Episode 381: Measuring Your MS Disease Status? There's an Evidence-Based App for That! with Dr. Charisse Lichtman

RealTalk MS

There's an alarming shortage of neurologists in the United States. That shortage makes it hard to be seen by a neurologist and, in some regions of the U.S., you may not even find an MS specialist without having to travel hundreds of miles. The good news is now there's an app for that!

Joining me to talk about how an app called BeCare is already changing the game when it comes to MS care is the Chief Medical Officer of BeCareLink, Dr. Charisse Litchman.

The FDA has designated Tolebrutinib as a Breakthrough Therapy for the treatment of adults with non-relapsing secondary progressive MS. We're sharing the details.

We'll tell you where you can participate in a phase 2 clinical trial that's designed to test the efficacy of Foralumab, an investigational disease-modifying therapy formulated as a nasal spray, among adults with non-relapsing secondary progressive MS.

We'll share the details of a report that provides some frustrating data about out-of-pocket costs for MS prescription medications.

Dr. Alicyn Magruder reviews the risks and benefits of using off-label medications to manage MS.

And we'll share the results of a study that focused on how socioeconomic status impacts disease severity among kids and teens living with MS.

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: An app that can tell you if your MS is worsening :22

FDA awards Tolebrutinib Breakthrough Therapy designation 1:04

Phase 2 clinical trial for Foralumab adds 6 additional sites 3:13

Study compares out-of-pocket costs of MS DMTs with meds for other neurologic conditions 5:55

Dr. Alicyn Magruder discusses using off-label medications to manage MS 9:51

Study analyzes the impact of socioeconomic status on disease severity in pediatric-onset MS 15:27

Dr. Charisse Lichtman explains how the BeCare MS app is changing the game and providing an important bridge to better MS care 19:52

Share this episode 30:53

Have you downloaded the free RealTalk MS app? 31:13

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LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

RealTalk MS on YouTube https://www.msif.org/webcast-clinical-trials

CLINICAL TRIAL: A Study of Nasal Foralumab in Non-Active Secondary Progressive Multiple Sclerosis Patients https://clinicaltrials.gov/study/NCT06292923

STUDY: Costs Are Still On the Rise for Commonly Prescribed Branded Neurologic Medications https://neurology.org/doi/10.1212/WNL.0000000000210029

STUDY: Association of Social Determinants of Health with Brain MRI Outcomes in Individuals with Pediatric Onset Multiple Sclerosis https://neurology.org/doi/10.1212/WNL.0000000000210140

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RealTalk MS Episode 381 Guests: Dr. Alicyn Magruder, Dr. Charisse Litchman

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