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Introducing Season 2: Voices From Rare Disease Day 2025

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Manage episode 480690366 series 3585904
Content provided by PNRI. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by PNRI or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://ppacc.player.fm/legal.

In Season 2, we’re bringing you something special—conversations recorded live at PNRI’s 2025 Rare Disease Day symposium. It was a day full of energy, insight, and shared purpose, as scientists, clinicians, advocates, and industry leaders came together to accelerate rare disease research and treatment.

Hosted by Jack Faris, CEO of the Pacific Northwest Research Institute, and his daughter, actor and producer Anna Faris, this season captures personal stories and fresh perspectives from across the rare disease landscape. You’ll hear from rare disease families, early-career scientists, seasoned clinicians, and corporate partners, all reflecting on what drives their work—and what’s possible when people from different sectors come together.

Because in rare disease, a diagnosis isn’t the end of the story. It’s the start of something powerful.

  continue reading

10 episodes

Artwork
iconShare
 
Manage episode 480690366 series 3585904
Content provided by PNRI. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by PNRI or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://ppacc.player.fm/legal.

In Season 2, we’re bringing you something special—conversations recorded live at PNRI’s 2025 Rare Disease Day symposium. It was a day full of energy, insight, and shared purpose, as scientists, clinicians, advocates, and industry leaders came together to accelerate rare disease research and treatment.

Hosted by Jack Faris, CEO of the Pacific Northwest Research Institute, and his daughter, actor and producer Anna Faris, this season captures personal stories and fresh perspectives from across the rare disease landscape. You’ll hear from rare disease families, early-career scientists, seasoned clinicians, and corporate partners, all reflecting on what drives their work—and what’s possible when people from different sectors come together.

Because in rare disease, a diagnosis isn’t the end of the story. It’s the start of something powerful.

  continue reading

10 episodes

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