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Neuromyoitis Optica with Nicki From New York
Manage episode 482789788 series 3485028
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In this episode of Rare Connection, host Joanna Ball speaks with [Guest Name], who shares their powerful journey with [Rare Disease]. Together, they discuss diagnosis challenges, treatment paths, daily life, and advocacy work. Whether you're a patient, caregiver, medical professional, or just curious—this conversation brings rare insight into a rarely understood condition.
💡 New! Listener Quiz
Stick around to test your knowledge with a short quiz at the end of the episode! It's a great way to stay engaged, especially with our new premium content rolling out soon on Apple Podcasts.
📺 Watch & Subscribe
This episode is available on YouTube at Rare Chef, Joanna’s advocacy and cooking channel. All content will now be posted here instead of TikTok Live, as live streaming has been paused due to age verification delays.
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- YouTube: Rare Chef (subscribe for full episodes & Shorts)
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- X (Twitter): Rare Connection Inc.
👕 Support the Show Through Merch!
Get a shirt from our Bonfire shop under Rare Chef—with designs for Rare Connection, Rare Chef, and invisible illness awareness. Proceeds help fund groceries for Joanna’s cooking videos and keep the channel going.
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Some episodes may appear as premium audio on Apple Podcasts for $3, but older episodes will remain free. Your support keeps rare stories heard.
💬 Want to help?
- Use the Support the Show link in the audio show notes
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⚠️ Disclaimer: All content is for educational and awareness purposes only. Always consult a qualified medical professional for health decisions. Please do not offer medical advice in the comments—even if you're a healthcare professional.
🧠 Suicide Prevention Resources
- Call or text 988
- Text HOME to 741741 (Crisis Text Line)
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