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We Have “Gifted” Enough: Dr Krystal Tsosie on Indigenous Genomic Data Sovereignty and Righting the Wrongs of Extractive Precision Medicine Research

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Manage episode 431714610 series 3589912
Content provided by World Priivacy Forum and World Privacy Forum. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by World Priivacy Forum and World Privacy Forum or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://ppacc.player.fm/legal.

Dr Krystal Tsosie made what she calls a “hail mary” pass when she and colleagues pushed the genomic science research community to recognize that collection of genomic information from Indigenous peoples may not have offered much benefit to the Indigenous groups who contributed DNA -- and instead perpetuated stereotypes and other harms. Today, Dr. Tsosie is doing groundbreaking work in the field of indigenous genomic data, indigenous data sovereignty, and bioethics, not only from a scientific research and technology standpoint, but when it comes to advocating for meaningful representation and inclusion of indigenous peoples to ensure their interests are protected. Hear Dr Tsosie’s story in this eye-opening inaugural episode of Privacy on the Ground.

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10 episodes

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Manage episode 431714610 series 3589912
Content provided by World Priivacy Forum and World Privacy Forum. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by World Priivacy Forum and World Privacy Forum or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://ppacc.player.fm/legal.

Dr Krystal Tsosie made what she calls a “hail mary” pass when she and colleagues pushed the genomic science research community to recognize that collection of genomic information from Indigenous peoples may not have offered much benefit to the Indigenous groups who contributed DNA -- and instead perpetuated stereotypes and other harms. Today, Dr. Tsosie is doing groundbreaking work in the field of indigenous genomic data, indigenous data sovereignty, and bioethics, not only from a scientific research and technology standpoint, but when it comes to advocating for meaningful representation and inclusion of indigenous peoples to ensure their interests are protected. Hear Dr Tsosie’s story in this eye-opening inaugural episode of Privacy on the Ground.

  continue reading

10 episodes

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