Best Mecfs Podcasts (2025)

1
A Moment of Silence for Severe ME/CFS Patients 5:27

7d ago5:27

5:27

To all those living in silence and darkness. Today we take a moment in silence and darkness to honor your courage, your bravery, your resilience, your strength, and we acknowledge your profound suffering, agony and loss… ✏️ My ME/CFS Blog ❓What is ME/CFS? 👤 My Story 📄 ME/CFS Resources 🙏 Donate to ME/CFS Research 🖼️ My Print Store…

1
184 - Brain Health Breakthrough with Dr Henry Mahncke & Dr Gitendra Uswatte 1:00:52

15d ago1:00:52

1:00:52

Dr. Henry Mahncke and Dr. Gitendra Uswatte share groundbreaking research on using brain plasticity principles to treat Long Covid brain fog through a comprehensive approach combining cognitive processing speed training, real-world skill practice, and personalized cognitive rehabilitation strategies. • Neuroplasticity is the brain's ability to chang…

1
Living In Unknowns 4:58

15d ago4:58

4:58

That is ME/CFS. We live with world champion symptoms with no idea what is causing them or what will happen with those symptoms or what our future holds. We hold onto hope but are often crushed by this harsh, unrelenting illness… ✏️ My ME/CFS Blog ❓What is ME/CFS? 👤 My Story 📄 ME/CFS Resources 🙏 Donate to ME/CFS Research 🖼️ My Print Store…

1
183 - Strength in Vulnerability: Theresa's Recovery Story 52:44

21d ago52:44

52:44

In this episode, Jackie is joined by Theresa Aristarco who shares her Long Covid recovery story. Theresa's journey from an active software engineer to battling long-haul COVID Navigating complex medical challenges and invisible symptoms The critical role of mental health in recovery Overcoming vestibular issues and physical limitations Finding hope…

1
Too Many Of Us Are Dying 7:45

23d ago7:45

7:45

I see people protesting the rights of many marginalized groups and important issues. I see people up in arms over injustices faced by people all around the world…BUT WE ARE DYING. Not to mention suffering endlessly from symptoms that are often only comparable to what any other human being experiences right before death. For neverending decades. And…

1
182 - Finding Rest in a World That Never Stops - Karen's Recovery Story 46:32

29d ago46:32

46:32

Karen Wright from Sage Health and Wellness shares her powerful recovery story from Long COVID, offering hope and practical wisdom for those still struggling with chronic illness. • Karen was a busy NHS physiotherapist involved in developing Long COVID services before becoming ill herself in autumn 2021 • Her severe case left her unable to speak at …

1
181 - Dr David Putrino - The Multifaceted Approach to Long Covid Recovery 1:01:02

1M ago1:01:02

1:01:02

Dr. David Putrino shares his expertise on Long Covid, approaching it through the lens of comprehensive rehabilitation and personalized medicine rather than one-size-fits-all treatments. He explains how identifying the specific drivers behind common symptoms leads to more effective intervention strategies. • Rehabilitation medicine encompasses far m…

1
Dear America, 8:46

1M ago8:46

8:46

The "Big Beautiful Bill" that Trump signed into law on the 4th of July will take away insurance from an estimated 17 million people, mostly from people on Medicaid. I want to tell you how losing Medicaid would impact me directly.…If I lost Medicaid, my parents would have to sell our house to pay for medical expenses that keep me alive…What are we d…

1
4th of July Disgrace 4:03

1M ago4:03

4:03

This 4th of July, if I could fly an American flag, it would be flown upside down…Today should be a disgrace to all Americans…Today President Trump signs into law a bill that will take away healthcare from 17 million Americans…most of them on Medicaid... ✏️ My ME/CFS Blog ❓What is ME/CFS? 👤 My Story 📄 ME/CFS Resources 🙏 Donate to ME/CFS Research 🖼️ …

1
180 - Jules Rogers - The Art of Saying No: Why Boundaries Matter in Healing 42:45

2M ago42:45

42:45

Jules Rogers returns to the podcast to discuss the essential role of boundaries in chronic illness recovery and everyday wellbeing, sharing how learning to protect our energy can be transformative. • Boundaries are conscious protections we put in place to maintain our energy and ensure we're not giving beyond what feels right • Different types incl…

1
179 - Dr David Clarke - Decoding Your Body's Secret Language 58:06

2M ago58:06

58:06

Dr. David Clarke shares his 40-year journey as a medical consultant specializing in neuroplastic conditions—real physical symptoms generated by the brain in response to stress, trauma, or emotional challenges. He explains how these conditions affect 20% of adults and 40% of doctor visits, yet remain frequently misdiagnosed despite being highly trea…

1
178 - Rebuilding Safety: from Couch to Mountains - Alisha's Recovery Story 46:24

2M ago46:24

46:24

Alishia shares her powerful Long Covid recovery journey—from a highly active farm worker to being couch-bound for over a year, and ultimately back to health through finding safety in her body. • Worked long weeks in manual farm labour & enjoyed being active before catching Covid in 2020 • Experienced extreme anxiety, heart palpitations, shortness o…

1
Growing Up With ME/CFS 4:34

2M ago4:34

4:34

I’ve done most of my "growing up" here in bed. And lately I’ve realized that "growing up" hasn’t been about figuring out the whole universe, but a process of acceptance - accepting that I don’t have it figured out and most importantly accepting myself and loving myself without "knowing it all"…And this is part of one of the saddest things about liv…

1
177 - The Stool with Four Legs: Rachel's Long Covid Recovery 48:17

2M ago48:17

48:17

Rachel Rock shares her powerful Long Covid recovery story, detailing her journey from initial illness to healing through understanding and supporting her autonomic nervous system. • Contracted COVID in May 2022 & developed long COVID whilst attempting to train for a cycling event • Discovered she was experiencing Dysautonomia & significant blood pr…

1
Dear Healthy People 3:17

2M ago3:17

3:17

I feel like I am in a position where I have to be against the whole world because the whole world is against me…But I don't enjoy that, I didn't choose that. I was put in this position. I love this world. I want to be a part of this world…Not excised like a broken part, tossed aside and marginalized and painted in all kinds of colors that do not de…

1
38: "I should be doing more" 14:23

2M ago14:23

14:23

Sometimes I get stuck in the past and think that I am the Paul who used to have lots of energy and had lists of things to do everyday. Living with a Chronic illness has meant a period of adjustment, which I am still struggling with. You can purchase my book here You can subscribe to the community here Get full access to Life With Long Covid at paul…

1
This Ain't No F*ing Flu 6:14

3M ago6:14

6:14

I'm sick of ME/CFS being compared to a never-ending flu. This ain’t no f*ing flu. I feel like every system in my body is broken and in pieces. I am mentally and physically 1% as alive as I used to be…But even if you have a very severe flu and are bed bound, the never-ending part is a huge deal… ✏️ My ME/CFS Blog ❓What is ME/CFS? 👤 My Story 📄 ME/CFS…

1
176 - When Your Body Becomes a Stranger: One Man's Path Back to Health 47:58

3M ago47:58

47:58

Karl Robottom shares his remarkable journey from Long Covid symptoms to running marathons, offering hope and practical insights for those still struggling with the condition. • Former PE teacher whose active lifestyle was completely derailed by Long Covid despite having only mild initial Covid symptoms • Experienced breathlessness, severe fatigue, …

1
E27 - Can’t Cope with Chronic Illness? One Mental Shift Ignited My Resilience 15:07

3M ago15:07

15:07

In this video Dan shares the one mental shift that ignited more resilience after years of suffering and frustration. If you’re searching for practical ways to cope, rebuild psychological strength and improve daily life with chronic illness like ME/CFS, Fibromyalgia, PVFS (long covid), POTS, MCS or related illness, this could be key for you. SHOWNOT…

1
37: "What do you do all day?" 16:28

3M ago16:28

16:28

The covid pandemic might be a thing of the past for most people, but to some, it has changed their lives forever. In this episode, I reflect on having to stop doing some of the things I loved and coming to terms with a new life, with long covid. You can purchase my book here. Please subscribe to become a member of the community. Get full access to …

1
175 - Jackie dives into Cold Water Immersion 34:58

3M ago34:58

34:58

Cold water immersion - friend or foe? One of the things that helped Jackie the most in her recovery - cold water immersion - and one of the most commonly asked questions from listeners. But it doesn't work well for everyone. In this episode, Jackie dives into the science behind the power of cold water, as well as discussing her own expertise and he…

1
Unseen Courage 1:54

3M ago1:54

1:54

Starting a new day with ME/CFS, with full awareness of the suffering that lies ahead and the helplessness of a reality with no effective treatments, no suport from the world around you, and no concrete knowledge of a cure; This is one of the most profound acts of courage... ✏️ My ME/CFS Blog ❓What is ME/CFS? 👤 My Story 📄 ME/CFS Resources 🙏 Donate t…

1
This Is ME/CFS 8:41

3M ago8:41

8:41

This is ME/CFS. Unrelenting. Unforgiving. Never ending. You fight and fight for crumbs of life that most muggles throw away. Crumbs that are not even good enough for the dogs. And then ME/CFS launches a new assault and you are back in the trench you were in years ago. No mercy. No solace. A forever war that keeps taking and taking and taking… ✏️ My…

1
174 - Uroš Čimžar - From Crisis to Rebirth: One Man's Journey Through Long Covid 55:13

3M ago55:13

55:13

Uroš shares his inspiring recovery journey from long COVID, revealing how addressing hidden emotional patterns and learning self-compassion transformed not only his health but his entire approach to life. • Prior to illness, Uroš appeared to be living his best life following a 15-month sabbatical, with a fitness routine and new career mentoring ent…

1
36: "I cannot face recording a podcast episode" 15:29

3M ago15:29

15:29

Chronic Illness can get you down. In this episode, I talk about why I have not uploaded an episode lately and how my illness affects my mental health. It's a candid, raw and honest exploration of how it affects me. Please do consider subscribing here You can purchase my book here Get full access to Life With Long Covid at paulianclarke.substack.com…

1
173 - Diana Driscoll - Healing PoTS and Dysautonomia: From Patient to Pioneer 49:22

4M ago49:22

49:22

Dr. Diana Driscoll shares her remarkable journey from bedridden POTS patient to pioneering medical researcher developing treatments for autonomic dysfunction. Motivated by her own ten-year battle with post-viral dysautonomia and her children's similar struggles, she created patented solutions when conventional medicine offered no answers. • POTS is…

1
Chocolate Fix! 4:46

4M ago4:46

4:46

Chocolate, no joke, makes me feel better than all of my huge box of supplements combined. That is, in the short term. In other words, the meds and supplements I’m taking are I’m *sure* helping me more than chocolate in a more long term sense, but chocolate… ✏️ My ME/CFS Blog ❓What is ME/CFS? 👤 My Story 📄 ME/CFS Resources 🙏 Donate to ME/CFS Research…

1
172 - Jo Thomas - Overcoming the Curse of "Recovery Perfection" 50:06

4M ago50:06

50:06

Recovery doesn't have to be perfect to be effective, and sometimes the very quest for perfect recovery can keep us stuck in our healing journey. Jo Thomas shares her personal experience with overcoming POTS and chronic fatigue, highlighting how shifting mindsets and letting go of perfectionism accelerated her healing process. • Jo's recovery journe…

1
35: "Let's go out for the day" 20:54

4M ago20:54

20:54

This week I reflect on a visit to London on the train and rant about assessments! Please support the podcast if you can by subscribing here.My book is available here. Get full access to Life With Long Covid at paulianclarke.substack.com/subscribeBy Paul Ian Clarke and Rachel Clarke

1
171 - Light Switch Recovery: Aaron's Story of When Reinfection Leads to Healing 50:53

4M ago50:53

50:53

Aaron West shares his remarkable two-and-a-half-year journey with Long COVID and his unexpected path to recovery. From being a highly athletic cyclist who once rode across South Carolina in a single day to becoming bedbound with debilitating symptoms, his story demonstrates that recovery is possible—sometimes in the most unexpected ways. • Previous…

1
34: "It's just a routine appointment." 24:39

4M ago24:39

24:39

This week, I reflect on a recent post and a trip to our local hospital for a blood test. Rachel joins me again, and we read through some of the responses to the post and how, by sharing experiences, we can feel less alone. Subscribe to the show here to join the community and to receive posts and episodes. You can purchase Paul's book here. Get full…

1
170 - Amy Mooney - "Flipping the Iceberg" - What if everything you thought about recovery is underwater? 51:05

4M ago51:05

51:05

Amy Mooney shares her unique perspective as both an occupational therapist and caregiver to her daughter with ME-CFS, revealing essential insights about rest, recovery, and meaningful approaches to chronic illness management. • 25 years of occupational therapy experience transformed by caring for her daughter with ME-CFS for the past decade • Learn…

1
Turning The Tables: The Partners Perspective 27:56

5M ago27:56

27:56

In this episode, I turn the tables on my wife, Rachel, and ask her about what it's like to live with someone who has Long Covid. It's a candid and honest conversation that will benefit anyone navigating chronic illness or supporting someone dealing with it. You can subscribe to receive more articles and episodes here. You can buy the book here. Get…

1
Cutting 99.7% Out Of Your Life 1:54

5M ago1:54

1:54

I often say this to healthy muggles: Close your eyes and picture all of the things you do in your life…Now imagine removing 99.7% of those things… ✏️ My ME/CFS Blog ❓What is ME/CFS? 👤 My Story 📄 ME/CFS Resources 🙏 Donate to ME/CFS Research 🖼️ My Print StoreBy Whitney Dafoe

1
169 - The Roots Below: Five Essential Themes for Long Covid Recovery 24:14

5M ago24:14

24:14

Jackie explores recovery themes in today's episode, as she identifies five key themes that emerge across different healing journeys: consistency in daily practices, mindset that fosters healing, understanding what's happening in your body, building personal strategies, and creating a healing environment. • Consistency means showing up daily for pra…

1
32: "How disabled are you?" 15:52

5M ago15:52

15:52

This week, I reflect on an assessment I was asked to complete for benefits, aimed at judging how disabled I am due to Long Covid. It helped me reflect on my journey and how my life has changed in the past few years. Join the community here You can purchase Paul's book here Get full access to Life With Long Covid at paulianclarke.substack.com/subscr…

1
168 - The Rebound Method - Rachael shares how to safely start to move your body! 51:57

5M ago51:57

51:57

Rachael's inspiring journey through long COVID showcases the resilience of the human spirit in the face of ongoing symptoms and challenges. The episode delves into her unique recovery strategies, including her tailored exercise protocols designed specifically for individuals battling long COVID, emphasising the importance of consistency, adaptabili…

1
31: "Why are so many people sick?" 18:59

5M ago18:59

18:59

I triumph on achieving a small task and reflect on Long Covid awareness day. Five years on from the pandemic's beginning, are we doing all we can to explore and treat this illness? You can support the Podcast and receive my articles here. My book is available from Amazon here. Paid subscribers get a free signed copy! Get full access to Life With Lo…

1
167 - Reclaiming Health and Hope with Dr. Teitelbaum 49:03

5M ago49:03

49:03

We explore the complexities of long COVID and the energy crisis it creates in the body, with Dr Jacob Teitelbaum sharing insights from his own struggles and professional experience. Listeners will find practical advice on mindset, nutrition, and treatment options essential for recovery. • Discussion on the energy crisis and its impact on health • O…

1
My New Print Store! 2:47

5M ago2:47

2:47

I want to announce my new Print Store! I have been working on putting this store together for 2 years now…The images were all taken before I became severe with ME/CFS in 2013…So it is a sort of parallel dimension time capsule of what could have been with my life. I want to share these images and possibly prints of these images with all of you! ❤️ ✏…

1
30: "What happens when you crash?" 19:03

5M ago19:03

19:03

I often talk about 'crashing', but what does it really mean? In this episode I reflect on the different things that cause me to crash and the ways in which I attempt to explain it to others. You can purchase my book, Living with Long Covid, here. You can subscribe for extra content here, and also send me a message/comment on this episode or your Lo…

1
166 - "I'm Not Broken": Finding a New Perspective on Illness with Rebecca Tolin 50:31

5M ago50:31

50:31

Rebecca Tolin shares her transformative journey from chronic illness to recovery and self-discovery. Her insights into the mind-body connection, the impact of trauma on health, and the importance of self-compassion offer listeners a path toward healing. • Introduction to Rebecca's journey with ME/CFS • The effect trauma has on physical health • Sea…

1
The Forever Night Of ME/CFS 2:10

5M ago2:10

2:10

Memories tearing like tissue paper, Of all the dreams, I thought might be made real, Tearing into pieces so small, They float away, Into the forever night of ME/CFS… ✏️ My ME/CFS Blog ❓What is ME/CFS? 👤 My Story 📄 ME/CFS Resources 🙏 Donate to ME/CFS Research 🖼️ My Print StoreBy Whitney Dafoe

1
29: "Do you want to go out for the day" 19:39

5M ago19:39

19:39

Organising a day out with mobility aids is no small task, but I thought I had cracked it. Armed with meticulous, military like planning and a new wheelchair I confidently planned a trip to Manchester. However, the unknown's are hard to plan for! You can purchase my book, Living with Long Covid, here. You can subscribe for extra content here, and al…

1
28: "You need more friends" 18:55

6M ago18:55

18:55

In this week's episode, I discuss how important it is to maintain or rekindle friendships, even though it can be tough when you have an energy-limiting illness. Visit and subscribe to my substack here You can purchase my book here Get full access to Life With Long Covid at paulianclarke.substack.com/subscribe…

1
165 - Overcoming Long COVID: Lizzie's Journey to Recovery and Resilience 53:50

6M ago53:50

53:50

Lizzie shares her heartfelt journey through Long COVID, detailing the challenges she faced as well as the strategies that eventually led her to recovery. By embracing the importance of rest, celebrating small victories, and gaining knowledge about her condition, she transformed her approach to health and wellness. • Lizzie's active life before cont…

1
27: "What have you been doing?" 24:06

6M ago24:06

24:06

This week, I am joined by my wife Rachel as we discuss how I plan my day and how essential it is to look ahead with chronic fatigue. I also talk about using Visible, a useful tool for monitoring and measuring 'pace points'. This Podcast is now hosted with Substack, which means you can comment and subscribe for additional content here. Living with L…

1
I Started Eating Food Again in 2024...What Will 2025 Bring? 10:04

6M ago10:04

10:04

I started eating real food again in 2024!...I have now stopped the Peptamen food formula completely, and get all my calories from real food!...It has come time that I feel stable enough with this new change that I feel comfortable telling you all. And I want to tell you because I want you to hear this story! ✏️ My ME/CFS Blog ❓What is ME/CFS? 👤 My …

1
The 2025 ME/CFS Valentine's Day Challenge! 2:31

6M ago2:31

2:31

Will you take the 2025 ME/CFS Valentine’s Day Challenge and reach out to 2 people you love and tell them you love them and why? …You will make their day. And if we all do this, it will have a ripple effect and reach through the ME/CFS community and none of us will feel alone or unloved today. ✏️ My ME/CFS Blog ❓What is ME/CFS? 👤 My Story 📄 ME/CFS R…

1
Letter to my Fingernails from my Nervous System 1:38

6M ago1:38

1:38

Psssst! Hey fingernails! Didn’t you get the memo? What are you doing growing so fast like that, not to mention those perfect cuticles! We are in total body shut down mode here, you’re not supposed to be doing anything right. [Trigger Warning: This post is a joke] ✏️ My ME/CFS Blog ❓What is ME/CFS? 👤 My Story 📄 ME/CFS Resources 🙏 Donate to ME/CFS Re…

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