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Ruby Raising Lexi
Manage episode 444636379 series 3471806
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In this episode we talk to Ruby about her daughter Lexi who has Arthrogryposis Multiplex Congenita (AMC), a rare condition affecting joint movement.
We talk about:
- the early days of the diagnosis and navigating early interventions,
- what her physical therapy and multiple surgeries have been like,
- her teaching her daughter how to advocate for herself,
- and the challenges and triumphs of parenting a child with AMC.
Follow @amcsupport to learn more about the disease!
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