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Ep. 50 - Peter Carbone Talks Rare Diseases: Exposing Gaps in Healthcare
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Explore the hidden world of rare diseases in this in-studio interview with biotech veteran Peter Carbone. With passion and clarity, Peter explains how rare conditions—often affecting fewer than 200,000 people each—shine a spotlight on the cracks in our healthcare system. He unpacks why patients face years of misdiagnosis, endless referrals, and costly treatments, and how the system continues to leave 1 in 10 Americans behind. Meredith and Peter examine the skyrocketing costs of orphan drugs, the impact of dwindling NIH funding, and the often-overlooked power of the patient voice in the diagnostic journey. Peter also introduces his RISE Leadership and Selling Frameworks—bold, strategic guides designed to help healthcare professionals become true advocates for rare disease patients. One emotional highlight: a family's heartbreaking loss that ultimately led to life-saving action for their daughter—proof that awareness can change everything. This episode is both an eye-opener and a call to action for anyone who cares about making healthcare more just, more human, and more effective.
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