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The Forgotten 30%: Navigating Life with Persistent Post-Concussion Symptoms
Manage episode 491645822 series 3638140
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Chaandani Khan's story begins with a life derailed. Six years ago, a car accident left this high-achieving event planner with a concussion that transformed her world overnight. The woman who once thrived on 70-hour work weeks, constant travel, and a packed social calendar suddenly couldn't make a sandwich or find matching shoes. The cognitive fog was so thick that even basic tasks became mountains to climb.
What unfolds in this raw, vulnerable conversation is a journey through the challenging landscape of persistent post-concussion syndrome (PPCS). Chaandani shares how she navigated years of appointments with multiple practitioners—sometimes five days a week—while grappling with the profound question: "Who am I now that everything that defined me has been stripped away?"
The heartbeat of this episode is the critical gap Chaandani identified during her recovery: many healthcare providers, though well-intentioned, aren't truly "concussion-informed." She describes how practitioners might overwhelm patients with too much information delivered too rapidly, or fail to recognize when patients are "masking" their symptoms while internally struggling. With approximately 30% of concussion cases becoming persistent, this represents thousands of people potentially falling through the cracks.
Today, Chaandani has transformed her experience into a mission. She now educates practitioners on practical strategies to better serve their concussion patients—from slowing speech patterns to controlling environmental factors like lighting and sound. She's developing an online learning community for professionals launching in 2025, aiming to create systemic change that improves outcomes for all PPCS patients.
Connect with Chaandani at www.returntolife.ca and discover how her work is helping bridge the gap between patients and practitioners in the concussion recovery journey.
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Dr. Wolf's book Concussion Breakthrough: Discover the Missing Pieces of Concussion Recovery is now available on Amazon!
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Medical disclaimer: this video or podcast is for general informational purposes only, and does not constitute the practice of medicine or other professional healthcare services, including the giving of medical advice. No doctor patient relationship is formed. The use of this information and materials included is at the user's own risk. The content of this video or podcast is not intended to be a substitute for medical advice diagnosis or treatment. Consumers of this information should seek the advice of a medical professional for any and all health related issues.
Chapters
1. Introduction and Book Announcement (00:00:00)
2. Chandani's Life Before Brain Injury (00:05:10)
3. Post-Concussion Symptoms and Challenges (00:08:40)
4. Recovery Journey and Treatment Experiences (00:14:50)
5. Healthcare Gaps in Concussion Treatment (00:25:49)
6. Sensory Challenges and Environmental Adjustments (00:34:59)
7. Progress After Six Years (00:44:14)
8. Rebuilding Identity After Brain Injury (00:50:24)
9. Future Projects and Contact Information (00:54:49)
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