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Rare Disease Day Special featuring Janet Bloor and Nick Meade - February 2022
Manage episode 321496172 series 2324999
Content provided by Partners4Access. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Partners4Access or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://ppacc.player.fm/legal.
For this Rare Disease Day episode, Janet and Nick discuss a range of topics associated with the rare disease community and patient advocacy. They address new-born screening, patient registries, the UK rare disease framework, the NICE methods review and much more!
Presenter: Georgie Rack, Communication Executive
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Producer: Operations team
100 episodes
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Manage episode 321496172 series 2324999
Content provided by Partners4Access. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Partners4Access or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://ppacc.player.fm/legal.
For this Rare Disease Day episode, Janet and Nick discuss a range of topics associated with the rare disease community and patient advocacy. They address new-born screening, patient registries, the UK rare disease framework, the NICE methods review and much more!
Presenter: Georgie Rack, Communication Executive
Contributors: Janet Bloor, CEO of Duchenne Nexus Advocacy (DNA) and Nick Meade, Director of Policy and Joint Interim Chief Executive of Genetic Alliance UK
Producer: Operations team
100 episodes
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Similar to P4A Let's Talk Rare: The Life Science Podcast
Flash Forward is a show about possible (and not so possible) future scenarios. What would the warranty on a sex robot look like? How would diplomacy work if we couldn’t lie? Could there ever be a fecal transplant black market? (Complicated, it wouldn’t, and yes, respectively, in case you’re curious.) Hosted and produced by award winning science journalist Rose Eveleth, each episode combines audio drama and journalism to go deep on potential tomorrows, and uncovers what those futures might re ...
…
continue reading
Come dive into one of the curiously delightful conversations overheard at National Geographic’s headquarters, as we follow explorers, photographers, and scientists to the edges of our big, weird, beautiful world. Hosted by Peter Gwin and Amy Briggs.
…
continue reading
DNA science. Artificial intelligence. Smartphones and 3D printers. Science and technology have transformed the world we live in. But how did we get here? It wasn’t by accident. Well, sometimes it was. It was also the result of hard work, teamwork, and competition. And incredibly surprising moments. Hosted by bestselling author Steven Johnson (“How We Got To Now”), American Innovations uses immersive scenes to tell the stories of the scientists, engineers, and ordinary people behind the great ...
…
continue reading
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…
continue reading
Science Friction's latest series is: Brain Rot. We're looking at what being chronically online is doing to our brains. What's really going on with our attention spans and tech addiction? Is data-dumping your entire life into ChatGPT helpful? Can going internet free help you escape the doomscroll? And what's it like to be in love ... with an AI? National technology reporter Ange Lavoipierre tackles the wildest ways people are using tech and the big questions about our own use. That's Brain Ro ...
…
continue reading
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…
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…
continue reading
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