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Why a podcast?; Photobiomodulation research; the costs of pioneering research; + more
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Episode 6. “A Close Look At Sanfilippo” is a regular 10-minute podcast covering five hot topics regarding Sanfilippo Syndrome, a rapidly degenerative disease in children currently with no FDA-approved treatment.
In this episode Glenn O’Neill, president and co-founder of Cure Sanfilippo Foundation, talks about the inspiration and “why” behind creating a Foundation podcast; how the Step Up virtual steps challenge is shaping up for 2021 and how you can be a part of it; a recently co-funded research project at the University of Sydney to see if photobiomodulation, which has been explored as a therapy for several other neurodegenerative diseases, could provide multiple benefits in Sanfilippo; why so much money is needed for disease research; and the upcoming World Sanfilippo Awareness Day (Nov. 16) and it’s importance to the global community of families of children with Sanfilippo.
#CureSanfilippo #RareDisease #ACureCantWait #ACloseLook #Podcast
Syngap Research Fund - SRF Save Mickey Association: Curing Sanfilippo Together Oliver's Tomorrow
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