We’ve all had a moment where we arrived at the grocery store and can’t remember passing any of the stoplights along the way. We’re halfway down an aisle and scrambling to remember what we even needed. Our mind is in overdrive trying to sort through our ever-growing to-do list. We’ve been there when just making it through the next task is hard. But the normal stresses of life aren’t the only thing YOU have to deal with. Nora McInerny hosts The Head Start: Embracing the Journey, a new podcast ...
…
continue reading
Content provided by Hosted by Helen Bauer, BSN RN CHPN, Hosted by Helen Bauer, and BSN RN CHPN. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Hosted by Helen Bauer, BSN RN CHPN, Hosted by Helen Bauer, and BSN RN CHPN or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://ppacc.player.fm/legal.
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The Remarkable Caregiving Story of Stanley and Allison Applebaum
Manage episode 452550555 series 2528844
Content provided by Hosted by Helen Bauer, BSN RN CHPN, Hosted by Helen Bauer, and BSN RN CHPN. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Hosted by Helen Bauer, BSN RN CHPN, Hosted by Helen Bauer, and BSN RN CHPN or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://ppacc.player.fm/legal.
Allison Applebaum stood by her dad Stanley as his caregiving partner, respecting his wishes and maintaining his quality of life through the very end of his life. Allison was previously the Founding Director of the Caregivers Clinic at Memorial Sloan Kettering Cancer Center, the first program of its kind in the United States to provide comprehensive psychosocial care to family members and friends of patients who are in the caregiving role.
Her father Stanley, a talented and prolific composer and musician, worked with many great artists for the 50’s and 60’s, including Neil Sedaka, Ben E. King, and Connie Francis.
Allison took a lead role as her dad’s caregiver after the death of her mother, helping him deal with Lewy Body Disease (Lewy Body Dementia). After her mother died, Allison and Stan went forward, dealing with intense and traumatic grief.
Allison’s caregiving story is a beautiful tribute to her dad, and there are many caregivers across the U.S. doing the same job for someone they care about. LBD carries an unusual set of caregiving challenges. Stan defined quality of life as the ability to be creative, grow, and continue to compose his music. As a caregiver, Allison respected his wishes and ensured he lived fully until his death at 96.
Some highlights from Allison’s unique caregiving story include:
- Her dad retained his creativity and this contributed greatly to his quality of life
- Stan never had a DNR (Do Not Rescucitate) document, and Allison respected that wish through his death
- Intermittent hallucinations were part of his disease, a great source of pain for both Stan and his daughter.
- Allison considered them partners in caregiving, and worked to build a caregiving village customized to her dad’s needs.
Connect with Dr. Allison Applebaum:
Website: allisonapplebaum.com
Book: Stand By Me: A Guide to Navigating Modern, Meaningful Caregiving
Interested in purchasing a GrandPad to stay connected with a senior loved one?
Get more information at https://www.grandpad.net/thoh.
GrandPad website: https://www.grandpad.net/
Social Media for GrandPad
https://instagram.com/grandpad_social/
https://www.linkedin.com/company/grandpad
https://www.youtube.com/channel/UCuFAJCb7_tTneM_ikABq08Q
Hospice Navigation Services is here for you. If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.
Connect with The Heart of Hospice Podcast and host Helen Bauer
Website: theheartofhospice.com
Email: [email protected]
More podcast episodes: The Heart of Hospice Podcast
570 episodes
Share
Manage episode 452550555 series 2528844
Content provided by Hosted by Helen Bauer, BSN RN CHPN, Hosted by Helen Bauer, and BSN RN CHPN. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Hosted by Helen Bauer, BSN RN CHPN, Hosted by Helen Bauer, and BSN RN CHPN or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://ppacc.player.fm/legal.
Allison Applebaum stood by her dad Stanley as his caregiving partner, respecting his wishes and maintaining his quality of life through the very end of his life. Allison was previously the Founding Director of the Caregivers Clinic at Memorial Sloan Kettering Cancer Center, the first program of its kind in the United States to provide comprehensive psychosocial care to family members and friends of patients who are in the caregiving role.
Her father Stanley, a talented and prolific composer and musician, worked with many great artists for the 50’s and 60’s, including Neil Sedaka, Ben E. King, and Connie Francis.
Allison took a lead role as her dad’s caregiver after the death of her mother, helping him deal with Lewy Body Disease (Lewy Body Dementia). After her mother died, Allison and Stan went forward, dealing with intense and traumatic grief.
Allison’s caregiving story is a beautiful tribute to her dad, and there are many caregivers across the U.S. doing the same job for someone they care about. LBD carries an unusual set of caregiving challenges. Stan defined quality of life as the ability to be creative, grow, and continue to compose his music. As a caregiver, Allison respected his wishes and ensured he lived fully until his death at 96.
Some highlights from Allison’s unique caregiving story include:
- Her dad retained his creativity and this contributed greatly to his quality of life
- Stan never had a DNR (Do Not Rescucitate) document, and Allison respected that wish through his death
- Intermittent hallucinations were part of his disease, a great source of pain for both Stan and his daughter.
- Allison considered them partners in caregiving, and worked to build a caregiving village customized to her dad’s needs.
Connect with Dr. Allison Applebaum:
Website: allisonapplebaum.com
Book: Stand By Me: A Guide to Navigating Modern, Meaningful Caregiving
Interested in purchasing a GrandPad to stay connected with a senior loved one?
Get more information at https://www.grandpad.net/thoh.
GrandPad website: https://www.grandpad.net/
Social Media for GrandPad
https://instagram.com/grandpad_social/
https://www.linkedin.com/company/grandpad
https://www.youtube.com/channel/UCuFAJCb7_tTneM_ikABq08Q
Hospice Navigation Services is here for you. If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.
Connect with The Heart of Hospice Podcast and host Helen Bauer
Website: theheartofhospice.com
Email: [email protected]
More podcast episodes: The Heart of Hospice Podcast
570 episodes
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Similar to The Heart of Hospice Podcast
We’ve all had a moment where we arrived at the grocery store and can’t remember passing any of the stoplights along the way. We’re halfway down an aisle and scrambling to remember what we even needed. Our mind is in overdrive trying to sort through our ever-growing to-do list. We’ve been there when just making it through the next task is hard. But the normal stresses of life aren’t the only thing YOU have to deal with. Nora McInerny hosts The Head Start: Embracing the Journey, a new podcast ...
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Jim Bacarro and Saab Magalona started one of the first local podcasts back in 2018. From debates about trashy reality shows to talking about the importance of voter registration, they have cultivated quite an engaged community who have dubbed them their /podparents/. Jim and Saab may be the ones doing the talking but they definitely make their listeners feel heard.
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A call-in show from author Nora McInerny that lets real people get real honest about how they're really doing. Operators(me) are standing by to take your calls. In case you didn't know, we're still making episodes that are available exclusively on Nora's Substack!
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A top podcast for healthcare leaders, with over one million downloads, Radio Advisory is your weekly download on how to untangle the industry's most pressing challenges to help leaders like you make the best business decisions for your organization. From unpacking major trends in care delivery—like site-of-care shifts and the rise of high-cost drugs—to demystifying stakeholder dynamics, to shining a spotlight on priorities that may get overlooked, we're here to help. Our hosts and seasoned r ...
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continue reading
Imperfect Paradise is an award-winning weekly narrative podcast showcasing California stories with universal significance, hosted by Antonia Cereijido. Each deeply reported story is driven by characters who illuminate aspects of American identity and underscore California's reputation as a home for dreamers and schemers, its heartbreaking inequality, its varied and diverse communities, its unique combination of dense cities and wild places. New episodes premiere Wednesdays, with broadcasts o ...
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continue reading
Love is more than you think. From the creators of Criminal. New episodes twice a month. Part of the Vox Media Podcast Network.
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continue reading
The American healthcare system is one of the most innovative in the world. But it’s also riddled with complex challenges, such as access to affordable medications, inefficiency and administrative burdens, and communication barriers between providers. There’s clearly a better way—and at Surescripts, we have a unique sightline into what that may be. In this series, host Melanie Marcus, Chief Marketing Officer of Surescripts, sits down with today’s most inspiring and innovative leaders in healt ...
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