Download the App!
show episodes
 
Artwork

1
Immune Deficiency Foundation

Immune Deficiency Foundation

icon
Unsubscribe
icon
icon
Unsubscribe
icon
Monthly
 
This podcast is a service of the Immune Deficiency Foundation — a nonprofit organization dedicated to improving the diagnosis, treatment, and quality of life of people diagnosed with primary immunodeficiency, or PI. "Bold Conversations" is a program that explores the harsh realities of health access in the United States. Hosted by Dr. Nicole Rochester. "Undiagnosed" is a narrative docuseries on that tells the true stories of PI patients and their long journeys to proper diagnosis and treatme ...
  continue reading
 
Tara West is a passionate Functional Nutritionist dedicated to transforming lives through the power of nutrition biohacking and longevity science. With an extensive background in functional nutrition and a relentless curiosity for cutting-edge nutritional research, Tara has become a trusted expert in optimizing health and enhancing vitality. Her holistic approach integrates personalized nutrition strategies, innovative biohacking techniques, and a deep understanding of the body's intricate s ...
  continue reading
 
Artwork
 
As peer-to-peer fundraising professionals, we are inherently passionate people. Passionate about our missions, our fundraisers, our events, and our campaigns. We barely shy away from sharing our opinions. Whether it's the debate between back-to-basics, or searching for the next big idea, the battle of retention versus recruitment, or even our very strong feelings about T-shirts and registration fees. Welcome to The P2P box, a brand new podcast that amplifies the voices of our peer-to-peer fu ...
  continue reading
 
Loading …
show series
 
The Peptique is LIVE! Go to https://thepeptique.com/ to get all your research peptides .As a loyal listener use the discount code POD15 to get 15% off our entire line of products. Have questions? Feel free to reach out to me: [email protected] Want to get started the right way, but don't know where to start. Email me tarawest@westwellnes…
  continue reading
 
Transcript: https://primaryimmune.org/sites/default/files/TRANSCRIPT%20Bold%20Conversations%20-%20Misinformation.pdfCynthia Baur, PhD, is a health literacy and health communication expert focused on improving health literacy at the individual, family, community and organizational levels. She directs the University of Maryland Horowitz Center for He…
  continue reading
 
Crisis fundraising operates on a different timeline than traditional campaigns. When disaster hits, organizations have a critical 24-hour window to mobilize resources and activate their networks. But what separates organizations that thrive in crisis from those that scramble? The difference lies in preparation—having systems, messages, and communit…
  continue reading
 
The Peptique is LIVE! Go to https://thepeptique.com/ to get all your research peptides .As a loyal listener use the discount code VIP10 to get 10% off our entire line of products. Have questions? Feel free to reach out to me: [email protected] Want to get started the right way, but don't know where to start. Email me tarawest@westwellnes…
  continue reading
 
Transcript: https://primaryimmune.org/sites/default/files/TRANSCRIPT%20Chronic%20Twenties%20Advocacy.pdfImmune Deficiency Foundation staff members Rebecca Russ (grassroots advocacy specialist) and Eric Feigen (regulatory affairs manager) provide insight on what advocacy is, its role in the greater PI community, and the power of young voices.Sign up…
  continue reading
 
Episode Links! The Peptique is LIVE! Go to https://thepeptique.com/ to get all your research peptides .As a loyal listener use the discount code POD15 at checkout to get 15% off! .Get 15% off Retatrutide with the code RETA15 Have questions? Feel free to reach out to me: [email protected] Follow me on instagram @westwellnessatx, @thepepti…
  continue reading
 
Episode Links! The Peptique is LIVE! Go to https://thepeptique.com/ to get all your research peptides .As a loyal listener use the discount code POD15 at checkout to get 15% off! Get Melanotan 1 for 40% use the discount code MELANO40, this is only good for a one time purchase and cannot be combined with any other discount codes. Have questions? Fee…
  continue reading
 
There's a fundamental difference between inheriting a well-oiled P2P machine and building one from scratch. When you're tasked with creating systems, culture and infrastructure that need to scale alongside explosive organizational growth, you're not just managing programs - you're architecting the future. But here's what most people don't realize: …
  continue reading
 
Episode Links! Get 15% off your NAD+ order. The peptique will launch next week, but in the meantime, you can email me at [email protected] and order NAD+ directly or wait until next week and order online at https://thepeptique.com/ . Use the discount code PODNAD15 at checkout! Are you interested in research theraputic peptides. Email me at t…
  continue reading
 
This program is presented with support from CSL Behring, Takeda, and Grifols.Read a transcript of this episode: file:///E:/2025/Podcasts/CEO%20Updates/Transcript%20-%20CEO%20Update%20June%2025.pdfImmune Deficiency Foundation CEO Jorey Berry discusses our new text message program, an upcoming Lunch & Learn, and an exciting new volunteer opportunity.…
  continue reading
 
In P2P fundraising, there can often be a disconnect between the excitement marketing generates and the direct recruitment strategies implemented by local field teams. The result? Frustrated participants, overwhelmed staff and missed opportunities to achieve participation goals and build lasting relationships with supporters. But what if marketing a…
  continue reading
 
Episode Links! Are you interested in research theraputic peptides. Email me at [email protected] or go to https://thepeptique.com/ and simply add your email. You will get VIP access and jump to the top of the list to get 10% off you first order as soon as we launch. Simply put "add me" in subject line. Feel free to email with any of your pep…
  continue reading
 
Episode Links! Are you interested in research theraputic peptides. Email me at [email protected] or go to https://thepeptique.com/ and simply add your email. You will get VIP access and jump to the top of the list to get 10% off you first order as soon as we launch. Simply put "add me" in subject line. Feel free to email with any of your pep…
  continue reading
 
Transcript: https://primaryimmune.org/sites/default/files/APDS%20Lunch%20and%20Learn%20transcript.pdfDr. Jolan Walter (University of South Florida, Johns Hopkins All Children's Hospital) provides an explanation of genetic variants in APDS.View a PDF of this presentation: https://primaryimmune.org/sites/default/files/FOR%20WEB%20APDS%20IDF%20Lunch%2…
  continue reading
 
Marketers love to throw around terms like “share of voice” and “share of wallet” - ways to track how much attention or spending a brand commands. But in peer-to-peer fundraising, there’s a different kind of share that matters more. Growing your “share of community” is about going deeper with the people closest to your cause - the ones who feel seen…
  continue reading
 
Episode Links! Are you interested in research theraputic peptides. Email me at [email protected] or go to https://thepeptique.com/ and simply add your email. You will get VIP access and jump to the top of the list to get 10% off you first order as soon as we launch. Simply put "add me" in subject line. Feel free to email with any of your pep…
  continue reading
 
Episode Links! Are you interested in research theraputic peptides. Email me at [email protected]. You will get VIP access and jump to the top of the list to get 10% off you first order as soon as we launch. Simply put "add me" in subject line. Feel free to email with any of your peptide questions. Purchase they highest medical grade quality …
  continue reading
 
Celebrity gossip magazines love to remind us: "Stars — they’re just like us!" And while the world of digital creators and streamers can feel like a distant universe, the truth is that these online personalities aren’t so different from the rest of us. As P2P fundraising increasingly intersects with the creator community, it’s easy to view streamers…
  continue reading
 
Episode Links! Are you interested in research theraputic peptides. Email me at [email protected]. You will jump to the top of the list to get 10% off you first order as soon as we launch. Simply put "add me" in subject line. Feel free to email with any of your peptide questions. Purchase they highest medical grade quality GHK-Cu topical seru…
  continue reading
 
In the early days of peer-to-peer fundraising events, one of the fastest ways to grow a program was to launch events in new markets. But many organizations scaled back over time, whether due to strategic shifts or limited resources. So what happens when it’s time to grow again? How do you evaluate new opportunities and ensure long-term success? Exp…
  continue reading
 
Transcript: https://primaryimmune.org/sites/default/files/Transcript%20Shaker.pdfDr. Marcus Shaker is a professor of pediatrics in medicine at Dartmouth's Geisel School of Medicine. On this episode of the Immune Deficiency Foundation podcast, he joined staff members Angie Kotarski, community resource navigator, and Stephanie Steele, director of pay…
  continue reading
 
In the P2P fundraising world, we often look to the spark of organic, supporter-led moments like the Ice Bucket Challenge as examples of what’s possible when passion meets purpose. But when lightning strikes, are you ready to catch it? This episode dives into one such moment: when four friends, Pat Morissey, Brendan Cusick, Peter Durso, and Scott Fo…
  continue reading
 
Transcript: https://primaryimmune.org/sites/default/files/Advocacy%20Day%20Training%20Transcript.pdfThis week, 150 advocates will represent the Immune Deficiency Foundation and the greater PI community on Capitol Hill in Washington, D.C. But what does that mean, exactly? Why is it important? And what are these volunteers responsible for? This episo…
  continue reading
 
Transcript: https://primaryimmune.org/sites/default/files/TRANSCRIPT%20Legislative%20webinar.pdfThis panel discussion features Immune Deficiency Foundation CEO Jorey Berry, as well as Chief Public Policy Officer Lynn Albizo, Community Resource Navigator Angie Kotarski, and Jodi Taub, owner of Jodi Taub Therapy, discuss the impact of recent federal …
  continue reading
 
https://primaryimmune.org/sites/default/files/Bold%20Conversations%203.2%20Transcript.pdfIn this session from the 2024 PI Conference in Chicago, Dr. Nicole gave a very vulnerable talk about her experiences navigating the healthcare system, both as a physician and as a caregiver for her father. To learn more, volunteer, or donate, visit primaryimmun…
  continue reading
 
West Wellness and Longevity Links Are you ready to make change but don't know where to start. Book a free 30 min consultation here.https://www.westwellnessatx.com/get-started Purchase the highest quality Hydrogen Water tabs on the market! Just the code WESTWELL or 10% off your orders! https://drinkh2tab.com/?ref=WESTWELL Purchase they highest medic…
  continue reading
 
In the early days of the P2P industry, most nonprofits concentrated on one tentpole P2P event—typically a walk or cycling program—which allowed them to align staffing, branding, and resources around a single, large-scale initiative, focusing on broad market appeal. However, as the industry has evolved, so too has the need to diversify offerings—bot…
  continue reading
 
West Wellness and Longevity Links Are you ready to make change but don't know where to start. Book a free 30 min consultation here.https://www.westwellnessatx.com/get-started Purchase they highest medical grade quality GHK-Cu topical serum at Vitali Skin care https://www.vitaliskincare.com/?ref=undrarql This is the most versatile Red Light Therapy …
  continue reading
 
Transcript: https://primaryimmune.org/sites/default/files/01PROOF%20transcription%20gene%20editing%20webinar.pdfView a PDF of this presentation: https://primaryimmune.org/sites/default/files/FOR%20WEB%20-%20Gene%20editing.pdfSusan Prockop, MD​ of Boston Children's Hospital and Harvard Medical School provides an overview and recent updates to gene t…
  continue reading
 
West Wellness and Longevity Links Are you ready to make change but don't know where to start. Book a free 30 min consultation here.https://www.westwellnessatx.com/get-started Purchase they highest medical grade quality GHK-Cu topical serum at Vitali Skin care https://www.vitaliskincare.com/?ref=undrarql This is the most versatile Red Light Therapy …
  continue reading
 
Transcript: https://primaryimmune.org/sites/default/files/FOR%20WEB%20Undiagnosed%20Ilana%20Transcript.pdfTikTok personality and author of "Medical Gaslighting" Ilana Jacqueline has captivates her curious followers with tips on navigating a hostile medical system. Unfortunately, her lessons are often things she's learned the hard way. Medical gasli…
  continue reading
 
West Wellness and Longevity Links Are you ready to make change but don't know where to start. Book a free 30 min consultation here.https://www.westwellnessatx.com/get-started Purchase the highest quality Hydrogen Water tabs on the market! Just the code WESTWELL or 10% off your orders! https://drinkh2tab.com/?ref=WESTWELL Have questions? Feel free t…
  continue reading
 
West Wellness and Longevity Links Are you ready to make change but don't know where to start. Book a free 30 min consultation here.https://www.westwellnessatx.com/get-started Purchase the highest quality Hydrogen Water tabs on the market! Just the code WESTWELL or 10% off your orders! https://drinkh2tab.com/?ref=WESTWELL Have questions? Feel free t…
  continue reading
 
West Wellness and Longevity Links Are you ready to make change but don't know where to start. Book a free 30 min consultation here.https://www.westwellnessatx.com/get-started Purchase the highest quality Hydrogen Water tabs on the market! Just the code WESTWELL or 10% off your orders! https://drinkh2tab.com/?ref=WESTWELL Grounding mat: use this lin…
  continue reading
 
Transcript: https://primaryimmune.org/sites/default/files/Cx20%201.1%20transcript.pdf.Immune Deficiency Foundation volunteers Riley and Nick discuss the complications and strategies that helped them transition from pediatric to adult care for their chronic illnesses.The information, terminology, and opinions presented in this forum do not necessari…
  continue reading
 
West Wellness and Longevity Links Are you ready to make change but don't know where to start. Book a free 30 min consultation here.https://www.westwellnessatx.com/get-started Purchase the highest quality Hydrogen Water tabs on the market! Just the code WESTWELL or 10% off your orders! https://drinkh2tab.com/?ref=WESTWELL For all the latest research…
  continue reading
 
Transcript: https://primaryimmune.org/sites/default/files/Bold%20Conversations%203.1%20Transcript.pdfJalisa Clark is a Research Fellow at the Center on Health Insurance Reforms (CHIR) at Georgetown University’s McCourt School of Public Policy. Today, she joins Dr. Nicole for a deep dive into inequitable health insurance practices in the U.S.The inf…
  continue reading
 
West Wellness and Longevity Links Are you ready to make change but don't know where to start. Book a free 30 min consultation here.https://www.westwellnessatx.com/get-started Have questions? Feel free to reach out to me at: [email protected] Follow me on instagram @westwellnessatx Today, we delve into the intricacies of a novel peptide k…
  continue reading
 
West Wellness and Longevity Links Are you ready to make change but don't know where to start. Book a free 30 min consultation here.https://www.westwellnessatx.com/get-started Have questions? Feel free to reach out to me at: [email protected] Follow me on instagram @westwellnessatx Methylation emerges as a pivotal biochemical process that…
  continue reading
 
West Wellness and Longevity Links Are you ready to make change but don't know where to start. Book a free 30 min consultation here.https://www.westwellnessatx.com/get-started Have questions? Feel free to reach out to me at: [email protected] Follow me on instagram @westwellnessatx Non- Toxic Cookware:https://www.greenpan.us/WESTWELLNESSA…
  continue reading
 
West Wellness and Longevity Links Are you ready to make change but don't know where to start. Book a free 30 min consultation here.https://www.westwellnessatx.com/get-started Get your own GHK-Cu Peptide here:https://www.vitaliskincare.com/?ref=undrarql Have questions? Feel free to reach out to me at: [email protected] Follow me on instag…
  continue reading
 
Welcome back! Today, we're diving into an exciting new compound called SLU PP332, or "Slupp," which has the potential to mimic the benefits of exercise at a cellular level, even when you're not physically active. Tara shares her personal journey with Slupp emphasizing its role as a possible enhancement to exercise rather than a replacement. She dis…
  continue reading
 
Transcript: https://primaryimmune.org/sites/default/files/Mental%20health%20tips.pdfBecky Lenning is the owner and clinical director of Yellow Lotus Clinical Services for Healing and Wellness, where she brings over fourteen years of clinical experience as a licensed professional counselor to her practice.To learn more, volunteer, or donate, visit p…
  continue reading
 
Setting realistic New Year's resolutions is crucial for achieving long-term success, as studies show that only 8% of people actually meet their goals. This episode dives into the common pitfalls that lead to failure, such as setting unrealistic expectations, adopting an all-or-nothing mindset, and neglecting emotional support. Tara emphasizes the i…
  continue reading
 
Loading …

Quick Reference Guide

Copyright 2025 | Privacy Policy | Terms of Service | | Copyright
Listen to this show while you explore
Play