Two Paths, One Purpose: Lupus Journeys and the Power of Research

Voices of Inclusive Research

“It might take me out, but it's gonna have to chase me down to do it.” – Shanell Matlock

In this episode of Voices of Inclusive Research, Dr. Renarda Jones sits down with Emmitt Henderson III — founder of Male Lupus Warriors — and Shanell Matlock, his partner and fellow advocate. Together, they open up about the raw realities of living with chronic illness, navigating kidney failure, and learning how to love, support, and grow through the chaos.

Emmitt shares how lupus transformed his life and how clinical trials became part of his healing and survival. Shannell brings insight as both a partner and a patient herself, offering a layered perspective on caretaking, communication, and mental health.

From near-death experiences to advocacy work, they shed light on what it means to fight and not just for survival, but for joy, purpose, and representation.

🎧 Tune in for an honest, emotional, and uplifting conversation about illness, identity, and the power of being seen and heard in research spaces.

Must-Hear Insights and Key Moments

• Clinical Trials Saved My Life – How participating in a clinical trial gave a second chance and why diversity in research participation is critical for discovering what works for different bodies and backgrounds.
• Representation Matters in Research – Greater inclusion of minority men in clinical studies and urges researchers and pharmaceutical companies to do more to engage underserved communities with intention and respect.
• Love in the Time of Kidney Failure – Personal look at how chronic illness affects relationships, communication, and emotional vulnerability.
• "It’s Okay to Not Be Okay" – The emotional toll of illness, and how support systems, from advocacy groups to romantic partners can make all the difference.
• Worth the Fight – Invite listeners to claim their own value, seek support, and keep pushing forward.

Words of Wisdom: Standout Quotes from This Episode

1. “It might take me out, but it's gonna have to chase me down to do it.” – Shanell Matlock
2. “We're the same, but we're different.” – Emmitt Henderson III
3. “It's okay to not be okay. You're stronger than what you're going through. But you have to pull that out from inside of you.” – Emmitt Henderson III
4. “I can’t say I’m scared of his illness. I have one too. What do I look like judging him for what I live with myself?” – Shanell Matlock
5. “Let’s not just accept the diagnosis. Let’s fight. We’re worth the fight.” – Dr. Renarda Jones

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We Want to Hear Your Voice!

Your insights on how inclusive research impacts your life and community are invaluable. Share your experiences and thoughts on how we can bridge the gap between research and real-world needs. Your stories drive our mission and inspire the future of inclusive research!

Chapters

1. Introduction to the Podcast and Guests (00:00:00)

2. Shanell's Journey with Lupus (00:02:40)

3. Shanell's Advocacy and Mental Health (00:06:43)

4. Emmitt's Early Symptoms and Diagnosis (00:13:43)

5. Emmitt's Struggles and Triumphs (00:23:38)

6. Meeting and Advocacy Together (00:32:22)

7. Connecting Through Shared Experiences (00:33:35)

8. Challenges of Living with Lupus (00:33:47)

9. Advocacy and Awareness in Africa (00:35:09)

10. Health Struggles and Natural Remedies (00:36:51)

11. The Journey of Kidney Failure (00:38:13)

12. The Importance of Advocacy and Support (00:42:30)