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Episode 47: Caring for a Loved One with Charles Bonnet Syndrome: Jo Hill's Story
Manage episode 479180495 series 3607368
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In this episode of the Charles Bonnet Syndrome podcast, host Shaimond speaks with Jo Hill, who shares her experiences as a caregiver for her husband, Frankie. Frankie has been dealing with glaucoma for over 20 years and started experiencing CBS symptoms in December 2018. Jo discusses the challenges they faced, the path to discovering CBS through resources like Esme's Umbrella, and how they found support from Dr. Gary Cusick. She highlights the importance of patience, support groups, and finding activities that help manage symptoms. Additionally, Jo reflects on the role of family support and shares tips for other caregivers dealing with CBS.
Contact Jo at [email protected]
Contact me at [email protected]
For help with CBS call 1-704-389-0160
For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at [email protected]
For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email [email protected]
For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email [email protected].
For support or resources for CBS in Australia, please visit https://www.charlesbonnetsyndrome.org or email [email protected]
The Charles Bonnet Syndrome Podcast Merchandise
https://cbsyndromepodcast.com/merchandise
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