This podcast is a service of the Immune Deficiency Foundation — a nonprofit organization dedicated to improving the diagnosis, treatment, and quality of life of people diagnosed with primary immunodeficiency, or PI. "Bold Conversations" is a program that explores the harsh realities of health access in the United States. Hosted by Dr. Nicole Rochester. "Undiagnosed" is a narrative docuseries on that tells the true stories of PI patients and their long journeys to proper diagnosis and treatme ...
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Tara West is a passionate Functional Nutritionist dedicated to transforming lives through the power of nutrition biohacking and longevity science. With an extensive background in functional nutrition and a relentless curiosity for cutting-edge nutritional research, Tara has become a trusted expert in optimizing health and enhancing vitality. Her holistic approach integrates personalized nutrition strategies, innovative biohacking techniques, and a deep understanding of the body's intricate s ...
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As peer-to-peer fundraising professionals, we are inherently passionate people. Passionate about our missions, our fundraisers, our events, and our campaigns. We barely shy away from sharing our opinions. Whether it's the debate between back-to-basics, or searching for the next big idea, the battle of retention versus recruitment, or even our very strong feelings about T-shirts and registration fees. Welcome to The P2P box, a brand new podcast that amplifies the voices of our peer-to-peer fu ...
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President and CEO Jorey Berry provides an update for the month of July. Topics include new programming, Walk for PI, new resources, and our organization's statement regarding the passage of H.R.1 (OBBBA).*This message was recorded prior to the incredible show of support by Ironmouse and her community.*…
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The Role of Peptides in Sleep Optimization: How DSIP and Epitalon restored my sleep cycles!
36:16
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36:16The Peptique is LIVE! Go to https://thepeptique.com/ to get all your research peptides .As a loyal listener use the discount code POD15 to get 15% off our entire line of products. Have questions? Feel free to reach out to me: [email protected] Want to get started the right way, but don't know where to start. Email me tarawest@westwellnes…
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Bold Conversations: Misinformation with Dr. Cynthia Baur
39:45
39:45
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39:45Transcript: https://primaryimmune.org/sites/default/files/TRANSCRIPT%20Bold%20Conversations%20-%20Misinformation.pdfCynthia Baur, PhD, is a health literacy and health communication expert focused on improving health literacy at the individual, family, community and organizational levels. She directs the University of Maryland Horowitz Center for He…
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Deploying P2P Strategies For Emergency Response with American Red Cross' Jessi Woomer
31:03
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31:03Crisis fundraising operates on a different timeline than traditional campaigns. When disaster hits, organizations have a critical 24-hour window to mobilize resources and activate their networks. But what separates organizations that thrive in crisis from those that scramble? The difference lies in preparation—having systems, messages, and communit…
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Common Pitfalls for Beginners in the World of Peptides and How to Avoid Them!
30:31
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30:31The Peptique is LIVE! Go to https://thepeptique.com/ to get all your research peptides .As a loyal listener use the discount code VIP10 to get 10% off our entire line of products. Have questions? Feel free to reach out to me: [email protected] Want to get started the right way, but don't know where to start. Email me tarawest@westwellnes…
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Transcript: https://primaryimmune.org/sites/default/files/TRANSCRIPT%20Chronic%20Twenties%20Advocacy.pdfImmune Deficiency Foundation staff members Rebecca Russ (grassroots advocacy specialist) and Eric Feigen (regulatory affairs manager) provide insight on what advocacy is, its role in the greater PI community, and the power of young voices.Sign up…
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Update - Retatrutide: The Next Generation Fat Loss Peptide Explained
20:01
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20:01Episode Links! The Peptique is LIVE! Go to https://thepeptique.com/ to get all your research peptides .As a loyal listener use the discount code POD15 at checkout to get 15% off! .Get 15% off Retatrutide with the code RETA15 Have questions? Feel free to reach out to me: [email protected] Follow me on instagram @westwellnessatx, @thepepti…
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Peptides: The Ultimate Summer Skin Stack!
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16:16Episode Links! The Peptique is LIVE! Go to https://thepeptique.com/ to get all your research peptides .As a loyal listener use the discount code POD15 at checkout to get 15% off! Get Melanotan 1 for 40% use the discount code MELANO40, this is only good for a one time purchase and cannot be combined with any other discount codes. Have questions? Fee…
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Embracing A Builder's Mindset with Parkinson's Foundation's Kayln Henkel
33:24
33:24
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33:24There's a fundamental difference between inheriting a well-oiled P2P machine and building one from scratch. When you're tasked with creating systems, culture and infrastructure that need to scale alongside explosive organizational growth, you're not just managing programs - you're architecting the future. But here's what most people don't realize: …
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The surprising benefits I experienced with NAD+ Injections!
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20:08Episode Links! Get 15% off your NAD+ order. The peptique will launch next week, but in the meantime, you can email me at [email protected] and order NAD+ directly or wait until next week and order online at https://thepeptique.com/ . Use the discount code PODNAD15 at checkout! Are you interested in research theraputic peptides. Email me at t…
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Foundation Focus: June 2025 update with CEO Jorey Berry
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2:55
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2:55This program is presented with support from CSL Behring, Takeda, and Grifols.Read a transcript of this episode: file:///E:/2025/Podcasts/CEO%20Updates/Transcript%20-%20CEO%20Update%20June%2025.pdfImmune Deficiency Foundation CEO Jorey Berry discusses our new text message program, an upcoming Lunch & Learn, and an exciting new volunteer opportunity.…
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Aligning Marketing And Field Teams For P2P Success with Wounded Warrior Project's Brandi Glover
30:07
30:07
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30:07In P2P fundraising, there can often be a disconnect between the excitement marketing generates and the direct recruitment strategies implemented by local field teams. The result? Frustrated participants, overwhelmed staff and missed opportunities to achieve participation goals and build lasting relationships with supporters. But what if marketing a…
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Why cycling peptides is critical for getting the outcome you desire!
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24:04
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24:04Episode Links! Are you interested in research theraputic peptides. Email me at [email protected] or go to https://thepeptique.com/ and simply add your email. You will get VIP access and jump to the top of the list to get 10% off you first order as soon as we launch. Simply put "add me" in subject line. Feel free to email with any of your pep…
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Why Research Peptides "Aren't For Human Consumption"
21:11
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21:11Episode Links! Are you interested in research theraputic peptides. Email me at [email protected] or go to https://thepeptique.com/ and simply add your email. You will get VIP access and jump to the top of the list to get 10% off you first order as soon as we launch. Simply put "add me" in subject line. Feel free to email with any of your pep…
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Lunch & Learn: Understanding genetic variants in APDS
45:16
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45:16Transcript: https://primaryimmune.org/sites/default/files/APDS%20Lunch%20and%20Learn%20transcript.pdfDr. Jolan Walter (University of South Florida, Johns Hopkins All Children's Hospital) provides an explanation of genetic variants in APDS.View a PDF of this presentation: https://primaryimmune.org/sites/default/files/FOR%20WEB%20APDS%20IDF%20Lunch%2…
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Growing Your “Share Of Community” Through P2P with AIDS Foundation Chicago’s Jonathan Harris & Christina Robinson
31:10
31:10
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31:10Marketers love to throw around terms like “share of voice” and “share of wallet” - ways to track how much attention or spending a brand commands. But in peer-to-peer fundraising, there’s a different kind of share that matters more. Growing your “share of community” is about going deeper with the people closest to your cause - the ones who feel seen…
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How pairing AOD 9604 and 5 Amino 1 MQ peptides with your GLP's can revolutionize your fat loss and save your metabolism!
23:20
23:20
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23:20Episode Links! Are you interested in research theraputic peptides. Email me at [email protected] or go to https://thepeptique.com/ and simply add your email. You will get VIP access and jump to the top of the list to get 10% off you first order as soon as we launch. Simply put "add me" in subject line. Feel free to email with any of your pep…
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Transcript: https://primaryimmune.org/sites/default/files/Transcript%20-%20May%20CEO%20Update.pdfImmune Deficiency Foundation CEO Jorey Berry provides an update for the month of May, 2025.By Immune Deficiency Foundation
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Navigating Success and Failure: My personal experience the" Glow Stack" GHK-Cu, TB-500, and BPC-157, and how NAD+ backfired on me!
30:20
30:20
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30:20Episode Links! Are you interested in research theraputic peptides. Email me at [email protected]. You will get VIP access and jump to the top of the list to get 10% off you first order as soon as we launch. Simply put "add me" in subject line. Feel free to email with any of your peptide questions. Purchase they highest medical grade quality …
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Activating The Content Creator Community Through P2P with The Immune Deficiency Foundation’s Aimee Yrlas-Simpson & Angela Ridenour
39:13
39:13
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39:13Celebrity gossip magazines love to remind us: "Stars — they’re just like us!" And while the world of digital creators and streamers can feel like a distant universe, the truth is that these online personalities aren’t so different from the rest of us. As P2P fundraising increasingly intersects with the creator community, it’s easy to view streamers…
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Why I left the gym for 6 months: How to come back from adrenal fatigue!
37:03
37:03
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37:03Episode Links! Are you interested in research theraputic peptides. Email me at [email protected]. You will jump to the top of the list to get 10% off you first order as soon as we launch. Simply put "add me" in subject line. Feel free to email with any of your peptide questions. Purchase they highest medical grade quality GHK-Cu topical seru…
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Assessing Opportunities For New Market Growth with The ALS Association’s Cliff Whitlock
31:29
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31:29In the early days of peer-to-peer fundraising events, one of the fastest ways to grow a program was to launch events in new markets. But many organizations scaled back over time, whether due to strategic shifts or limited resources. So what happens when it’s time to grow again? How do you evaluate new opportunities and ensure long-term success? Exp…
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Problems in practice: Insurance with Dr. Marcus Shaker
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31:49
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31:49Transcript: https://primaryimmune.org/sites/default/files/Transcript%20Shaker.pdfDr. Marcus Shaker is a professor of pediatrics in medicine at Dartmouth's Geisel School of Medicine. On this episode of the Immune Deficiency Foundation podcast, he joined staff members Angie Kotarski, community resource navigator, and Stephanie Steele, director of pay…
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Transcript: https://primaryimmune.org/sites/default/files/April%20CEO%20Transcript.pdfImmune Deficiency Foundation president and CEO Jorey Berry provides updates to the PI community.By Immune Deficiency Foundation
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Inspiring Your P2P Community With A Bold, Audacious Goal With Pat Morrissey, Team Human Powered Potential & Liz Deimer, The Michael J. Fox Foundation For Parkinson’s Research
45:21
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45:21In the P2P fundraising world, we often look to the spark of organic, supporter-led moments like the Ice Bucket Challenge as examples of what’s possible when passion meets purpose. But when lightning strikes, are you ready to catch it? This episode dives into one such moment: when four friends, Pat Morissey, Brendan Cusick, Peter Durso, and Scott Fo…
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SPECIAL LOOK: Advocacy Day 2025 Training
1:05:36
1:05:36
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1:05:36Transcript: https://primaryimmune.org/sites/default/files/Advocacy%20Day%20Training%20Transcript.pdfThis week, 150 advocates will represent the Immune Deficiency Foundation and the greater PI community on Capitol Hill in Washington, D.C. But what does that mean, exactly? Why is it important? And what are these volunteers responsible for? This episo…
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Living well with PI: Impact of federal policy changes on the PI community
1:04:22
1:04:22
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1:04:22Transcript: https://primaryimmune.org/sites/default/files/TRANSCRIPT%20Legislative%20webinar.pdfThis panel discussion features Immune Deficiency Foundation CEO Jorey Berry, as well as Chief Public Policy Officer Lynn Albizo, Community Resource Navigator Angie Kotarski, and Jodi Taub, owner of Jodi Taub Therapy, discuss the impact of recent federal …
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Bold Conversations: The elephant in the exam room
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55:37https://primaryimmune.org/sites/default/files/Bold%20Conversations%203.2%20Transcript.pdfIn this session from the 2024 PI Conference in Chicago, Dr. Nicole gave a very vulnerable talk about her experiences navigating the healthcare system, both as a physician and as a caregiver for her father. To learn more, volunteer, or donate, visit primaryimmun…
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Navigating Life After GLP1: A compete guide to avoid rebound weight and maintain your progress!
44:40
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44:40West Wellness and Longevity Links Are you ready to make change but don't know where to start. Book a free 30 min consultation here.https://www.westwellnessatx.com/get-started Purchase the highest quality Hydrogen Water tabs on the market! Just the code WESTWELL or 10% off your orders! https://drinkh2tab.com/?ref=WESTWELL Purchase they highest medic…
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Creating Synergy Across A Growing P2P Portfolio with Princess Margaret Cancer Foundation’s Steve Merker
28:54
28:54
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28:54In the early days of the P2P industry, most nonprofits concentrated on one tentpole P2P event—typically a walk or cycling program—which allowed them to align staffing, branding, and resources around a single, large-scale initiative, focusing on broad market appeal. However, as the industry has evolved, so too has the need to diversify offerings—bot…
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Metabolic Typing Explained: How to determine your metabolic type and finally reach your health and wellness goals!
39:52
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39:52West Wellness and Longevity Links Are you ready to make change but don't know where to start. Book a free 30 min consultation here.https://www.westwellnessatx.com/get-started Purchase they highest medical grade quality GHK-Cu topical serum at Vitali Skin care https://www.vitaliskincare.com/?ref=undrarql This is the most versatile Red Light Therapy …
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Decoding PI: The science of gene therapy and gene editing
1:14:45
1:14:45
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1:14:45Transcript: https://primaryimmune.org/sites/default/files/01PROOF%20transcription%20gene%20editing%20webinar.pdfView a PDF of this presentation: https://primaryimmune.org/sites/default/files/FOR%20WEB%20-%20Gene%20editing.pdfSusan Prockop, MD of Boston Children's Hospital and Harvard Medical School provides an overview and recent updates to gene t…
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Inside My Longevity Protocol: Skin Rejuvenation, Cellular Health, Stronger Recovery, Energy Hacks- And how you can start too!
43:54
43:54
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43:54West Wellness and Longevity Links Are you ready to make change but don't know where to start. Book a free 30 min consultation here.https://www.westwellnessatx.com/get-started Purchase they highest medical grade quality GHK-Cu topical serum at Vitali Skin care https://www.vitaliskincare.com/?ref=undrarql This is the most versatile Red Light Therapy …
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Immune Deficiency Foundation CEO Jorey Berry provides an overview of updates for the community in March 2025.By Immune Deficiency Foundation
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Transcript: https://primaryimmune.org/sites/default/files/FOR%20WEB%20Undiagnosed%20Ilana%20Transcript.pdfTikTok personality and author of "Medical Gaslighting" Ilana Jacqueline has captivates her curious followers with tips on navigating a hostile medical system. Unfortunately, her lessons are often things she's learned the hard way. Medical gasli…
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Nutritional Deficiencies: The Silent Culprit of Aging Quicker, Gaining Weight, Brain Fog and More!
38:24
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38:24West Wellness and Longevity Links Are you ready to make change but don't know where to start. Book a free 30 min consultation here.https://www.westwellnessatx.com/get-started Purchase the highest quality Hydrogen Water tabs on the market! Just the code WESTWELL or 10% off your orders! https://drinkh2tab.com/?ref=WESTWELL Have questions? Feel free t…
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The "Skin Glow" Peptide Stack That Will Restore And Rejuvenate Your Skin: Understanding GHKCU, BPC157, and TB500
25:32
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25:32West Wellness and Longevity Links Are you ready to make change but don't know where to start. Book a free 30 min consultation here.https://www.westwellnessatx.com/get-started Purchase the highest quality Hydrogen Water tabs on the market! Just the code WESTWELL or 10% off your orders! https://drinkh2tab.com/?ref=WESTWELL Have questions? Feel free t…
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The Foundations Of Biohacking and How You Can Start Your Own Free Biohacking Protocol Today!
52:44
52:44
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52:44West Wellness and Longevity Links Are you ready to make change but don't know where to start. Book a free 30 min consultation here.https://www.westwellnessatx.com/get-started Purchase the highest quality Hydrogen Water tabs on the market! Just the code WESTWELL or 10% off your orders! https://drinkh2tab.com/?ref=WESTWELL Grounding mat: use this lin…
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ChronicXTwenties: Transitioning from pediatric to adult care with Riley and Nick
37:53
37:53
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37:53Transcript: https://primaryimmune.org/sites/default/files/Cx20%201.1%20transcript.pdf.Immune Deficiency Foundation volunteers Riley and Nick discuss the complications and strategies that helped them transition from pediatric to adult care for their chronic illnesses.The information, terminology, and opinions presented in this forum do not necessari…
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Immune Deficiency Foundation president and CEO Jorey Berry provides updates to the community for February 2025By Immune Deficiency Foundation
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Hydrogen Water: The Science-Backed Hack for Better Skin, Recovery & Metabolism with a Very Small Investment!
21:07
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21:07West Wellness and Longevity Links Are you ready to make change but don't know where to start. Book a free 30 min consultation here.https://www.westwellnessatx.com/get-started Purchase the highest quality Hydrogen Water tabs on the market! Just the code WESTWELL or 10% off your orders! https://drinkh2tab.com/?ref=WESTWELL For all the latest research…
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Transcript: https://primaryimmune.org/sites/default/files/Bold%20Conversations%203.1%20Transcript.pdfJalisa Clark is a Research Fellow at the Center on Health Insurance Reforms (CHIR) at Georgetown University’s McCourt School of Public Policy. Today, she joins Dr. Nicole for a deep dive into inequitable health insurance practices in the U.S.The inf…
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Retatrutide: The New Revolutionary Weight Loss Peptide !
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16:42West Wellness and Longevity Links Are you ready to make change but don't know where to start. Book a free 30 min consultation here.https://www.westwellnessatx.com/get-started Have questions? Feel free to reach out to me at: [email protected] Follow me on instagram @westwellnessatx Today, we delve into the intricacies of a novel peptide k…
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Methylation: The hidden culprit of issues with energy, depression, anxiety, detoxification, our immune system and more!
37:16
37:16
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37:16West Wellness and Longevity Links Are you ready to make change but don't know where to start. Book a free 30 min consultation here.https://www.westwellnessatx.com/get-started Have questions? Feel free to reach out to me at: [email protected] Follow me on instagram @westwellnessatx Methylation emerges as a pivotal biochemical process that…
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Understanding the Epidemic of Hormone Dysregulation
34:43
34:43
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34:43West Wellness and Longevity Links Are you ready to make change but don't know where to start. Book a free 30 min consultation here.https://www.westwellnessatx.com/get-started Have questions? Feel free to reach out to me at: [email protected] Follow me on instagram @westwellnessatx Non- Toxic Cookware:https://www.greenpan.us/WESTWELLNESSA…
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Unlocking the Power of Peptides: Your Guide to Anti-Aging, Weight loss, Immune Health, Building Lean Muscle, Hormone Balance and more!
47:47
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47:47West Wellness and Longevity Links Are you ready to make change but don't know where to start. Book a free 30 min consultation here.https://www.westwellnessatx.com/get-started Get your own GHK-Cu Peptide here:https://www.vitaliskincare.com/?ref=undrarql Have questions? Feel free to reach out to me at: [email protected] Follow me on instag…
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Is there actually exercise in a Pill? Unleashing the Power of SLU-PP-332 "SLUPP": The Revolutionary Compound That Mimics Exercise Benefits
22:14
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22:14Welcome back! Today, we're diving into an exciting new compound called SLU PP332, or "Slupp," which has the potential to mimic the benefits of exercise at a cellular level, even when you're not physically active. Tara shares her personal journey with Slupp emphasizing its role as a possible enhancement to exercise rather than a replacement. She dis…
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CEO update from Jorey Berry: January 2025primaryimmune.org/resourcesBy Immune Deficiency Foundation
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Living well with PI: Mental health and wellness tips
1:21:20
1:21:20
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1:21:20Transcript: https://primaryimmune.org/sites/default/files/Mental%20health%20tips.pdfBecky Lenning is the owner and clinical director of Yellow Lotus Clinical Services for Healing and Wellness, where she brings over fourteen years of clinical experience as a licensed professional counselor to her practice.To learn more, volunteer, or donate, visit p…
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Why only 8% of people achieve their goals and resolutions, and strategies to be part of that 8%!
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25:22Setting realistic New Year's resolutions is crucial for achieving long-term success, as studies show that only 8% of people actually meet their goals. This episode dives into the common pitfalls that lead to failure, such as setting unrealistic expectations, adopting an all-or-nothing mindset, and neglecting emotional support. Tara emphasizes the i…
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