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Alan Thomas is a patient engagement advocate for rare diseases in general and Ataxia
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Alan Thomas is a patient engagement advocate for rare diseases in general and Ataxia in particular. He is known as the 'rare disease warrior' and, as a patient with a 'life-limiting' rare disease, he can convey the patient engagement message from his point of view in all issues regarding the wellbeing of patients.Alan has established a patient-driven and focused group and campaigns at many levels, including patient forums, local and regional health boards, Welsh/UK government organisations, as well as taking part in many global conferences, in person or via the internet.
iTunes
https://itunes.apple.com/us/podcast/know-ataxia-ataxia/id1312495222?mt
SoundCloud
https://soundcloud.com/user-536040137-843024175
Facebook
https://www.facebook.com/ataxiadidyouknow/
Website
http://www.rideforjohn.org/
Instagram
https://www.instagram.com/ataxian_/
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