#38 Patient perspectives in PV: a fireside chat at the ISoP mid-year symposium

Drug Safety Matters

This special episode was recorded at the mid-year symposium of the International Society of Pharmacovigilance (ISoP), 14–15 May 2025. Held in Uppsala, Sweden, the theme of the symposium was Improving information capture for safer use of medicines. The episode is an abridged recording of the concluding fireside chat, where Angela Caro Rojas (president of ISoP), Linda Härmark (director of the Drug Safety Research Unit in the UK), Ghita Benabdallah (national pharmacovigilance centre of Morocco, member of the IsoP advisory board), and Daniele Sartori (senior pharmacovigilance researcher at Uppsala Monitoring Centre), discuss patient engagement in pharmacovigilance.

The symposium was a collaboration between ISoP and UMC.

Want to know more?

• Visit the official website of the 2025 ISoP Mid-Year Symposium to learn more about its sessions, speakers and chairs.
• Not patient but im-patient – read about Sara Riggare’s research on patient engagement and other topics.
• Listen to Henry Zakumumpa talk about his study on adverse event reporting quality in Uganda in this 2025 episode of Drug Safety Matters.
• Read about the PhD project of Tommy Emil Dzus, Improving causality assessment in pharmacovigilance for safe and sustainable use of medicines in health emergencies, at Oslo Metropolitan University, Norway.
• Sabine Koch is Head of the Department of Learning, Informatics, Management and Ethics (LIME), at Karolinska Institutet, Stockholm.
• Details on Mikael Hoffman's research can be found on his profile page on ResearchGate.
• Take a look at what’s in store for participants at the 24th Annual Meeting of ISoP in Cairo, on October 24–27, 2025.
• Visit the websites of the Drug Safety Research Unit (DSRU), ISoP, Centre Anti Poison et Pharmacovigilance du Maroc, and Uppsala Monitoring Centre, to find out more about their work.

Join the conversation on social media
Follow us on Facebook, LinkedIn, X, or Bluesky and share your thoughts about the show with the hashtag #DrugSafetyMatters.
Got a story to share?
We’re always looking for new content and interesting people to interview. If you have a great idea for a show, get in touch!
About UMC
Read more about Uppsala Monitoring Centre and how we work to advance medicines safety.

Chapters

1. Introduction to the ISOP Symposium (00:00:00)

2. Personal takeaways from the two-day conference (00:01:47)

3. Patient Perspective in Pharmacovigilance (00:07:05)

4. Different kinds of patient engagement in pharmacovigilance (00:18:05)

5. Patient reporting of adverse events (00:22:51)

6. A look into the future of pharmacovigilance (00:27:36)

7. Final Thoughts and Closing (00:33:51)