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Beyond Diagnosis: Ashlee and Sava, a couple's story
Manage episode 471742715 series 3642239
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Ashlee and Sava's story is one of partners navigating MS together, bringing us what medical textbooks can't – how the disease mixes with parenting challenges, career changes, and future planning.
Listeners will hear of this young family's compounded 'complex needs' and learn that rather than dwelling on circumstances, Sava and Ashlee instead share a unique strength – sometimes through shared humour, sometimes through dividing responsibilities based on changing abilities.
What makes this conversation unique is hearing both voices – Sava describing his physical decline despite "stable" MRIs, and Ashlee ultimately speaking of her own neurological condition, and evolution into what she calls "a bit of a manager," juggling medical appointments and government supports.
Sava's decision to pursue HSCT treatment in Mexico adds another layer to this episode - and we wish him all the very best success!
If you can support Sava's journey to Mexico for HSCT please do so through his GoFundMe page
You can join Colleen and other Australians living with MS in this podcast's Facebook group which was originally created to support those interested in HSCT and now exists to facilitate discussion on all issues relevant to MS.
Multiple Sclerosis and HSCT Australia - Facebook group
PS: I'd appreciate your donation to help in maintaining this podcast - if you could buy me a coffee or two please (donate $5, it's not real coffee! thank you!) - Colleen
Buy Colleen a Coffee - thank you!
Disclaimer:
This podcast is not intended to replace professional medical advice.
The views expressed in episodes of this podcast are those of the host or guest(s) and are not intended to replace professional medical advice.
No story told, view expressed or opinion voiced, written or otherwise shared in any episode of this podcast is to be taken as medical advice, including when related in an episode as a professional opinion or professional advice given.
Always seek the guidance of your doctor or other qualified health professional with any questions regarding your health or medical condition.
Content Warning:
Multiple Sclerosis is an unpredictable condition and the conversations and stories in all episodes of this podcast will contain reference to MS symptoms as well as situa...
Chapters
1. Meeting Ashley and Sava (00:00:00)
2. Sava's MS Diagnosis Story (00:01:57)
3. Treatment Journey with Ocrevus (00:05:41)
4. Ashley's Role as Caregiver and Partner (00:10:44)
5. Considering HSCT Treatment (00:15:39)
6. Living with Multiple Disabilities (00:24:27)
7. Family Life and Supporting Their Child (00:34:19)
8. Episode Conclusion (00:38:57)
23 episodes
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