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Make A Difference
Manage episode 359462935 series 3006427
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Hello! π send me a text message! Tell me what your thoughts π are about this episode
I recently came back from my trip to Washington D.C. πΊπΈI was advocating for Alzheimer's Association. I was invited by Lauren Ashburn, an Associate Director of Advocacy for New York state. π½I feel I am ready to put my voice π£out there to advocate for ANYONE who is battling this heinous disease, along with their families. π
Because of Alzheimer's Association's commitment, I decided to take action and become involved. I am a volunteer advocate. I want to make a difference! I was in Washington D.C. for three days. From the moment I landed at the airport, and met two fellow New Yorkers, Mary & Lisa, I felt an instant connection.
This is bigger than me and the loving memory of my beautiful mom. That's where it tugs at my heart, where now I can fight for the right of ANYONE & their family, who have been inflicted with this incurable terminal disease.
I was part of a rally π«π«ππ’ in Washington D.C.'s Lafayette Square on March 20th, outside the White House, to fight for the reversal of the 2022 Centers for Medicare & Medicaid Services, (CMS) DECISION BLOCKING Medicare coverage of U.S. Food & Drug Administration approved Alzheimer's disease treatments that can slow down the progression of early onset dementias.
There is so much EMPOWERMENT when you truly feel that hope, never giving up, determination and even more, motivational meaning - the love that stays with you long after we all went home. π
LINKS!
- www.alz.org { Alzheimer's Association - information about this disease }
- https://youtu.be/MSvzSGSm98Y { ALZ's Advocates Rally for Access to Alzheimer's Treatments! ** You just might see me in this video! βΊοΈ }
- [email protected] { send me an email with any suggestions, comments or just to say hello! π If you send me your mailing address πͺ I'll send you a Nearest And Dearest Podcast vinyl sticker! β€οΈ }
- www.nearestanddearestpodcast.com { β out my website for more episodes & show notes/links! π }
- https://www.speakpipe.com/NearestAndDearestPodcast { please leave me a recorded message! I'll send you one back! π€ }
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