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1. Living with Dignity: Dementia Advocate Mary Beth Wighton on Capturing Essence and Improving Healthcare
Manage episode 473281419 series 3653121
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Join our discussion with Mary Beth Wighton, inspiring international dementia advocate, writer and speaker as we talk about what it's like living with a diagnosis of probable Frontal Temporal Dementia and learn how she captures her essence.
Our conversation covers:
- what receiving the diagnosis is like and the importance of bedside manner;
- coming to terms with a diagnosis not just for herself but for family;
- choosing to live with purpose and the role of being an advocate;
- creating culture and policy change through community;
- speaking up for our own needs and being a part of our own health care team;
- the importance of positive energy and connection;
- communicating our wishes with family and your most trusted supports;
- why words matter (Caregiver vs. Care Partner)
**Note: This episode was recorded in the fall of 2022.
Links mentioned:
- Mary Beth's book: Dignity & Dementia: Carpe Diem: My journals of living with dementia
- Murray Alzheimer Research and Education Program (MAREP)
- Canadian Dementia Strategy
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Intro and outro music with thanks: Upbeat and Sweet No Strings by Musictown
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