, please visit our website . The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular disease, along with their family and friends. If you or a family member need advice or support, please make sure to reach out. No one has to face macular disease alone. Please call us on 0300 3030 111 .…

My Macular and Me

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Understanding gene mutations in childhood eye disease 39:14

1 year ago39:14

39:14

Send us your feedback Researcher Roly Megaw, a clinical lecturer and honorary consultant ophthalmologist from the University of Edinburgh and West Lothian joins us for this episode of the podcast. Roly will be shedding light on the devastating impact of RPGR gene mutations, which can cause macular and cone rod dystrophies. Join us as he unveils discoveries from his joint Macular Society and Retina UK-funded research, aiming improve our understanding of these conditions and find potential treatments. The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular disease, along with their family and friends. If you or a family member need advice or support, please make sure to reach out. No one has to face macular disease alone. Please call us on 0300 3030 111 .…

My Macular and Me

1
Bitesize Benefits: PIP assessment and decision 33:45

1 year ago33:45

33:45

Send us your feedback Join us for our final episode on Personal Independence Payment (PIP) in our Bitesize Benefits series. In this episode we explore the final stages of the application, unravelling the assessment process and possible outcomes. This episode is the final in three, focused on Personal Independence Payment (PIP). For more information on benefits available to help those living with macular disease and their families, please visit our website . The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular disease, along with their family and friends. If you or a family member need advice or support, please make sure to reach out. No one has to face macular disease alone. Please call us on 0300 3030 111 .…

My Macular and Me

1
Bitesize Benefits: The ins and outs of a PIP application 37:52

1 year ago37:52

37:52

Send us your feedback Join us for the second episode in our Bitesize Benefits series as we continue our exploration of Personal Independence Payment (PIP). We take a look at the application process and uncover valuable tips to help you with your claim. This episode is the second of three, focused on Personal Independence Payment (PIP). Join us as we explore what PIP actually is, who is entitled to it, and how you can apply. For more information on benefits available to help those living with macular disease and their families, please visit our website . The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular disease, along with their family and friends. If you or a family member need advice or support, please make sure to reach out. No one has to face macular disease alone. Please call us on 0300 3030 111 .…

My Macular and Me

1
Bitesize Benefits: What is PIP and how do I apply? 24:01

2 years ago24:01

24:01

Send us your feedback Living with sight loss may entitle you to extra financial support to help with day-to-day costs, but do you know what you can claim? Our new mini series Bitesize Benefits will cover a range of topics related to financial and workplace support for those living with macular disease. This episode is the first of three, focused on Personal Independence Payment (PIP). Join us as we explore what PIP actually is, who is entitled to it, and how you can apply. For more information on benefits available to help those living with macular disease and their families, please visit our website . The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular disease, along with their family and friends. If you or a family member need advice or support, please make sure to reach out. No one has to face macular disease alone. Please call us on 0300 3030 111 .…

My Macular and Me

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What causes photopsia and photophobia in patients with Stargardt? 44:51

2 years ago44:51