Welcome to PEP Talks, the Patient Engagement Podcast brought to you by the Alberta Strategy for Patient-Oriented Research SUPPORT UNIT (AbSPORU) Patient Engagement Team. Join us for insightful conversations featuring a diverse array of voices, including patient, family, and community research partners, academic researchers, healthcare providers, policy-makers, and other key collaborators on the topic of partnerships in patient-oriented research and patient engagement in health research and h ...
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Strengthening Health Systems Through Indigenous Research with Kienan Williams (EP 27)
1:14:58
1:14:58
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1:14:58Send us a textBy AbSPORU Patient Engagement Team with Host Sandra Zelinsky
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Measuring Patient Experience with Kyle Kemp (EP 4)
20:03
20:03
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20:03Send us a textBy AbSPORU Patient Engagement Team with Host Sandra Zelinsky
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Send us a textBy AbSPORU Patient Engagement Team with Host Sandra Zelinsky
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Learning Health Systems with Dr. Charles Friedman (EP 1)
32:21
32:21
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32:21Send us a textBy AbSPORU Patient Engagement Team with Host Sandra Zelinsky
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The Patient Story Experience: Cost or Benefit from SPORcast (Engaging in Storytelling Part 1)
42:48
42:48
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42:48Send us a textBy AbSPORU Patient Engagement Team with Host Sandra Zelinsky
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Organizations and Patient Stories from Matters of Engagement (Engaging in Storytelling Part 2)
54:52
54:52
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54:52Send us a textBy AbSPORU Patient Engagement Team with Host Sandra Zelinsky
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Creating Safe Spaces for Storytellers with PEP Talks (Engaging in Storytelling Part 3)
36:51
36:51
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36:51Send us a textBy AbSPORU Patient Engagement Team with Host Sandra Zelinsky
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Strategy for Patient-Oriented Research with Nancy Mason-MacLellan (EP 5)
30:30
30:30
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30:30Send us a textBy AbSPORU Patient Engagement Team with Host Sandra Zelinsky
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Partnering in Chronic Kidney Disease Research with Mary Beaucage (EP 11)
31:29
31:29
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31:29Send us a textBy AbSPORU Patient Engagement Team with Host Sandra Zelinsky
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The Value of Experiential Knowledge in Patient-Oriented Research with Nicolas Fernandez (EP 10)
38:54
38:54
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38:54Send us a textBy AbSPORU Patient Engagement Team with Host Sandra Zelinsky
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The Power of Storytelling Through Photovoice with Anna Anastasiou & Dr. Dave Campbell (EP 9)
29:25
29:25
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29:25Send us a textBy AbSPORU Patient Engagement Team with Host Sandra Zelinsky
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Careful and Kind Care For All with Dr. Victor Montori (EP 8)
40:58
40:58
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40:58Send us a textBy AbSPORU Patient Engagement Team with Host Sandra Zelinsky
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Patient Research Partners with Sandra Zelinsky (EP 2)
35:54
35:54
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35:54Send us a textBy AbSPORU Patient Engagement Team with Host Sandra Zelinsky
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RePORT Patient Advisory Council: Part 2 with Kim Giroux, Anni Rychtera, and Nancy Verdin
1:07:32
1:07:32
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1:07:32Send us a text Episode Introduction In this episode, Part 2 of 2, we explore how deliberate and flexible strategies can create an ecology of inclusiveness, support, mutual respect, and co-building for meaningful patient engagement in health research. Patient Research Partners are integral members of the team, informing project design, participant r…
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Enhancing Person-Centred Care with Dr. Kimberly Manilili (EP 12)
32:49
32:49
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32:49Send us a textBy AbSPORU Patient Engagement Team with Host Sandra Zelinsky
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Re-Purposing the Ordering of Routine laboratory Tests (RePORT) Study: Part 1 with Anni Rychtera and Dr. Anshula Ambasta
55:27
55:27
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55:27Send us a text Episode Introduction In this episode, we talk about the Re-Purposing the Ordering of Routine laboratory Tests (RePORT) study, which is being conducted and implemented in Alberta and British Columbia. Hospitals frequently conduct routine blood tests, which not only cause patient discomfort but also significantly contribute to healthca…
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Cytomegalovirus with Laija Beaulieu, Caroline Leroux, Lisa Robinson, Marcia Bruce & Dr. Eliana Castillo (PaCER Series: EP 4)
1:18:06
1:18:06
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1:18:06Send us a text In episode 4 of the PaCER series, we talk about the complexities of Congenital Cytomegalovirus (cCMV), a common virus that can affect 1 in 200 unborn children during pregnancy. Join us as we discuss a parent-led peer-to-peer Patient and Community Engagement Research (PaCER) study about the impact of cCMV on newborns, including potent…
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Newfoundland and Labrador SPOR SUPPORT Unit with Mike Warren and Holly Etchegary (EP 24)
30:25
30:25
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30:25Send us a text In episode 24 of PEP Talks, we talk about the Newfoundland and Labrador SPOR SUPPORT Unit and how it works to improve the lives of patients by empowering them to support research that is important to them as patient research partners. Their lived experiences and personal healthcare journeys bring important perspectives to the table t…
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Alberta's Patient & Family Advisors and PaCERs with Colin Penman (EP 23)
16:44
16:44
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16:44Send us a text In episode 23 of PEP Talks, Colin Penman talks about how people with lived experiences can engage with healthcare and health research. Penman is a graduate of the Patient and Community Engagement Research (PaCER) program at the University of Calgary. He shares his learning as a patient partner in research, as well as a patient and fa…
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Trauma-Informed Engagement with Carolyn Shimmin (EP 21)
18:51
18:51
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18:51Send us a textBy AbSPORU Patient Engagement Team with Host Sandra Zelinsky
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Patient and Family Centered Care with Dr. Gail MacKean (EP 22)
37:14
37:14
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37:14Send us a textBy AbSPORU Patient Engagement Team with Host Sandra Zelinsky
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Translating Research in Elder Care (TREC) with Dr. Andrea Gruneir (EP 20)
21:21
21:21
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Family Engagement in Research (FER) with Rachel Martens (EP 18)
23:43
23:43
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Authentic Patient Engagement with Heather Thiessen (EP 17)
20:06
20:06
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Partnering for Pain with Dr. Katie Birnie (EP 16)
28:24
28:24
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28:24Send us a textBy AbSPORU Patient Engagement Team with Host Sandra Zelinsky
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Human Factors Engineering and Patient Oriented Research with Dr. Holly Witteman (EP 15)
31:08
31:08
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31:08Send us a textBy AbSPORU Patient Engagement Team with Host Sandra Zelinsky
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Patient and Community Engagement Research, Cohort 1 with Jean Miller (EP 14)
25:51
25:51
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Partnering in Research with Annette McKinnon (EP 13)
30:00
30:00
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30:00Send us a textBy AbSPORU Patient Engagement Team with Host Sandra Zelinsky
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Barriers and Facilitators in Patient & Family Engagement with Frank McGavin (EP 25)
36:46
36:46
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36:46Send us a text In episode 25 of PEP Talks, we speak with Frank Gavin, the former chair of the Public Advisory Council for the Health Data Research Network Canada and former director of Citizen Engagement for the National Child Bright Research Network. Gavin shares his knowledge and insights on patient engagement in health research and person-center…
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Alberta Strategic Clinical Networks (SCNs) with Tracy Wasylak (EP 19)
17:59
17:59
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The PaCER Program with Dr. Maria Santana and Ingrid Nielssen (PaCER Series: EP 1)
40:05
40:05
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40:05Send us a text In episode 1 of the PaCER series, we speak to Dr. Maria Santana and Ingrid Nielssen about the Patient and Community Engagement Research (PaCER) program at the University of Calgary which teaches patient, family, and community members to bring patient-informed health research evidence into health care planning, practice, and policy. T…
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Immigrant Youth Mental Health with Farwa Naqvi (EP 26)
49:23
49:23
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49:23Send us a text In episode 26 of PEP Talks, Master's student at the University of Calgary Farwa Naqvi shares her methods for and insights from her mixed-methods thesis study on mental health challenges faced by immigrant and refugee youth in Alberta. We delve into the lived experiences of these youth, their priorities, and how their voices and insig…
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Diabetes Virtual Care with Dorothy Nelson and Veronika Kiryanova (PaCER Series: EP 2)
33:47
33:47
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33:47Send us a text In Episode 2 of the PaCER series, our guests Veronika Kiryanova and Dorothy Nelson talk about their PaCER internship study, "Understanding Virtual Healthcare Experiences of Adults Living with Diabetes and/or their Caregivers in Alberta during the COVID-19 Pandemic", a patient-led peer-to-peer study. Veronika and Dorothy, recent gradu…
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'The Pain Killers' with Jamie Hodge, Marcia Bruce, and Dr. Elena Lopatina (PaCER Series: EP 3)
40:11
40:11
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40:11Send us a text In Episode 3 of the PaCER Series, our guests Jamie Hodge, Marcia Bruce, and Dr. Elena Lopatina talk about the Patient and Community Engagement Research (PaCER) internship study: "Understanding the chronic pain journey and coping strategies that patients use to manage their chronic pain, a qualitative, patient-led, Canadian study." Bi…
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