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What The Stuttering Community Can Learn From Rare Disease Advocacy [Part 2]

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Manage episode 480245249 series 2990253
Content provided by Maya Chupkov. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Maya Chupkov or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://ppacc.player.fm/legal.

This episode is Part 2 of our series “What We Can Learn from the Rare Disease Community.” Last week, we heard from Bobby Glen about navigating the healthcare system as a parent of a child with HNRNPH2. Today, his wife Nicole—who is also a pediatrician—joins us to share how raising a child with a rare disease has shaped the way she practices medicine, approaches patient advocacy, and supports families navigating speech and communication challenges.

Event Alerts:

Docs on Stuttering – May 8 (Use "PROUD25" at checkout for a free ticket)

Docs on Disability – May 15, featuring Marlee Matlin’s Sundance-premiered documentary

Philly Proud Stutter Gathering – May 19

Save The Date: Proud Stutter Annual Gala in San Francisco – October 9 (listeners get 50% off tickets!)

And yes, Survivor fans—our recap will be back to cover the season finale, which airs on May 21, 2025! Go Mitch!


Support this podcast at — https://redcircle.com/proud-stutter/exclusive-content
Advertising Inquiries: https://redcircle.com/brands
Privacy & Opt-Out: https://redcircle.com/privacy
  continue reading

97 episodes

Artwork
iconShare
 
Manage episode 480245249 series 2990253
Content provided by Maya Chupkov. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Maya Chupkov or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://ppacc.player.fm/legal.

This episode is Part 2 of our series “What We Can Learn from the Rare Disease Community.” Last week, we heard from Bobby Glen about navigating the healthcare system as a parent of a child with HNRNPH2. Today, his wife Nicole—who is also a pediatrician—joins us to share how raising a child with a rare disease has shaped the way she practices medicine, approaches patient advocacy, and supports families navigating speech and communication challenges.

Event Alerts:

Docs on Stuttering – May 8 (Use "PROUD25" at checkout for a free ticket)

Docs on Disability – May 15, featuring Marlee Matlin’s Sundance-premiered documentary

Philly Proud Stutter Gathering – May 19

Save The Date: Proud Stutter Annual Gala in San Francisco – October 9 (listeners get 50% off tickets!)

And yes, Survivor fans—our recap will be back to cover the season finale, which airs on May 21, 2025! Go Mitch!


Support this podcast at — https://redcircle.com/proud-stutter/exclusive-content
Advertising Inquiries: https://redcircle.com/brands
Privacy & Opt-Out: https://redcircle.com/privacy
  continue reading

97 episodes

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