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The Audacious Patient: Finding Your Voice in a Broken Healthcare System
Manage episode 486415388 series 3407225
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Have you ever wondered what it's like to be both the healer and the one in need of healing? Meet Mallory Carlson, an acupuncturist of nearly 12 years who has simultaneously navigated her own 16-year journey with debilitating migraines and women's health issues.
Mallory takes us deep into the raw reality of chronic pain, sharing how she's learned to read her body's signals and transform what once required days of recovery into hours. Her story illuminates the profound mental health challenges that come with chronic illness—from the isolation of canceled plans to the guilt of feeling like you're "too much"—and the powerful practice of self-compassion she's developed in response.
The conversation turns particularly powerful when Mallory describes her experiences with medical gaslighting and the physical, almost shock-like reaction she had when finally finding a doctor who recognized her condition after 14 years of searching. "It was such a physical experience," she explains, "the act of being seen and finding someone who can take care of you."
From this frustration emerged her platform, The Audacious Patient, born from righteous rage at healthcare inequities and dedicated to making complex medical information accessible. As Mallory shifts from hands-on patient care to education and advocacy, she's channeling her personal struggles into a mission that helps others avoid the years of confusion she endured.
Whether you're managing chronic illness, supporting someone who is, or simply interested in healthcare advocacy, this episode offers practical wisdom, validation, and a reminder that sometimes our greatest challenges become our greatest gifts to others. As Mallory beautifully summarizes what it means to be part of a chronic illness community: "It's solidarity and just a quiet knowing... we just have to be there for each other."
Are you living with a chronic illness and want to make your voice heard? Rare Patient Voice connects patients and caregivers with research opportunities—so you can share your experiences and get paid for your time! Your insights help drive real change in healthcare.
Let's Get Started - Rare Patient Voice
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Chapters
1. The Audacious Patient: Finding Your Voice in a Broken Healthcare System (00:00:00)
2. Meet Mallory Carlson: Healer & Patient (00:00:16)
3. Balancing Care: Treating Others While in Pain (00:01:42)
4. Migraine Evolution: A 16-Year Journey (00:03:45)
5. Mental Health & Chronic Pain (00:08:05)
6. Medical Dismissal & Finding Validation (00:11:50)
7. Self-Care Toolkit for Chronic Pain (00:16:46)
8. The Audacious Patient: Born from Rage (00:21:02)
9. Finding Joy Beyond Pain (00:24:24)
10. Advice for Newly Diagnosed Warriors (00:29:47)
11. Connect With Mallory & Final Thoughts (00:32:23)
141 episodes
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