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Content provided by European Federation of Neurological Associations (EFNA). All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by European Federation of Neurological Associations (EFNA) or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://ppacc.player.fm/legal.
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Episode 2 - "One in a Million"

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Manage episode 395624370 series 3538655
Content provided by European Federation of Neurological Associations (EFNA). All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by European Federation of Neurological Associations (EFNA) or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://ppacc.player.fm/legal.

Did you know that there are over 400 different neurological conditions? The vast majority of these conditions are extremely rare, making them difficult to diagnose and treat. From a lack of available specialists, to fragmented care pathways, there are too many gaps in healthcare systems for people living with a rare neurological disease to fall through.

In this episode of Brain Health Matters, we’ll hear from three people across Europe living with different rare neurological conditions. We’ll also hear from Astri Arnesen, President here at the European Federation of Neurological Associations (EFNA), who will tell us what organisations like EFNA, along with policy-makers, are doing to counter the challenges faced by the rare disease community.

  continue reading

4 episodes

Artwork
iconShare
 
Manage episode 395624370 series 3538655
Content provided by European Federation of Neurological Associations (EFNA). All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by European Federation of Neurological Associations (EFNA) or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://ppacc.player.fm/legal.

Did you know that there are over 400 different neurological conditions? The vast majority of these conditions are extremely rare, making them difficult to diagnose and treat. From a lack of available specialists, to fragmented care pathways, there are too many gaps in healthcare systems for people living with a rare neurological disease to fall through.

In this episode of Brain Health Matters, we’ll hear from three people across Europe living with different rare neurological conditions. We’ll also hear from Astri Arnesen, President here at the European Federation of Neurological Associations (EFNA), who will tell us what organisations like EFNA, along with policy-makers, are doing to counter the challenges faced by the rare disease community.

  continue reading

4 episodes

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