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Series 3 Episode 15. Tom Staniford. MDP syndrome
Manage episode 479723040 series 3528389
Content provided by Andrew Hattersley and Maggie Shepherd, Andrew Hattersley, and Maggie Shepherd. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Andrew Hattersley and Maggie Shepherd, Andrew Hattersley, and Maggie Shepherd or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://ppacc.player.fm/legal.
Tom Staniford talks about living with the MDP syndrome, an extremely rare genetic condition. MDP syndrome includes Mandibula hypoplasia, Deafness, and Progeroid features amongst its widespread features. Tom developed Type 2 diabetes as a teenager because of a loss of fat under the skin (lipodystrophy) despite being very thin and active. Tom has used his communication and media skills to help other people with MDP syndrome get diagnosed and receive the right care.
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Manage episode 479723040 series 3528389
Content provided by Andrew Hattersley and Maggie Shepherd, Andrew Hattersley, and Maggie Shepherd. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Andrew Hattersley and Maggie Shepherd, Andrew Hattersley, and Maggie Shepherd or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://ppacc.player.fm/legal.
Tom Staniford talks about living with the MDP syndrome, an extremely rare genetic condition. MDP syndrome includes Mandibula hypoplasia, Deafness, and Progeroid features amongst its widespread features. Tom developed Type 2 diabetes as a teenager because of a loss of fat under the skin (lipodystrophy) despite being very thin and active. Tom has used his communication and media skills to help other people with MDP syndrome get diagnosed and receive the right care.
41 episodes
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