Living in the Shadow of Huntington Disease & the HTT gene. Demystifying Genetics with Kathy Langley

Demystifying Genetics

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4M ago 37:21

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Kathy Langley opens up about her family's struggles with Huntington disease, sharing her personal journey from the silent pain of knowing her father's condition to advocating for awareness and support in the community. She highlights the emotional complexities surrounding genetic testing decisions and the need for improved education on HD within the healthcare sector.
• Kathy’s early experiences with her father's HD symptoms
• The emotional impact of discussing HD in the family
• The dilemma of wanting children while facing genetic risks
• Insights into the testing process and its psychological effects
• The role of stigma and the importance of awareness
• Advocacy for education on HD for medical professionals
• Support mechanisms for families affected by HD
• Kathy’s efforts to raise awareness through social media

Support the show

Demystifying Genetics is sponsored by TrakGene
https://www.trakgene.com/

Chapters

1. Demystifying Genetics with Kathy Langley (00:00:00)

2. Family Impact of Huntington Disease (00:00:01)

3. Advocating for Huntington Disease Awareness (00:18:03)

4. Exploring Family History for Huntington Disease (00:30:00)

36 episodes

#Matt Burgess #Genetics #Bioethics #Science #Fitness #Biology #Medicine #Clinical Genetics #Moral Dilemas #Genetic Counseling