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Rare Connection Episode 6: Calciphylaxis and Multiple Endocrine Neoplasia Type 1
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Dubbed the man who died twice and Hod brought back to life, Kevin Hills Story appears in 45 national and international Newspapers and Magazines. Listen along as I talk with Kevin about his medical conditions Calcifylaxis and Multiple Endocrine Neoplasia Type 1(MEN1). You can see the full video on YouTube on my channel Rare Chef also as well as many cooking videos.
Chapters
1. Rare Connection Episode 6: Calciphylaxis and Multiple Endocrine Neoplasia Type 1 (00:00:00)
2. stroke diagnosis (00:01:52)
3. Multiple Endocrine Neoplasia 1 diagnosis (00:03:46)
4. Calciphylaxis diagnonsis (00:08:09)
5. bicuspid heart diagnosis (00:09:42)
6. calciphlaxis diagnosis (00:11:31)
7. weight loss (00:13:41)
8. gaining weight back (00:16:13)
9. Near death experience 1 (00:17:48)
10. prayer circles around the world (00:18:25)
11. learning to fundtion again (00:19:50)
12. wife visits the hospital (00:20:47)
13. Parathyroid removed because of MEN 1 (00:22:03)
14. Kevin meets others with Calciphylaxis (00:24:05)
15. different types of MEN (00:26:16)
16. maintaining hope (00:29:46)
17. PTSD (00:33:40)
18. educating medical professionals (00:35:40)
19. misconceptions (00:38:53)
20. have hope and laugh (00:45:08)
21. study on kevin (00:46:53)
22. don't let your diseases define you (00:48:45)
23. how Kevin's conditions changed him (00:51:13)
24. advice (00:57:21)
25. advocate for yourself (01:02:23)
26. Doctors need to listen to their patients (01:04:33)
27. Make sure you need the medications they prescribe (01:06:20)
28. advancements (01:08:24)
29. lessons learned (01:15:31)
30. treasure the moments in life (01:19:33)
31. getting together again with children (01:24:28)
32. Addressing the most pressing issues (01:28:21)
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