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Newfoundland and Labrador SPOR SUPPORT Unit with Mike Warren and Holly Etchegary (EP 24)
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In episode 24 of PEP Talks, we talk about the Newfoundland and Labrador SPOR SUPPORT Unit and how it works to improve the lives of patients by empowering them to support research that is important to them as patient research partners. Their lived experiences and personal healthcare journeys bring important perspectives to the table that help identify research priorities. Today, we speak with Mike Warren: a patient and family partner for the NL SUPPORT Unit, and Holly Etchegary: the patient engagement academic lead for the NL SUPPORT Unit and a health services researcher at the Memorial University of Newfoundland. In this episode, we will be discussing how the NL SUPPORT Unit Patient Advisory Council (PAC) came about, how a PAC can work, the importance of patient engagement, successes, challenges, the lessons learned, advice, and the future of patient engagement in Canada.
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