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Empowering Lupus Patients: A Treatment Measure Shaped by Their Voices
Manage episode 481090757 series 1099819
Content provided by BMJ Group. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by BMJ Group or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://ppacc.player.fm/legal.
In this podcast, Dr. Anna Wolska sits down with Dr. Eric Morand to discuss a groundbreaking effort to improve how lupus treatment success is measured in clinical trials. Dr. Morand explains why existing tools weren’t designed for tracking treatment response and describes a rigorous, patient-inclusive Delphi process that narrowed dozens of possible disease aspects down to eight meaningful domains. By involving patients at every step, the new measure focuses on what patients truly feel and function. Early work on defining precise assessments for each domain is underway, with practical use in trials expected by 2026, promising clearer results and faster access to new lupus therapies.
Read the paper published in LSM - https://doi.org/10.1136/lupus-2024-001484
61 episodes
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Manage episode 481090757 series 1099819
Content provided by BMJ Group. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by BMJ Group or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://ppacc.player.fm/legal.
In this podcast, Dr. Anna Wolska sits down with Dr. Eric Morand to discuss a groundbreaking effort to improve how lupus treatment success is measured in clinical trials. Dr. Morand explains why existing tools weren’t designed for tracking treatment response and describes a rigorous, patient-inclusive Delphi process that narrowed dozens of possible disease aspects down to eight meaningful domains. By involving patients at every step, the new measure focuses on what patients truly feel and function. Early work on defining precise assessments for each domain is underway, with practical use in trials expected by 2026, promising clearer results and faster access to new lupus therapies.
Read the paper published in LSM - https://doi.org/10.1136/lupus-2024-001484
61 episodes
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Similar to Lupus Science and Medicine Podcast
The BMJ brings you interviews with the people who are shaping medicine and science around the world.
…
continue reading
Concise summaries of everything published in the latest weekly issue of the New England Journal of Medicine (NEJM). NEJM publishes new medical research findings, review articles, and editorial opinion on topics of importance to biomedical science and clinical practice.
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continue reading
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…
continue reading
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continue reading
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…
continue reading
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