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Episode 387: Inside the TEAAMS Study with Ashli and Victoria

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Manage episode 484583418 series 3667542
Content provided by Jon Strum. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Jon Strum or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://ppacc.player.fm/legal.
The TEAAMS study examines the effects of a remotely delivered, racially-tailored exercise training program among African-Americans with MS, who are living in low-income areas of the Southeastern United States, which is a part of the country that doesn't have many primary care or MS clinics that provide full exercise and rehabilitation services for patients with MS.

Ashli, who lives with MS and has completed the TEAAMS program, and Victoria, a behavioral coach who has worked with several study participants, join me this week to share their experiences in the study.

We're also talking about a new Phase1/2 clinical trial for another investigative CAR-T therapy. (And we'll explain what a Phase 1/2 trial is)

We'll tell you about TG Therapeutics' plans for Briumvi, as well as their investigative CAR-T therapy.

We'll tell you about the Phase 2 clinical trial for Contineum Therapeutics' oral remyelination therapy.

We'll share the details of a study that shows ballroom dancing delivers both physical and psychological benefits to people with MS.

We'll share some potentially good news about managing MS-related fatigue.

And we'll give you a new opportunity to participate in MS research.

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: Inside the TEAAMS study :22

Cabaletta Bio announces Phase 1/2 trial for CAR-T therapy 1:45

TG Therapeutics will develop an injectable formulation for Briumvi 5:45

Contineum Therapeutics completes recruitment for Phase 2 trial for an oral remyelination therapy 7:52

Study shows that ballroom dancing delivers physical and psychological benefits for people with MS 9:05

Study shows that Elevida, an online German fatigue intervention, significantly reduces MS-related fatigue 11:32

Ashli and Victoria share their experience in the TEAAMS study 15:37

Share this episode 32:57

Have you downloaded the free RealTalk MS app? 33:17

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/387

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

RealTalk MS on YouTube https://www.youtube.com/@RealTalkMS

STUDY: Ballroom Dancing for People with Multiple Sclerosis: Perceptions of the Experience https://meridian.allenpress.com/ijmsc/article/26/Q4/355/504470/Ballroom-Dancing-for-People-With-Multiple

PARTICIPATE IN MS RESEARCH: Targeted Exercise for African-Americans with Multiple Sclerosis (TEAAMS) https://projectteaams.ahs.uic.edu/

PARTICIPATE IN MS RESEARCH: Confirmatory Trial for Alleviating Fatigue in MS (CAFE-MS)https://cafems.iconquerms.org/

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 387 Guests: Ashli and Victoria

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453 episodes

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Manage episode 484583418 series 3667542
Content provided by Jon Strum. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Jon Strum or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://ppacc.player.fm/legal.
The TEAAMS study examines the effects of a remotely delivered, racially-tailored exercise training program among African-Americans with MS, who are living in low-income areas of the Southeastern United States, which is a part of the country that doesn't have many primary care or MS clinics that provide full exercise and rehabilitation services for patients with MS.

Ashli, who lives with MS and has completed the TEAAMS program, and Victoria, a behavioral coach who has worked with several study participants, join me this week to share their experiences in the study.

We're also talking about a new Phase1/2 clinical trial for another investigative CAR-T therapy. (And we'll explain what a Phase 1/2 trial is)

We'll tell you about TG Therapeutics' plans for Briumvi, as well as their investigative CAR-T therapy.

We'll tell you about the Phase 2 clinical trial for Contineum Therapeutics' oral remyelination therapy.

We'll share the details of a study that shows ballroom dancing delivers both physical and psychological benefits to people with MS.

We'll share some potentially good news about managing MS-related fatigue.

And we'll give you a new opportunity to participate in MS research.

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: Inside the TEAAMS study :22

Cabaletta Bio announces Phase 1/2 trial for CAR-T therapy 1:45

TG Therapeutics will develop an injectable formulation for Briumvi 5:45

Contineum Therapeutics completes recruitment for Phase 2 trial for an oral remyelination therapy 7:52

Study shows that ballroom dancing delivers physical and psychological benefits for people with MS 9:05

Study shows that Elevida, an online German fatigue intervention, significantly reduces MS-related fatigue 11:32

Ashli and Victoria share their experience in the TEAAMS study 15:37

Share this episode 32:57

Have you downloaded the free RealTalk MS app? 33:17

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/387

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

RealTalk MS on YouTube https://www.youtube.com/@RealTalkMS

STUDY: Ballroom Dancing for People with Multiple Sclerosis: Perceptions of the Experience https://meridian.allenpress.com/ijmsc/article/26/Q4/355/504470/Ballroom-Dancing-for-People-With-Multiple

PARTICIPATE IN MS RESEARCH: Targeted Exercise for African-Americans with Multiple Sclerosis (TEAAMS) https://projectteaams.ahs.uic.edu/

PARTICIPATE IN MS RESEARCH: Confirmatory Trial for Alleviating Fatigue in MS (CAFE-MS)https://cafems.iconquerms.org/

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 387 Guests: Ashli and Victoria

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