06 How to Keep It Together when it's all falling apart

Tips and Tricks on How to Be Sick

#Advice #Chronicillness #Chronicpain #Crip #Pain #Sick #Spoonie #Fitness #Eirenne #Disability #Health and Well-Being #Podcasting Education

24:10

Does your AI-based interface talk to customers the way a real person would or is it tech for tech’s sake? We are here at Forrester CX in Nashville, TN and hearing all about the latest insights and ideas for brands to create better experiences for their customers. Agility is less about bolting on new features just because the tech is available and more about making tomorrow’s experiences feel intuitive and natural to the end customer using them. Today we’re diving into designing for the future of experiences with AJ Joplin, Senior Analyst at Forrester. About AJ Joplin AJ is the lead analyst for Forrester’s research on experience design (XD), design organizations, and design leadership. Helping XD and customer experience (CX) leaders develop and deliver on research-based strategy is AJ’s professional passion. She has observed that the most effective organizations combine clear purpose with the right people and leverage systems to clarify decision-making, prioritization, and workflows. AJ also has years of workshop facilitation experience in human-centered design and design thinking. Using her professional coaching skills, AJ bring clients through ambiguity and into alignment on what matters and what’s next. Resources Forrester: https://www.forrester.com https://www.forrester.com Catch the future of e-commerce at eTail Boston, August 11-14, 2025. Register now: https://bit.ly/etailboston and use code PARTNER20 for 20% off for retailers and brands Don't Miss MAICON 2025, October 14-16 in Cleveland - the event bringing together the brights minds and leading voices in AI. Use Code AGILE150 for $150 off registration. Go here to register: https://bit.ly/agile150 " Connect with Greg on LinkedIn: https://www.linkedin.com/in/gregkihlstrom Don't miss a thing: get the latest episodes, sign up for our newsletter and more: https://www.theagilebrand.show Check out The Agile Brand Guide website with articles, insights, and Martechipedia, the wiki for marketing technology: https://www.agilebrandguide.com The Agile Brand is produced by Missing Link—a Latina-owned strategy-driven, creatively fueled production co-op. From ideation to creation, they craft human connections through intelligent, engaging and informative content. https://www.missinglink.company…

7 years ago 17:55

MP3•Episode home

In this episode, we are going to be talking about keeping it together. Yes, in the sense of mentally and emotionally weathering life and the world around you, but also (and more specifically) keeping up with all the little changes that happen when a new chronic illness diagnosis or disability happens. You start with problem X, but that leads to some new symptoms that could be problem Y, and so you get sent to a new specialist who sends you for new kinds of tests, or gives you a new medication to try. And then, the medication might have a side effect that you need to control, so that’s more doctors and maybe additional treatments — where does it end? Before you know it, it feels like your life is both a) falling apart and b) completely subsumed by this new diagnosis, like a giant octopus wrapping its tentacles around everything. Please see for a full transcript of this podcast.

12 episodes

06 How to Keep It Together when it's all falling apart

Tips and Tricks on How to Be Sick

27 subscribers

published 7 years ago

MP3•Episode home

12 episodes

#Advice #Chronicillness #Chronicpain #Crip #Pain #Sick #Spoonie #Fitness #Eirenne #Disability #Health and Well-Being #Podcasting Education

All episodes

1
02-02 Depression and Suicidality 52:08

5 years ago52:08

52:08

This month we’re going to talk about some heavy stuff that a lot of us experience, especially during the holiday season: we’re going to talk with musician Amy McNally about ways she copes with depression and suicidal ideation, both with formal medical and psychological treatment and in ways she deals with it apart from that. Click through for links to resources on dealing with depression and suicidal thoughts. Musical excerpts copyright Amy McNally, used with permission. Please see for a full transcript of this podcast.…

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02-01 We're back for Season 2! Administrative notes on our hiatus and then we talk dysautonomia 39:33

5 years ago39:33

39:33

In honor of Dysautonomia Awareness Month, we’re going to discuss dysautonomia and the ways it can present in different people, both on its own and in conjunction with other disorders. What is dysautonomia? Well, it’s a dysfunction of the autonomic nervous system, which tells you nothing unless you know a little bit about how the autonomic nervous system functions and what it does in the body. So let’s take this in two parts - what the autonomic nervous system does, and what things happen when it doesn’t do its job correctly. Please see for a full transcript of this podcast.…

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08 TBI and everything after - a conversation with Cheryl Green 45:55

7 years ago45:55

45:55

What I would like to see is, at the same time that you’re going through rehab, that you’re getting constant reinforcement that it is OK to be a person with a disability or with an impairment. It is not embarrassing to ask for help. You are not a burden if you need something, ever. And what disabled people need is not special. You don’t have special needs, you’re not a ‘special person’ - you are a person who has a specific need around your disability, and maybe that need will change, maybe you’ll continue to rehab and you won’t need that thing anymore. ... Like, we hate these signs of impairment so much, and even mobility aids, and we lust for normalcy to this degree that if you’re not getting better at a really fast trajectory, it’s easy to hate yourself. Please see for a full transcript of this podcast.…

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07 Teletherapy - what it is and how it can help 28:09

7 years ago28:09

28:09

We are going to be talking about mental health, why therapy could be helpful to anyone — mental health diagnosis or not — and ways to make therapy more accessible to people with disabilities. For this, the interview will be with a clinical psychologist who, in the interests of full disclosure, I will tell you now has been my closest friend for almost 25 years, Dr. Erica Essary, Psy.D. Please see for a full transcript of this podcast.…

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Unplanned hiatus and an apology 3:40

7 years ago3:40

3:40

This isn’t an episode of the podcast, not really. This is more of a side note and an apology for an unplanned three month hiatus. Please see for a full transcript of this podcast.

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06 How to Keep It Together when it's all falling apart 17:55

7 years ago17:55

17:55

1
05 Ehlers-Danlos Syndrome - quick tips with Eir and Laura 21:21

7 years ago21:21

21:21

In this episode, we are going to be talking about Ehlers-Danlos Syndrome, or EDS. There are many types of EDS, but they are considered to be the same family of disorders because they all stem from the same cause: improperly made collagen in the body. Collagen is a protein that forms the latticework that everything in the body gets built upon, but it’s not all the same. There’s 28 different type of collagen across several different genes, and each one has a different effect if there’s an error in the genetic code, resulting in a wide range of possible symptoms for people with some form of EDS. We'll talk about some of the most common symptoms and our top tips and tricks on coping with them. Please see for a full transcript of this podcast.…

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04 Autism - including interviews with an #ActuallyAutistic adult and a licensed therapist 38:58

7 years ago38:58

38:58

In this episode, we are going to be talking about autism, also called Autism Spectrum Disorder (ASD), and what it’s like to realize, as an adult, that not only are you non-neurotypical but that you are, in fact, autistic. Includes interviews with an #ActuallyAutistic man diagnosed as an adult, and a clinical therapist who gives some insight into the diagnostic process. Please see for a full transcript of this podcast.…

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03 ME/CFS and an interview with filmmaker Jen Brea 27:48

7 years ago27:48

27:48

In this episode, we have a special guest: we are going to be talking with filmmaker Jen Brea. Jen has ME/CFS, and while making a documentary about the progress of her condition from first symptoms through diagnosis and beyond, she did most of that work from her bed. Please see for a full transcript of this podcast.…

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02 Sleep - how to do it once chronic illness changes everything 17:45

7 years ago17:45

17:45

In this episode, we’re going to discuss a thing we all have to do, but that some of us have real trouble with once our chronic illnesses or disabilities change everything: sleeping. Please see for a full transcript of this episode.

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01 Adaptive Coping Mechanisms 7:51

8 years ago7:51

7:51

Finding the little ways you can adjust your life to make it easier to cope with new illnesses or disabilities. Please see for a full transcript of this podcast.

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00 introduction 4:12

8 years ago4:12