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Anakinra Trial update, Collaboration with UNC, other research updates, Help Simon, & more
Manage episode 315282203 series 2974148
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EPISODE 9: “A Close Look At Sanfilippo” is a regular 10-minute podcast covering five hot topics regarding Sanfilippo Syndrome, a rapidly degenerative disease in children currently with no FDA-approved treatment.
In this episode Dr. Cara O’Neill, Chief and co-founder of Cure Sanfilippo Foundation, gives a year-end update on some important projects including the Anakinra clinical trial underway, funded fully by kind supporters of the Foundation. She goes on to talk about the UNC collaboration, other promising research, international collaborations, advocacy projects like addressing educational challenges and global clinical guidelines. She then talks about the Foundation's focus in 2022.
Glenn then talks about the Foundation history and impact from viral videos, and introduces the new Help Simon video launched.
Watch & Share Helps Simon: https://www.HelpSimon.com
Participate in AllStripes: https://www.allstripes.com/sanfilippo
Questions: [email protected]
Website: https://www.curesanfilippofoundation.org
Follow Cure Sanfilippo Foundation:
Facebook: https://www.facebook.com/CureSanfilippoFoundation
Twitter: https://twitter.com/CureSanfilippoF
Instagram: https://www.instagram.com/curesanfili...
TikTok: https://www.tiktok.com/@curesanfilippo
#CureSanfilippo #RareDisease #ACureCantWait #ACloseLook #Podcast #HelpSimon
Music credit: Springish by Gillicuddy
(https://freemusicarchive.org/music/gi...)
© 2021 Copyright reserved Cure Sanfilippo Foundation
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