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Content provided by Siegel Rare Neuroimmune Association (SRNA). All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Siegel Rare Neuroimmune Association (SRNA) or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://ppacc.player.fm/legal.
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203. NMOSD Stories: Ireland

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Manage episode 312648682 series 3240321
Content provided by Siegel Rare Neuroimmune Association (SRNA). All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Siegel Rare Neuroimmune Association (SRNA) or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://ppacc.player.fm/legal.

GG deFiebre of SRNA is joined by Ireland Thomas, a member of SRNA and person diagnosed with NMOSD. Ireland begins by describing her initial symptoms when she was six years old and her journey to getting an NMOSD diagnosis. She talks about the treatments she received and her experience as a child within the medical system. Ireland discusses how NMOSD impacts her life, including ongoing symptoms, her personal identity, and the transition from childhood to being an adult living with this disorder. She touches on her fears and her hopes for the future. Finally, Ireland talks about how she explains NMOSD to others in her life.

  continue reading

34 episodes

Artwork
iconShare
 
Manage episode 312648682 series 3240321
Content provided by Siegel Rare Neuroimmune Association (SRNA). All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Siegel Rare Neuroimmune Association (SRNA) or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://ppacc.player.fm/legal.

GG deFiebre of SRNA is joined by Ireland Thomas, a member of SRNA and person diagnosed with NMOSD. Ireland begins by describing her initial symptoms when she was six years old and her journey to getting an NMOSD diagnosis. She talks about the treatments she received and her experience as a child within the medical system. Ireland discusses how NMOSD impacts her life, including ongoing symptoms, her personal identity, and the transition from childhood to being an adult living with this disorder. She touches on her fears and her hopes for the future. Finally, Ireland talks about how she explains NMOSD to others in her life.

  continue reading

34 episodes

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