Shaping Health Policy with Patient Input | Urvashi Prasad

Not Just Patients

Join us for this inspiring conversation with Urvashi Prasad as we discuss how patients can be involved in shaping healthcare policy.
Urvashi was a Director in the Office of the Vice Chairman at NITI Aayog, the Government of India's premier policy think tank, and co-authored India's first Voluntary National Review on Sustainable Development. She also contributed to the management of the Covid-19 pandemic in India, the implementation and monitoring of the Sustainable Development Goals, and the promotion of gender equality and social inclusion. With extensive experience and over 100 publications in public health and policy, she is passionate about improving the lives and well-being of people, especially the underserved and marginalized. Urvashi has been living with Stage IV ALK-positive lung cancer since 2022.
This episode explores what health policy is and how it is developed, advice on how patients can influence and leverage policy, and real-world examples of how this has been done.

Resources & abbreviations:

• ALK - Anaplastic lymphoma kinase
• EUPATI
• NGO - Non-governmental organisation
• Policy Brief on Alternative Financing for Cancer Care in India

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Website: notjustpatients.com
LinkedIn: Not Just Patients
Email: [email protected]

Chapters

1. Introductions (00:00:00)

2. Defining health policy (00:01:46)

3. Urvashi's journey into health policy (00:10:42)

4. Examples of patients shaping policy  (00:18:06)

5. Challenges for patient involvement (00:22:09)

6. The numbers game and need for data (00:31:03)

7. Initiatives supporting patient involvement in policy (00:40:40)

8. Urvashi's dream for health policy (00:44:09)

9. Advice for policymakers  (00:48:22)

10. Advice for patient communities (00:49:39)

11. Reflections with Caitlin and Clarinda (00:53:44)