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87: CARE in Craniofacial Microsomia

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Manage episode 414199901 series 1123371
Content provided by Appearance Matters and The Centre for Appearance Research. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Appearance Matters and The Centre for Appearance Research or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://ppacc.player.fm/legal.
In this episode, we are joined by some of the members of the CARE project team. CARE stands for Craniofacial Microsomia: Accelerating Research and Education and is aimed at investigating the psychosocial impact and healthcare burden of Craniofacial Microsomia. CAR's own Dr Nicola Stock (Associate Professor), Dr Alessia Johns (Paediatric Psychologist, Children's Hospital Los Angeles), Lazer Schefer (Patient advocate), and Amy Schefer (Parent advocate) join Maia to discuss this exciting project and the importance of conducting impactful research into rare conditions. To find out more about the CARE project or to take part in the research, click here: https://linktr.ee/careforcfm To keep up to date with the Centre for Appearance Research, follow us on • X: twitter.com/CAR_UWE • Instagram: www.instagram.com/car_uwe/ • Facebook: www.facebook.com/AppearanceResearch Episode developed and produced by Maia Thornton.
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150 episodes

Artwork
iconShare
 
Manage episode 414199901 series 1123371
Content provided by Appearance Matters and The Centre for Appearance Research. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Appearance Matters and The Centre for Appearance Research or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://ppacc.player.fm/legal.
In this episode, we are joined by some of the members of the CARE project team. CARE stands for Craniofacial Microsomia: Accelerating Research and Education and is aimed at investigating the psychosocial impact and healthcare burden of Craniofacial Microsomia. CAR's own Dr Nicola Stock (Associate Professor), Dr Alessia Johns (Paediatric Psychologist, Children's Hospital Los Angeles), Lazer Schefer (Patient advocate), and Amy Schefer (Parent advocate) join Maia to discuss this exciting project and the importance of conducting impactful research into rare conditions. To find out more about the CARE project or to take part in the research, click here: https://linktr.ee/careforcfm To keep up to date with the Centre for Appearance Research, follow us on • X: twitter.com/CAR_UWE • Instagram: www.instagram.com/car_uwe/ • Facebook: www.facebook.com/AppearanceResearch Episode developed and produced by Maia Thornton.
  continue reading

150 episodes

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