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Episode 49: Navigating Charles Bonnet Syndrome and Caregiving for Dementia
Manage episode 484606170 series 3607368
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In this episode of the 'Charles Bonnet Syndrome Podcast,' host Shaimond invites Karen Tan-Sy to share her experiences living with Charles Bonnet Syndrome (CBS) while caring for her mother with Dementia. Karen discusses the fluctuating nature of her eye condition, dealing with multiple diagnoses including Sjogren’s Syndrome, and the mental and physical challenges she faces daily. The conversation delves into how she initially mistook her hallucinations for supernatural occurrences, leading to her CBS diagnosis. Karen also speaks about the delicate balance of managing her own treatments, medications, and doctor's visits while being a 24/7 caregiver. Additionally, the episode highlights the importance of support groups like Dr. Gary Cusick's weekly CBS group, coping strategies for CBS, and the value of external support systems. Karen's story is one of resilience, highlighting the importance of taking life 'one moment at a time' amidst life's complexities.
Contact Karen at [email protected]
Contact me at [email protected]
For help with CBS call 1-704-389-0160
For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at [email protected]
For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email [email protected]
For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email [email protected].
For support or resources for CBS in Australia, please visit https://www.charlesbonnetsyndrome.org or email [email protected]
The Charles Bonnet Syndrome Podcast Merchandise
https://cbsyndromepodcast.com/merchandise
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