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Revolutionizing Precision Medicine: Casey McPherson Won’t Wait_e.062
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In this episode of Lab Rats to Unicorns, John Flavin sits down with Casey McPherson, a musician, songwriter, and rare disease advocate whose life took an extraordinary turn when his daughter, Rose, was diagnosed with HNRNPH2, an ultra-rare neurodevelopmental disorder. Best known for his work as the lead vocalist and songwriter for Alpha Rev and Flying Colors, Casey has spent much of his career crafting powerful music that resonates deeply with audiences. But when faced with the challenges of navigating the healthcare system for rare diseases, Casey turned his creativity, resilience, and determination toward a new mission: advancing precision medicine for underserved patient communities.
As the founder of To Cure a Rose Foundation, Everlum Bio, and Chrysalis Genetics, Casey is revolutionizing the way treatments for rare diseases are approached. In this conversation, he shares how his experiences as an artist helped him find innovative ways to connect, problem-solve, and advocate for change in biotech. Casey’s journey is a testament to the power of resilience, collaboration, and the unwavering love of a parent determined to make a difference.
Join us as Casey discusses his transition from music to medicine, the importance of collaboration in rare disease research, and how he’s working to create scalable solutions for patient communities that have been overlooked for far too long. This episode is an inspiring exploration of how passion and creativity can drive impact in even the most unexpected arenas.
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