National Psoriasis Foundation presents Psound Bytes™, a podcast series about living with psoriasis and psoriatic arthritis with leading experts discussing topics that offer a better understanding of the disease and management, to coping and thriving with the disease. Listen to world renowned dermatologists and rheumatologists discuss the latest news in psoriatic disease management.
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To provide a resource for women sports fans to access information and updates on their favorite leagues, teams and players. For More visit MyWSports.com
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Ever wondered what happens when CEOs of purpose-driven organisations sit down together for a chat? With 30 years’ of combined experience in the for-purpose space, we knew these conversations should be stored and shared!! We tackle the real questions: How do you build and sustain a thriving organisational culture? How do you manage relationships with your board and your chair? How do you preserve your peace of mind while carrying the weight of responsibility of being a for-purpose CEO. For th ...
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Welcome to The Program podcast where we give you insights to the world of softball. Support this podcast: https://podcasters.spotify.com/pod/show/theprogramsocal/support
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In this episode, we explore the world of for-purpose reporting, where your numbers and data come alive to tell a story of your impact. Our conversation delves into the nuances of segmenting service delivery, analyzing outcomes, and gathering feedback – all essential elements of a comprehensive report that drives meaningful results. Segment 1: The S…
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Ep. 250 "It's an Exciting Time for Psoriasis"
30:18
30:18
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30:18"It's an exciting time. We're not just managing chronic disease. We're reimaging its trajectory" per dermatologist Dr. Mona Shahriari, Central Connecticut Dermatology and NPF Medical Board member as she discusses the latest from the AAD Annual Meeting like head-to-head studies between IL-17 and IL-23 inhibitors, early intervention for psoriasis, us…
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Are you bringing your team into the Boardroom?
21:45
21:45
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21:45Welcome to The NFP CEO, where we dive into the latest strategies and studies for For Purpose CEOs looking to drive growth, improve culture and governance, and build strong leadership teams. In today's episode, Danielle and Michelle are going to explore how you work with your executive team and the Board: when and how you bring your leadership team …
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Ep. 249 "Facing Psoriasis Together and Finding Hope"
29:00
29:00
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29:00Facing challenges presented by psoriasis can be an emotional roller coaster. From diagnosis, treatment choices, and the impact of bullying when a child has psoriasis can leave a parent feeling alone and helpless. Finding someone who's been on the same journey can be a benefit. Hear how parents Jessie Houston, Nadya Helt, and Emma Rhodes with modera…
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When and how to survey the organisation's culture
25:34
25:34
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25:34In this episode, Michelle and Danielle dive into a critical question for any CEO: do you truly understand your organisation’s culture? They explore the best ways to get across your organisation’s culture, when to assess it, the importance of not sending out a survey that everyone hates,, alternative feedback channels, and how CEOs can provide meani…
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CEO Support: is an executive coach worth it?
20:27
20:27
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20:27In this episode, Michelle and Danielle talk about the pros and cons of hiring an executive coach - why you would - or would not - and the importance of building a strong support network as a NFP CEO. It's easy to get caught up in the demands of your role and this can feel isolating. This can lead to burnout, decreased creativity, and reduced effect…
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Ep. 248 "How We Make an IMPACT in Psoriatic Disease"
30:13
30:13
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30:13Making an impact as a volunteer can happen in many different ways. Hear what it means to volunteer and come together to attend the NPF IMPACT Volunteer Leadership Summit as 3 fabulous volunteers, John Romano, Alena Chapman, and NPF Board Member Chris Lindsay, share their experiences and how they fundraise to make a difference in the psoriatic disea…
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Sustaining Your CEO Energy: Thriving, Not Just Surviving Being a CEO is a high-energy role that demands a lot - focus, strategic thinking, decision-making, and constant engagement with stakeholders. Many For Purpose CEOs complain there is no down time. So how do you do it? If you have ever felt like you're just going through the motions, or waiting…
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The CEO - Board Chair relationship - it matters!
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18:54
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18:54In our latest podcast, "The CEO-Board Chair Relationship: It Matters," we dive into the world of the Chair - CEO relationship from the CEO’s viewpoint and explore what makes this partnership tick. As the two key leaders of a purpose driven organisation this relationship is fundamental to the success of the organisation. It impacts culture, goals, a…
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While every CEO's journey is unique, there are certain truths that apply to us all. CEO reporting is one of them. A good board reporting structure can be the difference between success and stagnation. So this week, Michelle and Danielle are talking effective board reporting. In this episode, we focus on why clear and concise reporting matters, how …
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Ep. 247 "Psoriasis and Psoriatic Arthritis: More Than Skin and Joints"
28:38
28:38
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28:38Having psoriasis may mean you're at risk for other diseases. Listen as moderators Alan Simmons and Kaleigh Welch explore cardiovascular disease, calcium build-up, NAFLD, sleep disorders, depression, anxiety, and the big question - does risk equal certainty with Dr. John Barbieri, Assistant Professor at Harvard Medical School, an investigator of the…
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Ever wondered what happens when the CEOs of purpose-driven organisations sit down together for a chat? With 30 years of experience in the for-purpose space, we understood the urgent need for a space where invaluable information could be shared and recorded. We tackle the real, gritty questions: How do you build and sustain a thriving organisational…
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Ep. 246 "Speaking Up About Plaque Psoriasis," an Arcutis sponsored episode
22:00
22:00
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22:00The journey from the first sign of plaque psoriasis to diagnosis and beyond is very familiar to Brandon, Christy and Daryl. Hear these real patients share the good and the bad of their plaque psoriasis journeys with moderator Max Blitstein. Listen as they discuss how they became empowered self advocates by speaking up for themselves with their heal…
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Inverse psoriasis is more challenging to treat and to keep under control. Learn more as we uncover inverse psoriasis from what it is, typical symptoms and sites, other potential diseases, to being a risk factor for psoriatic arthritis, and what treatments are used either alone or in combination with dermatologist Dr. Jeffrey Cohen, Director, Psoria…
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Ep. 244 "Living with Psoriasis and Psoriatic Arthritis: When You Feel Alone, You're Not Alone"
26:15
26:15
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26:15Listen as Jeff Brown, LB Herbert, and Kaitlin Walden share their insights on partnering with doctors, advocating for your health, and navigating relationships - whether it's dating, family, or work. They also explore the challenges of living with a visible skin disease like psoriasis and the hidden struggles of psoriatic arthritis. As LB Herbert wi…
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Ep. 243 "Through the Lens of Living with Psoriasis and Psoriatic Arthritis"
31:09
31:09
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31:09Listen to this unique episode that is so good it had to be split into two episodes! Hear our moderators Jeff Brown, LB Herbert, and Kaitlin Walden comment honestly on what it means to live with psoriasis and psoriatic arthritis from the challenge of not knowing what each day brings, feeling confident, coping with fears, medication changes, to advoc…
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Ep. 242 "Overcoming Our Struggles With Psoriatic Disease"
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26:26
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26:26Hear this inspiring conversation about living with psoriasis as a child, being diagnosed with PsA later, and treating with a biologic from teen Sophia and college student Jackie with moderator Kaleigh Welch. Listen to their treatment journey, overcoming fears of using a biologic, and what tips they use to live each day not defined by their psoriati…
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Ep. 241 "Finding Self-Love and Treatment Covered by Medicare" A Sun Pharma sponsored episode
22:33
22:33
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22:33Join moderator Emily Wallack as we hear how Mark, a patient living with moderate-to-severe plaque psoriasis, rediscovered self-love after finding ILUMYA® (tildrakizumab-asmn), a treatment that he receives for little to no cost with coverage under Medicare Part B with a supplement. Dermatologist Dr. Omar Noor also joins to offer insights on diagnosi…
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Ep. 240 "Diversifying Psoriasis Clinical Studies to Better Understand Patient Outcomes" a Takeda sponsored episode
20:31
20:31
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20:31Clinical studies are not always representative of the actual patient population, which can limit our understanding of patient outcomes. Join NPF moderator Takieyah Mathis as we hear from LaShell Robinson and Marygrace Corral with Takeda on why it's so important to ensure diversity in clinical research, what they are doing to improve racial diversit…
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Ep. 239 "Redefining Remission in Psoriatic Disease" a UCB sponsored episode
22:51
22:51
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22:51On this episode, we'll talk about redefining remission - when a patient and their healthcare practitioner work together to discuss and create a personalized approach to psoriatic arthritis care with moderator Jeff Brown and guests Noelia Ferreyra, a patient advocate living with psoriatic disease, and Dr. Saakshi Khattri, a dermatologist/rheumatolog…
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Ep. 238 "Living Well with Plaque Psoriasis, Even in Sensitive Areas" a Dermavant Sciences sponsored episode
18:41
18:41
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18:41Plaque psoriasis is a lifelong disease with no cure, but living well with clearer skin is possible. This World Psoriasis Day dermatologist/rheumatologist Dr. Alice Gottlieb discusses the benefits of a once-daily, steroid-free prescription treatment for adults with plaque psoriasis. Discover how this effective, safe and well-tolerated option can hel…
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Ep. 237 "Let's Talk 2025 Medicare Changes"
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25:07
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25:07In 2025 key changes impact Medicare beneficiaries. Listen as Jason Harris, NPF VP of Government Relations & Advocacy and dermatologist/rheumatologist Dr. Alice Gottlieb with the Dept. of Dermatology, Icahn School of Medicine at Mount Sinai, discuss issues and tips for transitioning to Medicare health coverage, the $2,000 expense cap, and smoothing …
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Ep 236 "Perspectives on Treatment Developments for Psoriatic Disease"
26:28
26:28
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26:28Over 20 years ago biologics were introduced for psoriasis and PsA. Since then even more targeted treatments have been introduced. Listen as dermatologist Dr. Steven Feldman from Wake Forest University School of Medicine, shares his perspectives on the latest treatments, resident memory T-cells, and what's to come (such as an oral IL-23 agent) with …
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Ep. 235 "Is It Plaque Psoriasis? Recognizing and Managing the Disease in Skin of Color" a Johnson & Johnson-sponsored episode
30:03
30:03
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30:03Patient advocate Alisha Bridges and dermatologist Dr. Mona Shahriari discuss a study dedicated to people of all skin tones who have moderate to severe plaque psoriasis. Dr. Shahriari also shares her experience guiding people with skin of color as they navigate their psoriasis journey. This episode is sponsored by Johnson & Johnson. Please see Impor…
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Ep. 234 "Psoriasis: It's More Than Skin Deep"
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30:38
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30:38Psoriasis is not just a skin disease. It's about inflammation. Listen as dermatologist Dr. Chesahna Kindred at Kindred Hair and Skin Center, and moderator Michelle Zimmerman discuss related diseases that people with psoriasis are at risk of developing like uveitis, heart disease, IBD, PsA and more. Hear what screenings and actions you can take to c…
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Moderator Renee Joyce asks dermatologist Dr. James Song at Frontier Dermatology Partners for his response to questions from you, our listeners like: What triggers psoriasis and how to avoid it? Can diet help scalp psoriasis? How to treat psoriasis on the face, neck or in the mouth? What type of psoriasis makes you prone to PsA? What's Woronoff's ri…
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Ep. 232 "Living with Generalized or Palmoplantar Pustular Psoriasis?"
33:58
33:58
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33:58Living with pustular psoriasis is tough. Hear the latest updates about heritable aspects of GPP, diagnosis, management tips, and treatment options such as the IL-36 inhibitor spesolimab, how it works and how effective it is from dermatologist Dr. Laura Ferris, Professor of Dermatology at the University of Pittsburgh and moderator Alan Simmons. This…
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Ep. 231 "The 'PSConnection': Understanding the Potential Link Between Psoriasis and Psoriatic Arthritis" A Novartis-sponsored episode
27:41
27:41
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27:41Join NPF moderator LB Herbert as NPF patient volunteers Sam Blonien and Jeff Brown get candid about their experience living with psoriasis (PsO) and psoriatic arthritis (PsA). Hear from Sam and Jeff, along with commentary from Dr. Andrea Murina, on the potential connection between PsO and PsA, the importance of finding the right doctor, and where t…
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Ep 230 "Is My Psoriasis Flare Due to Medications I'm Taking?"
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20:54
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20:54Is it possible your flare of psoriasis is due to products or medications you use? Learn what medications for high blood pressure, depression, anxiety, pain (NSAIDS), or infection can potentially flare psoriasis, and what paradoxical psoriasis is from Clinical Dermatology Pharmacist Lacey Glover, Pharm.D., University of Alabama Medicine, and moderat…
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Ep 229 "Shining New Light on Phototherapy for Psoriasis: Results of the Light Treatment Effectiveness Study"
23:17
23:17
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23:17Hear results from the Light Treatment Effectiveness (LITE) Study comparing home vs office based phototherapy for psoriasis with renowned dermatologist Dr. Kristina Duffin, Chair, Dept. of Dermatology, University of Utah, as she discusses benefits, innovations, and barriers with Dr. Guy Eakin, NPF Chief Scientific & Medical Officer. The LITE Study i…
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Ep. 228 "A Future Free From Psoriatic Disease: The New NPF Strategic Plan"
30:39
30:39
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30:39Over the past year NPF has gathered insights from the psoriatic disease community to develop a new 5 year strategic plan. Join Matt Werbach, NPF Associate Director of Media and Communications as he speaks with NPF President and CEO Leah Howard, and Board Member Rick Seiden about the plan, milestones towards a cure, and steps to help improve the hea…
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Ep 227 "Our Tips for Managing Psoriasis and Life Together"
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37:30
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37:30Being a couple has its challenges. When do you let someone know you have psoriasis? What do you do to be a great partner? Hear Licensed Professional Counselor Mary Maraventano Stried chat with Lori and Howard Chang, who has had psoriasis for 45 years, about key ingredients to navigating life together for 30 years from acceptance, open communication…
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Ep 226 "Take Action to Make a Difference for People with Psoriatic Disease"
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31:37
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31:37Curious about Take Action for Psoriatic Disease? Listen as volunteers Kendra, Frank and Elizabeth tell their story to Kristin Brooks, Associate Director of Field Development about why they participate and support NPF's efforts to educate, advocate, and connect with the psoriatic disease community. Hear tips on how they raise funds and create awaren…
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Ep. 225 "Psoriatic Arthritis and Your Aching Back"
33:28
33:28
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33:28Is your aching back due to axial involvement with PsA? Learn about the sacroiliac joint to the cervical spine from rheumatologist Dr. Atul Deodhar, Medical Director, Rheumatology Clinics at OHSU with Alan Simmons as moderator. Hear about key symptoms, treatment options which may differ from peripheral joints, research, and management challenges. Th…
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Ep. 224 "How Psoriatic Arthritis Domains Impact Treatment Choices"
27:49
27:49
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27:49Psoriatic arthritis can affect many areas or domains which includes enthesitis, dactylitis, and more. Learn about the PsA domains and how they influence choice of treatments from rheumatologist Dr. Arthur Kavanaugh, Director of the Center for Innovative Therapy in the Division of Rheumatology, Allergy and Immunology at UCSD. This episode is provide…
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Ep 223 "Balancing Transitions and Life With Psoriasis"
1:06:04
1:06:04
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1:06:04Just having psoriasis is a huge life transition let alone adapting to life after high school. Listen as moderator Kaleigh Welch asks Youth Ambassadors Emme, Zoe, and Mandy to share their psoriasis journey of being responsible for their own health care, balancing college life with school, relationships, and their physical and mental health to achiev…
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Ep. 222 "You're Not An Island: Dealing With Psoriatic Disease Together"
33:17
33:17
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33:17"I've had psoriasis for most of my life. At 40 years old I experienced the worst flare with all types of psoriasis and the loss of my hair." Join NPF volunteers, Ayesha Patrick, founder of Sistas with Psoriasis, and moderator LB Herbert as they discuss Ayesha's story from how she learned to cope, to ask and give help. Hear her tips to help manage p…
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Ep. 221 "Which Comes First - Cardiovascular Disease or Psoriasis?"
30:59
30:59
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30:59"Patients with psoriasis have a lot of undiagnosed and untreated cardiovascular risk factors" per renowned dermatologist Dr. Joel Gelfand, Director, Psoriasis & Phototherapy Treatment Center at Penn. Hear why with moderator Dr. Guy Eakin, NPF Chief Scientific & Medical Officer, as they discuss risks, and what interventions using a centralized care …
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Ep. 220 "IBD, IBS, and How They Relate to Psoriasis"
24:26
24:26
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24:26Not sure what Irritable Bowel Disease or Irritable Bowel Syndrome mean or how they relate to psoriasis? Listen as gastroenterologist Dr. Lisa Malter, Professor in the Dept. of Medicine, NYU Langone Health, Grossman School of Medicine, discusses the perfect storm of what it takes to develop IBD, how diagnosis occurs, care, and use of treatments also…
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Ep. 219 "Should I Be Involved in a Clinical Trial?"
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29:31
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29:31Interested in participating in a clinical trial? Hear the facts about how and why you should be involved, potential benefits and challenges, what occurs in phase 1, 2, 3 and 4, clinical trial updates for psoriasis and an intriguing one for high blood pressure from dermatologist Dr. Benjamin Ehst, owner and Lead Clinical Investigator at Oregon Medic…
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Ep. 218 "Are You Newly Diagnosed With Psoriasis?"
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33:02
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33:02Hear answers to questions when someone is newly diagnosed with psoriasis like what to expect at the first appointment, types of psoriasis, triggers of disease, treatments including over-the-counter options, how to deal with negative comments, and more from Tirsa Quartullo, a doctoral prepared, board-certified Dermatology and Family Nurse practition…
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Ep. 217 "Simplifying Psoriasis Management with Steroid-Free Therapy" An Arcutis sponsored episode.
28:09
28:09
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28:09Jillian who is living with plaque psoriasis, and board-certified nurse practitioner, Melodie Young, discuss disease management with topicals. This episode is sponsored by Arcutis Biotherapeutics, Inc. Please see Important Safety Information and full Prescribing Information including Patient Information for Zoryve (roflumilast) indicated for use on …
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Ep. 216 "Managing Psoriasis and Psoriatic Arthritis: Know What to Ask and When"
24:34
24:34
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24:34Knowing what to ask and when will help you make key decisions about psoriasis and psoriatic arthritis. Listen as key terminology, questions to ask about the disease, and use of medications like "what prescriptions and over the counter medications may conflict with psoriatic disease" are discussed with NPF volunteer Dr. Kim Benner, a pharmacist at C…
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Ep. 215 "Shared Decision-Making: Psoriatic Care Designed for You" A UCB-sponsored episode
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12:16
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12:16On this episode we'll talk about shared decision-making - when a patient and their healthcare practitioner work together to discuss and create a personalized approach to care with guests Karen Camp, a patient advocate who is living with psoriasis, and Dr. Jason Hawkes, a medical dermatologist in the greater Sacramento area who serves on the Medical…
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Ep. 214 "The Future Looks Bright: Managing PsO and PsA in Youth"
39:25
39:25
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39:25Hear the latest treatments, challenges, research towards understanding psoriatic disease, and how treatment planning and collaboration is key from dermatologist Dr. Lara Wine Lee, Director Pediatric Dermatology at Medical University of SC, and rheumatologist Dr. Pam Weiss, Clinical Research Director, Division of Rheumatology, Children's Hospital of…
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Ep. 213 "Psoriasis is More Than Body Surface Area"
38:12
38:12
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38:12Listen to this compelling discussion about when psoriasis should be considered severe and what that means for treatment choices in high impact areas like the scalp, nails, palms, soles, face, and genitalia with dermatologist Dr. Andrew Blauvelt, Investigator at Oregon Medical Research Center, Chair of the NPF Medical Board, and member, Internationa…
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Ep. 212 "Tips for Managing Holiday Stress and Your Psoriatic Disease"
21:32
21:32
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21:32The holidays bring mixed emotions and stress. Join psychiatrist Dr. Vanessa Cutler, NYU Langone Health and Dr. Leslie Beth or LB Herbert for tips on managing holiday stress and simplifying expectations while also looking out for your physical and mental health to help avoid flares of your psoriatic disease. This Psound Bytes episode is provided wit…
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Ep. 211 "Not Your Mom's Psoriasis: Living with Generalized Pustular Psoriasis" A Boehringer Ingelheim sponsored episode.
19:01
19:01
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19:01Generalized Pustular Psoriasis (GPP) is a rare, inflammatory skin disease that is different from plaque psoriasis. Join UC Davis and UCSF Asociate Professors of Dermatology, Dr. Jason Hawkes and Dr. Tina Bhutani, with Dale Reisner, a patient living with GPP, for a closer look at GPP, some of the difficulties living with the disease and the difficul…
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With increasing release of biosimilars, listen to this discussion about use, fear of change, dual pricing strategies and who will see cost savings with Jason Harris, NPF VP of Government Relations and Advocacy, dermatologist and past chair of the NPF Board Dr. Colby Evans, and Anna Hyde, VP of the Advocacy and Access Department at the Arthritis Fou…
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Ep. 209 "A Team Approach to Psoriasis and Psoriatic Arthritis"
31:07
31:07
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31:07Hear how dermatologist Dr. Ahmad Shatil Amin, Director of the Psoriasis Program and rheumatologist Dr. Eric Ruderman, Associate Chief, Division of Rheumatology, Co-Directors of the Multidisciplinary Psoriasis and Psoriatic Arthritis Clinic, Northwestern Medicine, Chicago, use the ultimate team approach to manage triggers and flares of psoriatic dis…
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