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Episode 26: Kristin Smedley, "As a mom, that's the success that I dream about...for our children to be so comfortable in their own skin and to not be sitting around and watching life pass them by."

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Content provided by BEST Together (Blind Early Services TN). All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by BEST Together (Blind Early Services TN) or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://ppacc.player.fm/legal.

Kristin Smedley is the best selling author of Thriving Blind: Stories of Real People Succeeding Without Sight and Brilliantly Resilient: Reset, Rise and Reveal Your Brilliance. A recognized expert in the blindness and rare disease communities, Kristin won the highly regarded Champion of Hope Award and was named an Ambassador for the National Organization of Rare Disorders. Kristin is a popular, in demand speaker who has been invited to share her message internationally.

As CEO of a global patient organization, she coordinated legislation (H.R. #625) that became the first in US history to be submitted in Braille. Kristin spoke at the FDA to help achieve the first ever FDA approved gene therapy to treat an inherited retinal disease in the United States. Her TEDx Talk, book and international summit change perceptions of blindness, and sparked a global movement, Thriving Blind Academy, that is solving the unemployment, literacy, and financial crisis in the blind community.

  continue reading

40 episodes

Artwork
iconShare
 
Manage episode 468425839 series 3648982
Content provided by BEST Together (Blind Early Services TN). All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by BEST Together (Blind Early Services TN) or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://ppacc.player.fm/legal.

Kristin Smedley is the best selling author of Thriving Blind: Stories of Real People Succeeding Without Sight and Brilliantly Resilient: Reset, Rise and Reveal Your Brilliance. A recognized expert in the blindness and rare disease communities, Kristin won the highly regarded Champion of Hope Award and was named an Ambassador for the National Organization of Rare Disorders. Kristin is a popular, in demand speaker who has been invited to share her message internationally.

As CEO of a global patient organization, she coordinated legislation (H.R. #625) that became the first in US history to be submitted in Braille. Kristin spoke at the FDA to help achieve the first ever FDA approved gene therapy to treat an inherited retinal disease in the United States. Her TEDx Talk, book and international summit change perceptions of blindness, and sparked a global movement, Thriving Blind Academy, that is solving the unemployment, literacy, and financial crisis in the blind community.

  continue reading

40 episodes

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