What Doesn’t Kill Me - Episode 1 - Frank Nolan On Psoriatic Arthritis And Gout 4K What Doesn’t Kill Me... podcast

24:14

Part 2 of holistic nurse practitioner Marla Ririe sharing her empowering journey from brokenness to wholeness. Suffering from Hypermobile Ehlers Danlos, chronic migraines, POTS, MCAS and psoriatic arthritis Marla fought back and reclaimed her life. In part 2 Marla shares her journey and the specific changes she made to her life to go from pain and fatigue levels of an 8-10 down to a 1-2 today. Her emotional and difficult journey is filled with great advice and information which may be helpful in your healing journey.…

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What Doesn’t Kill Me - Episode 8 - Part 1 - Marla Ririe From Brokenness to Health 26:21

45 weeks ago26:21

26:21

Holistic nurse practitioner Marla Ririe shares your empowering journey from brokenness to wholeness. Suffering from Hypermobile Ehlers Danlos, chronic migraines, POTS, MCAS and psoriatic arthritis Marla fought back and reclaimed her life. In this 3 part series Marla shares her journey and the changes she made to her life to go from pain and fatigue levels of an 8-10 down to a 1-2 today. Her emotional and difficult journey is filled with great advice and information which may be helpful in your healing journey.…

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What Doesn’t Kill Me - Episode 7 - Heather Gibson on Fibromyalgia and Migraines 1080p 1:11:23

51 weeks ago1:11:23

1:11:23

Heather suffers from both fibromyalgia and migraines. She gives us a very personal and enlightening interview on how she has been able to live a full life in spite of both chronic pain conditions. This interview is filled with great advice, many examples of how to advocate for yourself as a patient and insights into alternative treatments.…

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What Doesn’t Kill Me - Episode 5 Connie Colon on Parkinson’s Disease HD 1080p 1:03:27

1 year ago1:03:27

1:03:27

Parkinson's disease a neurodegenerative disease that impacts the part of the brain that produces dopamine which causes a vast array of symptoms such as tremors, involuntary movements, stiffness, pain, balance problems, memory loss and cognitive problems. Connie shares her early onset journey with Parkinson's all while offering advice, guidance and hope. 00:40 Insights offered for this episode. 01:04 Who is Connie Colon? 05:22 What is Parkinson's Disease? 06:00 Invisible symptoms 10:58 Who are the specialists to see for Parkinson's? 15:50 What are the many visible and invisible symptoms? 23:40 Highlight on the invisible symptoms 23:42 Online classes offered free by Parkinson's Place 24:20 Pain is amplified by Parkinson's. 26:38 More symptoms along with the differences between support group vs Facebook groups 32:24 The importance of modifications and adaptations. 34:40 Foods known to improve Dopamine levels 38:56 Treatments that have helped Connie. 41:03 Prescription assistance programs, the PAN41 program 48:38 Importance of asking for support and help 49:40 The stereotypes to be aware of and what not to say to patients. 54:12 Best advice from Connie 59:20 What doesn't kill me - Connie's response…

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What Doesn’t Kill Me - Episode 2 Jen Blaustein on Crohn’s disease 4K 43:15

1 year ago43:15

43:15

Jennifer shares her incredible journey with Crohn's disease and Rheumatoid Arthritis. She was diagnosed when she was 11 years old with debilitating Crohn's disease. At 19 she had very serious surgery which was life changing . 00:00 introduction 00:37 Jen's 6 Episode Insights 01:50 Who is Jennifer 01:45 What is Crohn's disease, her symptoms, surgeries and her most life changing surgery an ileostomy, her secondary autoimmune disease is Rheumatoid Arthritis, J Pouch surgery 06:27 The differences between Colitis and Crohn's disease 08:06 What exactly is an ileostomy and why they are not to be feared 08:38 How the ileostomy changed her life for the better 10:09 Diet and her Crohn's disease 13:14 How Jen's identity and her sense of self has changed since her diagnosis 16:35 The role shame plays in our lives as we navigate our illness 18:49 What should people that love and support us refrain from saying and what is ok to say 23:14 Chronic pain is a thief that takes so much away. What has she lost, what has she gained? 27:39 Medications like Gabapentin help her nerve pain yet there are many medicines she can't take for pain due the negative interactions with her Crohn's 30:02 The importance of a good mental health team and chronic pain 31:30 Medical Marijuana for pain control 32:18 The importance of humor in Jen's life 35:58 Jen offers advice for the newly diagnosed, self advocacy, finding the right doctor, taking a person with you to big appointments 37:48 Jen finishes the statement "What Doesn't Kill Me"…

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What Doesn’t Kill Me - Episode 4 - Kelly Kean on Pudendal Neuropathy 4K 1:09:39

1 year ago1:09:39

1:09:39

Kelly shares her personal story of suffering with Pudendal Neuropathy. A condition that causes chronic pelvic pain due to damage or irritation to your pudendal nerve. The pain is a burning, stabbing or shooting type pain which can be felt in your buttocks, perineum and genital region. It is more severe when sitting. 00:00 Podcast Intro 00:38 Kelly's Episode Insights 01:46 Who is Kelly Kean, what is here background 04:53 Kelly explains Pudendal Neuropathy 16:11 Successful surgical and medication options 31:13 Successful alternative treatment options and coping skills 28:53 Newest research and treatments for nerve pain 42:40 Redefining success in your life 42:55 What is the best way to ask for help from family and friends 47:30 What not to say to Kelly regarding her pain 55:28 What Kelly motivated 57:31 The biggest lessons she's learned about herself as a result of this pain 01:37 Advice she wish someone had given her when she was first diagnosed Links associated with this episode, copy into your browser- https://www.sciencedaily.com/releases/2024/02/240205165844.htm https://pure.johnshopkins.edu/en/publications/a-definition-of-neuromodulation-and-classification-of-implantable https://www.hopkinsmedicine.org/news/articles/2019/01/understanding-neuromodulation…

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What Doesn’t Kill Me - Episode 3 - Meg Q. on Rheumatoid Arthritis Podcast Interview HD 1080p 46:47

1 year ago46:47

46:47

Meg Quinlisk offers up her insights into living 45 years with Rheumatoid Arthritis and her changing chronic pain. She shares the major learning milestones in her journey, her "ah ha" moments and the many lessons that led her to acceptance and hope. 00:00 Podcast Intro 01:30 Seven Podcast Insights 03:00 Who is Meg Quinlisk 09:59 Pain forces change in every part of you 10:19 Chronic pain changes you biologically, physically and mentally 16:03 Shrinking and expanding your world 25:30 Balancing acceptance with hope 32:20 Everything happens for a reason versus finding reason in your suffering 42:55 A detailed description of horrific pain 43:53 Your scars and the lessons you have learned from chronic pain don't leave you. They stay to offer you strength and resilience…

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What Doesn’t Kill Me - Episode 1 - Frank Nolan on psoriatic arthritis and gout 4K 31:40

1 year ago31:40