))
Caring Through Chaos: A Journey with Frontotemporal Dementia
Manage episode 478371800 series 3430082
Content provided by Natalie Elliott Handy and JJ Elliott Hill, Natalie Elliott Handy, and JJ Elliott Hill. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Natalie Elliott Handy and JJ Elliott Hill, Natalie Elliott Handy, and JJ Elliott Hill or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://ppacc.player.fm/legal.
“I was in therapy, that was a lifeline.” - Allyson Schrier
This is a powerful one! Natalie and JJ sit down with Allyson Schrier as she opens up about her deeply personal and emotional journey caring for her husband, who was diagnosed with Frontotemporal Dementia (FTD).
Allison candidly shares the early signs of FTD, the heartbreaking misdiagnosis, and the uphill battle of navigating a complex healthcare system. From the shifting family dynamics to the emotional weight of caregiving, this conversation pulls back the curtain on what it really means to care for a loved one with dementia.
🌼 Key Takeaways:
- Recognizing early behavioral changes in FTD
- Coping with misdiagnosis and delayed answers
- The emotional toll and resilience required of caregivers
- The importance of self-care and community support
- How Zinnia TV is transforming dementia care through thoughtful, therapeutic content
About Allyson:
Allyson Schrier, co-founder and President of ZinniaTV was a caregiver for her husband with dementia, who turned that experience into a career focused on helping both people with dementia and those who care for them. Allyson became a dementia educator teaching both family and professional caregivers about best practices around supporting people with dementia. Following that, Allyson helped launch, then managed an education program at the University of Washington to equip primary and allied healthcare providers to better diagnose and support patients living with dementia. Allyson was honored to be a recipient of a 2020 Maude’s Awards for Innovation in Alzheimer’s Care, and was named Visionary Caregiver of 2020 by caregiving.com. She sits on the Health and Medical subcommittee of the Washington State Dementia Action Collaborative, facilitates support groups for spouses of people with dementia, and lectures on topics about dementia caregiving.
Social Media:
Instagram: Al.lyson80
Instagram: zinnia_tv
LinkedIn: https://www.linkedin.com/in/avschrier/
Website: www.zinniatv.com
Allison’s story offers both inspiration and practical wisdom for professionals, family members and friends alike
💡 Hit subscribe to hear more raw, real stories from the caregiving frontlines.
#CaregiverSupport #FrontotemporalDementia #FTD #DementiaAwareness #ConfessionsOfACaregiver #ZinniaTV #CaregivingJourney #PodcastForCaregivers
Confessions of a Reluctant Caregiver
Sisterhood of Care, LLC
194 episodes
Share
