Tourette syndrome community and research - with Dr. Daniel P. Jones

Beyond 6 Seconds: Neurodiversity stories from neurodivergent people

Dr. Daniel P. Jones is a Creative Practitioner, Disability Scholar, and Postdoctoral Research Associate at the University of Sheffield in the UK. Daniel specializes in inclusive research methodologies, focusing on the embodied experiences of public spaces, kinship, and solidarity within Tourette syndrome communities. As someone who has lived experience of Tourette syndrome himself, he has been actively engaged in community facilitation and Tourette syndrome activism in the UK for over a decade.

During this episode, you will hear Daniel talk about:

• How he realized he had Tourette syndrome – years after he had been diagnosed
• What was it like for him growing up with Tourette's in a religious household
• How his PhD thesis research focuses on the experiences that adults with Tourette's have in both public physical spaces and digital spaces
• What he learned about how the experiences of BIPOC and queer people with Tourette's are different in these spaces
• His work to lead and promote inclusive research

Follow Daniel on Bluesky: @danielpjones.bsky.social Visit Daniel's website: DanielPJones.com

Watch the video of this interview on YouTube.

Read the episode transcript.

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*Disclaimer: The views, guidance, opinions, and thoughts expressed in Beyond 6 Seconds episodes are solely mine and/or those of my guests, and do not necessarily represent those of my employer or other organizations. These episodes are for informational purposes only and do not substitute for professional medical advice. Consult a medical professional or healthcare provider if you are seeking medical advice, diagnoses, or treatment.*