Primary sclerosing cholangitis (PSC) is a rare disease that affects the bile ducts inside and outside of the liver. There is no cure, and no treatments exist to slow the progression of PSC. This podcast, moderated by Niall McKay, explores the latest research and knowledge about PSC: from patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to find better treatments and a cure, this podcast has it all! PSC Partners Seeking a Cure is a nonprofi ...
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The link between mental wellbeing and physical recovery after liver transplant.
31:58
31:58
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31:58Host Niall McKay speaks with Dr. Sharon Millen, a health psychologist at Queen’s University Hospital, Belfast in Northern Ireland. Dr. Millen, a two-time liver transplant recipient, completed her PhD on psychological well-being in liver transplant patients. Her research found a significant link between physical recovery and mental well-being. Niall…
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2024 PSC Partners Annual Conference, Cutting-Edge PSC Research, and the Search for a Cause: A Conversation with Dr. Tom Karlsen
41:33
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41:33In episode 45 of the Living with PSC Podcast, Host Niall McKay talks with Tom Karlsen, MD, PhD, Co-Chair of the 2024 PSC Partners 20th Anniversary Annual Conference, and Clinical Specialist in Internal Medicine and Gastroenterology, Oslo University Hospital, Norway. "I've worked on PSC for more than 20 years, and that aligns nicely with the 20-year…
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Early Detection of Cholangiocarcinoma: A Conversation with Dr. Jesse Kirkpatrick
33:00
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33:00PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast explores the latest research and knowledge about primary sclerosing cholangitis (PSC), a rare liver disease. From patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to fi…
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In-Depth Look Inside the 2023 PSC Partners Conference: A Conversation with Medical Science Liaison Joanne Hatchett
20:53
20:53
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20:53PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast explores the latest research and knowledge about primary sclerosing cholangitis (PSC), a rare liver disease. From patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to fi…
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Rejection and PSC Recurrence After Liver Transplant: A Conversation with Dr. David Goldberg
31:55
31:55
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31:55PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast explores the latest research and knowledge about primary sclerosing cholangitis (PSC), a rare liver disease. From patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to fi…
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Meet Dr. Stephen Rossi: A Conversation with the PSC Partners Chief Scientific Officer
37:38
37:38
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37:38PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast explores the latest research and knowledge about primary sclerosing cholangitis (PSC), a rare liver disease. From patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to fi…
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Going Through a Liver Transplant: A Conversation Between a Husband & Wife
41:34
41:34
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41:34PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast explores the latest research and knowledge about primary sclerosing cholangitis (PSC), a rare liver disease. From patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to fi…
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Post-Liver Transplant Recurrence of PSC: A Conversation with Dr. Palak Trivedi
40:54
40:54
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40:54PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast explores the latest research and knowledge about primary sclerosing cholangitis (PSC), a rare liver disease. From patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to fi…
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When Your Husband is Your Living Liver Donor: A Conversation with Jessica and Ian Travis
33:41
33:41
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33:41PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast explores the latest research and knowledge about primary sclerosing cholangitis (PSC), a rare liver disease. From patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to fi…
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Improving PSC Diagnosis, Expediting Research, Facilitating Clinical Trials, & more: A Conversation with Dr. Laura Cristoferi
25:03
25:03
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25:03PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast explores the latest research and knowledge about primary sclerosing cholangitis (PSC), a rare liver disease. From patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to fi…
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Benefits of Drug Repurposing for Rare Diseases: A Conversation with Ania Korsunska, Castleman Disease Collaborative Network
33:00
33:00
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33:00PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast explores the latest research and knowledge about primary sclerosing cholangitis (PSC), a rare liver disease. From patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to fi…
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Identifying and Mitigating Health Inequalities in PSC: A Discussion with Dr. Kidist Yimam
26:09
26:09
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26:09PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast explores the latest research and knowledge about primary sclerosing cholangitis (PSC), a rare liver disease. From patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to fi…
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PSC Symptoms, Living Donor Transplant, and More: A Discussion with Nicola Tessier
37:49
37:49
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37:49PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast explores the latest research and knowledge about primary sclerosing cholangitis (PSC), a rare liver disease. From patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to fi…
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NIH Team Recruiting Patients for PSC Study: A Discussion with Dr. Theo Heller and Dr. Gracia Viana, NIH Clinical Center
28:02
28:02
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28:02PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast explores the latest research and knowledge about primary sclerosing cholangitis (PSC), a rare liver disease. From patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to fi…
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New Scientific Findings Point to Role of Contaminated Bile in the Onset of PSC: A Discussion with Dr. Espen Melum, MD, PhD, Norwegian PSC Research Center
17:20
17:20
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17:20PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast explores the latest research and knowledge about primary sclerosing cholangitis (PSC), a rare liver disease. From patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to fi…
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What to Expect at the PSC Partners 2022 Annual Conference Part 2: An Interview with Conference Co-Hosts Dr. Korzenik and Dr. Pratt
16:16
16:16
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16:16PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast explores the latest research and knowledge about primary sclerosing cholangitis (PSC), a rare liver disease. From patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to fi…
…
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What to Expect at the PSC Partners 2022 Annual Conference Part 1: An Interview with PSC Partners Medical Science Liaison Joanne Hatchett
18:29
18:29
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18:29PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast explores the latest research and knowledge about primary sclerosing cholangitis (PSC), a rare liver disease. From patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to fi…
…
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The Future of PSC Research and PSC Partners Research Priorities: An Interview with PSC Partners Former Director of Research Strategy Dr. Ruth-Anne Pai
33:34
33:34
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33:34PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast explores the latest research and knowledge about primary sclerosing cholangitis (PSC), a rare liver disease. From patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to fi…
…
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The Relationship Between PSC & IBD, the "Leaky Gut" Hypothesis, Microbiota, and more: A Discussion with Dr. Steven O'Hara, Mayo Clinic
31:45
31:45
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31:45PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast explores the latest research and knowledge about primary sclerosing cholangitis (PSC), a rare liver disease. From patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to fi…
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The PSC Partners ROADMAP Initiative, Value of the Patient Voice, and more : A Discussion with PSC Partners Medical Science Liaison Joanne Hatchett
30:30
30:30
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30:30PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast explores the latest research and knowledge about primary sclerosing cholangitis (PSC), a rare liver disease. From patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to fi…
…
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Fecal Microbiota Transplantation and Link Between Gut & Liver: A Discussion with Dr. Cyriel Ponsioen
36:33
36:33
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36:33PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast explores the latest research and knowledge about primary sclerosing cholangitis (PSC), a rare liver disease. From patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to fi…
…
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Use of Antibiotics for Clinical Treatment of Cholangitis in PSC: A Discussion with Dr. Gideon Hirschfield
27:28
27:28
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27:28PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast explores the latest research and knowledge about primary sclerosing cholangitis (PSC), a rare liver disease. From patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to fi…
…
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1
PSC Recurrence After Transplant and the Importance of Support
33:03
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33:03PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast explores the latest research and knowledge about primary sclerosing cholangitis (PSC), a rare liver disease. From patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to fi…
…
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Living With PSC Episode 23: PSC & Diet, Understanding IBD/PSC Relationship, and MORE, A Discussion with Dr. Josh Korzenik
33:25
33:25
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33:25PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast explores the latest research and knowledge about primary sclerosing cholangitis (PSC), a rare liver disease. From patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to fi…
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Living With PSC Episode 22: The Importance of the PSC Partners Registry, A Discussion with Registry Director Rachel Gomel
22:44
22:44
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22:44PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast explores the latest research and knowledge about primary sclerosing cholangitis (PSC), a rare liver disease. From patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to fi…
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Living With PSC Episode 21: Microbial Metabolism and PSC A Discussion with Dr. Johannes Hov
36:28
36:28
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36:28PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast explores the latest research and knowledge about primary sclerosing cholangitis (PSC), a rare liver disease. From patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to fi…
…
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Living With PSC Episode 20: Liver Transplants and PSC: A discussion with Dr. Julie Heimbach, transplant surgeon and surgical director of Liver Transplantation at Mayo Clinic
30:31
30:31
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30:31PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast explores the latest research and knowledge about primary sclerosing cholangitis (PSC), a rare liver disease. From patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to fi…
…
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Living With PSC Episode 19: Pediatric PSC with Cara Mack, MD, University of Colorado School of Medicine and Children's Hospital Colorado
31:18
31:18
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31:18PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast explores the latest research and knowledge about primary sclerosing cholangitis (PSC), a rare liver disease. From patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to fi…
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Living With PSC Episode 18: Discussion with Dr. Nathan Baggett, PSCer, Medical Resident, and Multiple Liver Transplant Recipient
37:46
37:46
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37:46PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast explores the latest research and knowledge about primary sclerosing cholangitis (PSC), a rare liver disease. From patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to fi…
…
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Living With PSC Episode 17: Dr. John Eaton, Current and Future Prospects in PSC Treatment and Research
23:49
23:49
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Living With PSC Episode 16: PSC Patient Dr. Jerome Schofferman, Ins & Outs of PSC
27:25
27:25
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27:25PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast will explore the latest research and knowledge about PSC. From patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to find better treatments and a cure, this podcast has i…
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Living With PSC Episode 15 - Dr. Christopher Bowlus, Drug and Clinical Development for PSC Treatment
29:24
29:24
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29:24PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast will explore the latest research and knowledge about PSC. From patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to find better treatments and a cure, this podcast has i…
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Living With PSC Episode 14 - Dr. James Tabibian, Vancomycin as a treatment for PSC
27:30
27:30
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27:30PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast will explore the latest research and knowledge about PSC. From patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to find better treatments and a cure, this podcast has i…
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Living With PSC Episode 13 - PSC Conference 2019
11:13
11:13
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11:13PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast will explore the latest research and knowledge about PSC. From patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to find better treatments and a cure, this podcast has i…
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Living With PSC Episode 12 - John Crowley - Living Donor Transplant Recipient
23:06
23:06
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23:06PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast will explore the latest research and knowledge about PSC. From patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to find better treatments and a cure, this podcast has i…
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Living With PSC Episode 11 - Monika Aldarondo - Motherhood and PSC
27:04
27:04
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27:04PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast will explore the latest research and knowledge about PSC. From patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to find better treatments and a cure, this podcast has i…
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Living With PSC Episode 10 - Dr. Valentina Medici: Nutrition and PSC
29:15
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29:15PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast will explore the latest research and knowledge about PSC. From patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to find better treatments and a cure, this podcast has i…
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Living With PSC Episode 9 - Dr. Konstantinos Lazaridis: The Interaction Between Genetics & Environmental Exposures in PSC
30:24
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30:24PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast will explore the latest research and knowledge about PSC. From patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to find better treatments and a cure, this podcast has i…
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Living With PSC Episode 8 - Dr. Heather Francis: Impact of URSO on PSC
24:42
24:42
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24:42PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast will explore the latest research and knowledge about PSC. From patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to find better treatments and a cure, this podcast has i…
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Living With PSC Episode 7 - Julie Heimbach: PSC Transplantation
27:57
27:57
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27:57PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast will explore the latest research and knowledge about PSC. From patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to find better treatments and a cure, this podcast has i…
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Living With PSC Episode 6 - Trish Stoltzfus: The New ICD-10-CM Code for PSC
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16:30PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast will explore the latest research and knowledge about PSC. From patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to find better treatments and a cure, this podcast has i…
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Living with PSC Episode 5 - Dr. Cyriel Ponsioen: Fecal Microbiota Transplantation
33:41
33:41
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33:41PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast will explore the latest research and knowledge about PSC. From patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to find better treatments and a cure, this podcast has i…
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Living with PSC Episode 4 - A Conversation with Dr. Gideon Hirschfield
30:34
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30:34PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast will explore the latest research and knowledge about PSC. From patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to find better treatments and a cure, this podcast has i…
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Living With PSC Episode 3 - Dr. Scott Bea: Living with the Uncertainty of PSC
14:49
14:49
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14:49PSC Partners Seeking a Cure is thrilled to announce the launch of Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast will explore the latest research and knowledge about PSC. From patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to find better treatments and a cure, th…
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Living With PSC Episode 2 - Dr. Chris Bowlus: Diet & Emerging Treatments
43:20
43:20
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43:20PSC Partners Seeking a Cure is thrilled to announce the launch of Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast will explore the latest research and knowledge about PSC. From patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to find better treatments and a cure, th…
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1
Living With PSC Episode 1 - Ricky Safer: A Patient's Perspective
18:16
18:16
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18:16PSC Partners Seeking a Cure is thrilled to announce the launch of Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast will explore the latest research and knowledge about PSC. From patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to find better treatments and a cure, th…
…
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