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76: When the System Fails to Hear You
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What happens when advocacy is met with silence?
In Episode 76 of Wellbeing Interrupted, I reflect on how emotionally draining it can be when we share our stories, speak up for what matters—and are met with silence.
Following the powerful conversations in Episodes 74 and 75 about the NDIS pricing changes, I share how I’ve been feeling flat. The silence from decision-makers has been deafening, especially when participants and practitioners are being so open about the real-life impact of these cuts.
I talk about the emotional toll of advocacy, what it means to fight to stay well, and why we can’t afford to give up—even when the system makes it harder. This episode is for anyone who’s felt invisible, unheard, or exhausted by having to keep pivoting just to maintain their health and independence.
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KEY EPISODE TAKEAWAYS
- Advocacy can be energising—but when ignored, it’s deeply deflating.
- Acknowledgment is powerful. When someone shares their story, listen—and learn.
- Allied Health services are essential to living well, not optional extras.
- NDIS price changes are forcing participants and practitioners into impossible choices.
- When support is blocked, the system risks pushing people toward relapse and hospitalisation.
- We must keep speaking up, sharing our stories, and finding new ways to care for ourselves.
SHOW RESOURCES
- Sign the petition: https://www.itsnowornever.com.au
- Listen to Episode 74: Giarne Ashby on how these changes affect participants and providers
- Listen to Episode 75: Jarrod Sandell-Hay on lived experience and life-or-death realities
- Listen to Episode 34: How Allied Health transformed my recovery from muscle tension dysphonia
- Listen to Episode 37: Jeanie’s story and the emotional cost of being denied access to treatment
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Don't forget to Follow Wellbeing Interrupted on your favourite podcast platform.
Always remember to thrive after a life-changing diagnosis... Your Mindset is Everything!
Learn more about the Hurdle2Hope® Roadmap by watching the Mindset Masterclass Reclaim Your Life. It's available now on-demand.
Podcast Website http://www.wellbeinginterrupted.com/
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