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49. Spinal muscular atrophy interview marks Rare Diseases Day

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Manage episode 468227863 series 3585933
Content provided by Steve Brine and Dr Sarah Wollaston. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Steve Brine and Dr Sarah Wollaston or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://ppacc.player.fm/legal.

This week sees Rare Diseases Day 2025 and to mark the moment, Steve and James speak with SMA UK boss Giles Lomax about spinal muscular atrophy and how we have the power to save lives. The pair also consider what is happening with the Government's Ten Year Plan, a worrying new piece of research from CRUK and look ahead to the NHS Winter crisis of 2026 - discuss! You can get in touch with the team via [email protected] or find us on our social media channels.


Note: Steve has worked in an advisory role with organisations who have an interest in both SMA and newborn screening, but the opinions expressed in this podcast which he presents are his own.


Hosted on Acast. See acast.com/privacy for more information.

  continue reading

58 episodes

Artwork
iconShare
 
Manage episode 468227863 series 3585933
Content provided by Steve Brine and Dr Sarah Wollaston. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Steve Brine and Dr Sarah Wollaston or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://ppacc.player.fm/legal.

This week sees Rare Diseases Day 2025 and to mark the moment, Steve and James speak with SMA UK boss Giles Lomax about spinal muscular atrophy and how we have the power to save lives. The pair also consider what is happening with the Government's Ten Year Plan, a worrying new piece of research from CRUK and look ahead to the NHS Winter crisis of 2026 - discuss! You can get in touch with the team via [email protected] or find us on our social media channels.


Note: Steve has worked in an advisory role with organisations who have an interest in both SMA and newborn screening, but the opinions expressed in this podcast which he presents are his own.


Hosted on Acast. See acast.com/privacy for more information.

  continue reading

58 episodes

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